When did you first regain consciousness?
It happened slowly with a lot of confusion, so I can’t really say. You’d have to be in my place to understand. My short term memory is still recovering, probably because of the drug induced coma. They say my brain should recover more and more.
I have parts that I’m seldom even aware of going clench clench clench. My sympathies, and glad you weathered this and are still amongst us.
I’m so glad to hear you are sitting up in a chair, considering how ill you have been. I wish you the best in your continued recovery.
I have many years experience doing therapy in what is called a rehab center… or Skilled Nursing Facility, but is really a nursing home with all that implies.
Picking the least worst is how it works but try not to stress about the choice as it is very tough to tell until you’re actually in a facility how it’s going to go. The chances sound good you will get better no matter where you go.
I may be able to help with specific questions or situations that I see a post about or send me a PM if you want to.
Congratulations on being miraculous!
I hope you feel much better soon.
Smoke 'em if you got 'em. 
Aww shit, man. I’ve got my 1st scope scheduled for MONDAY!
Get better, man.
In the USA if you are diagnosed with kidney failure (aka ESRD - End Stage Renal Disease), you go on Medicare even if you’re under age 65, and your dialysis is covered.
Someone has stolen my holey crap pun, so I’ll just wish a continued recovery. I’m glad you’re still with us.
I have a friend who went through this some years ago (way before I knew her). She says she still has effects from it. In fact, she just posted about it today on Facebook.
BUT! As far as I know she is fully functioning, strong and livin’ a life so you’ve got plenty of hope for the future. I can’t imagine the rollercoaster both you and your family have been on these past months. And you still have some way to go too, wow.
Best of luck - thanks for checking in! 
So sorry to hear about this, what a horrible ordeal. I’m happy to hear you seem to be on the mend! Take care!
Suing?
No comment.
I know why.
When Medicare was created, dialysis was a very new procedure, and there were a lot of people under 65 who needed it, and couldn’t get it because health insurance was not the ubiquitous thing it is now, nor had Medicaid been created yet, so they decided to go ahead and pay for it. Unfortunately, one side effect is the for-profit dialysis industry, which is a discussion for another time.
Do you know if you have Crohn’s?
Oops, got the Crohn’s answer after the edit deadline.
:o
Your bowel was probably fragile when the scope was done. Was it an upper or lower scope that did this to you?
It had already been determined in the past that I don’t have Crohn’s.
I do recall years ago seeing various news stories about communities having fund raisers to pay for some individual’s dialysis. I have to believe that paying for it was an easy way to win votes, so your explanation makes sense. And eliminating is a sure way to alienate a voter base, left or right.
:eek: I’m so glad you’re improving. Please do keep us updated. I’ve never been a resident of a rehab facility, but I know a number of people who have and it’s been my observation that if you can advocate for yourself you’ll be fine.
I’m “at high risk” for obstructions due to extensive abdominal surgery and the resulting adhesions, and was hospitalized in June for an obstruction that resolved itself. Evidently, coconut isn’t digestible. :rolleyes: Do they know what caused yours? Don’t eat coconut, btw. :rolleyes:
Do you have one of the MFing NG tubes? OMG. I hope not.
AFAIK, Medicare only pays for the dialysis itself and not transportation, other medications used by people who are on it, treatment of complications, etc.
Nowadays, most dialysis patients are over 65 anyway; this wasn’t the case back in the 1960s because most people who had conditions predisposing them to kidney failure (diabetes, genetic disorders, etc.) didn’t live that long.
Your PT and walking again probably will turn out OK. My aunt developed a vascular disease in her led-- I guess it was more of a malfunction-- but she had several surgeries on it, and was in bed for a while, and in wheelchairs, and did PT, and was in a lot of pain, and kept having recurrences. After spending several months mostly bed-bound due to pain (she had so much pain, it was hard to get out, even with a wheelchair), the decision was amde to amputate below the knee. She was in the hospital for a few days before the surgery on a nerve block and mild general pain killer, so she wouldn’t be stuck with phantom pain.
She had pretty intense PT. It was tough, and took time, but now she walks. She uses a cane or a Lofstrand crutch, but she has been walking on her own for about 20 years on a prosthesis.
So, I’m sure it will work out for you.
One thing I knew from using a PT to get over back pain, is that the first person you are assigned to may not have the right solution for your issues. If you think you are not making enough progress with your first therapist, or the therapy you are doing is requiring too much effort for too little gain, ask to be reassigned. I had two very nice and seemingly knowledgeable people assigned to me to work on my back, but the pain wasn’t resolving. My doctor said to try one more time, and if I still made no progress, she’d refer me for surgery. The third person was a miracle worker. After three months, I was going on mile-long hikes over rough terrain with no back pain at all. I made a trip to Greece, which if you’ve ever been there, Greece is ALL walking. I was fine.
You have to be able to speak up, but don’t be afraid to. Every PT is different, especially with complex problems.
You know who signed that into law? Richard Nixon.
Honestly, it’s amazing how much good that guy did.