Who Decides a "cause of death"

I was reading a bio of Liberace, and in it, it says that Liberace went to great pains to NOT have AIDS listed as a cause of death. It says his friends had his body taken and moved to another county where a different “cause of death” was listed.

It says that the Palms Springs authority refused to accept this when his body was brought back and demanded a reclassification.

That got me thinking, who and WHAT is exactly a cause of death? I mean people rarely die from AIDS, it’s almost always an opportunistic infection that kills them, so why can’t you simply list that as the cause of death and not mention HIV or AIDS?

I also recall a similar incident in the book called “A Tree Grows In Brooklyn,” where the father is an alcholic, goes out one night and apparently suffers from DTs and stays out in the cold, gets pneumonia and dies. The head doctor wants to list alcoholism as a cause but the mother convinces the doctor to leave that off.

If there is reason for a medical examiner to get involved, that doctor will usually give the cause of death found during autopsy. Depending on the state, it may be a coroner that decides. Coroners are often elected positions or appointed and the position often requires just procedural knowledge and not medical knowledge. Coroners may be able to say what they want for a given cause of death if it is needed. For example, people don’t usually die of AIDS on its own. It weakens the immune system for other infection so the cause of death may be truthfully stated as pneumonia for example.

Depends on the state.

My mother recently passed away in Colorado and it was the hospice nurse who made the call – kidney failure in her case (she had a variety pack of ailments so he just sort of chose one). After a brief conversation with her doctor to confirm, that was it. No coroner, no paperwork.

We were told that a fairly recent Colorado law allows any health care professional to state the cause of death if there is no possibility of litigation or complications. My mom died at home while under hospice care. Had she gone down as part of a botched drug deal or somesuch, it would have been a different matter.

When my father died, he had been ill, but he hadn’t been diagnosed with anything specific. We were told that he died of an embolism, but the hospital offered us an autopsy so we could find out. Turned out that he had an undiagnosed case of pancreatic cancer.

His death certificate listed him as dying of:

  1. cardiopulmonary arrest
  2. as the result of a pulmonary embolism
  3. caused by cancer of the pancreas

I’m not sure how to look up a cite for this, but I believe people do not EVER die of “AIDS” or ARC (aids related complex) directly. They die of pneumonia, carposci’s (spelling), blood infections, etc. And those are always listed as the cause of death. Maybe things have changed since Liberace died though.

Similarly for old age. I don’t know why, but I have my great-grandmother’s death certificate, which I believe lists “cardiopulmonary failure” as the cause of death. She was 102 years old. I assumed I’d just see “old age” as the cause.

My father’s death required an autopsy, and the ME listed the cause of death as “complications of heart disease”. I thought that was kind of vague, so I called him up and asked if that meant he had a heart attack.

“No, there was no total blockage of any cardiac arteries. But he had arteriosclerosis and narrowing of the arteries.”

“So what caused his death? Was there a clot?”

"No, there was no clot. "

“So you don’t know what he died of?”

“He had heart disease.”

It went round and round like that for a while. They will never admit that sometimes it is beyond their expertise to determine the cause of death.

That is dieing of old age in medical speak. Cause of death: heart quit beating and lungs stopped breathing.

If you really want to see a scramble to get a cause of death listed as anything but what it really was, read about auto erotic asphixiation
First off, it embarrasses the survivors. Secondly if there is a life insurance policy that is less than 2 years old, it won’t pay for suicide.

Alas, it seems no one is allowed to die of old age anymore. There must be a specific cause given.

The few death certificates I’ve seen have allowed the physician to list contributory health problems in addition to the stated cause of death. So I suppose the certificate for an AIDS-related death could say, for example, that the cause of death was pneumonia, then note that the patient also suffered from AIDS.

The fact that AIDS was the underlying condition in this case can be very significant from a public health perspective. Those with cancer also die because of complications that are associated with the disease (as described by BobT). So although the immediate cause of death may be one thing, the underlying cause may be another. When looking at broader statistics for cause of death, citing only the immediate causes could hide significant trends in mortality on a national basis. For instance, if no one ever listed the underlying cause as AIDS, then policy makers could point to the data and say, “See - it’s not a fatal illness. What’s the big deal?” I don’t mean for this to diverge into a discussion of actual AIDS policies, but it is a valid example of why listing the underlying cause can be important.

Is Gabriela still around?

The great state in which I practice medicine basically refuses to do autopsies unless there’s actually a bullet hole in the body. So, for sudden deaths of my patients, the conversation goes something like this:

Policeman who responded to the 911 call: Will you be signing the death certificate?
Me: I don’t know what he died of.
P: The ME says it’s not a coroner’s case.
M: I can’t just make something up.
P: We can’t release the body until you sign the death certificate.
M: I haven’t seen him in 5 years and he was in perfect health at that time.
P: But we can’t release the body to the funeral home unless you sign the death certificate.
M: I told you, I don’t know why he died.
P: You’re the attending physician of record.
M: I haven’t seen him for 5 years. What do you do if the person doesn’t have a primary physician?
P: The ME signs the death certificate.
M: So have the ME do it.
P: I called them and they say that it’s not an ME case and that you are the physician of record.
M: Well, I’m not going to sign it.
P (frustrated): Ma’am, we can’t release the body to the funeral home without a death certificate.
M: But I don’t know the cause of death.
P: Ma’am are you going to sign it?
M: What happens if I refuse?
P: Ma’am, you are the physician of record.
M: I understand that, but am I just supposed to make up a cause of death?
P: Ma’am, I need to release the body to the funeral home, and I can’t do it unless you sign the death certificate.
M: Let me talk to the medical examiner.

Medical Examiner: It’s not an ME case.
Me: I don’t know what he died of, how do you expect me to fill out a death certificate.
ME: It doesn’t fit our criteria.
M: What would happen if he died without a physician?
ME: You are the physician of record.
M: But I haven’t seen him in 5 years.
ME: It’s not an ME case.
M: I’m not signing anything.
ME: I’m sorry but it doesn’t fit our criteria.
M: I’m not signing it.

Police: So, will you be signing the death certificate?
Me: I don’t know what he died of.
P: We can’t release the body unless you sign the death certificate.

lather, rinse repeat x 1 billion

Me: Fine, I’ll put down cardiac arrest.

Personally, I gag when I see “cardiopulmonary arrest” listed as a cause of death. In every setting where I’ve been involved with death certificates (research, then a stint in hospital administration, then med school and beyond) we were always told it was not an acceptable cause of death. If the ME got involved, that was almost guaranteed to get the certificate sent back (but I think the ME just gave our hospital a hard time in general, for unknown reasons predating my tenure – they’s end anything back that wasn’t black medium point ballpoint, if they spotted it: no blue-black ink, fine points, fountain pens, felt tips… )

It’s a running joke in the medical records world. It just means “his heart stopped beating and he stopped breathing”–pretty much a definition of death, not a cause. The Valentines Day Massacre wasn’t "natural causes"just because “it’s only natural to die when you’ve been shot in the head that many times with a Tommy gun.”

Yet it was the single most common ‘cause of death’ on certificates up to the early 90s (when I last had cause to check) and probably still is. Old habits die hard, I guess. I’ll also concede that it’s often tough to coherently summarize the cause of death in a aged patient with multiple serious ailments–but it’s rewarding to make that effort.

In every setting I’ve been in, the “cause of death” is certified (signed) by a physician, coroner (though many rural coroners have no medical training at all) or equivalent. A hospice nurse may write a cause of death, but generally it’s held to be officially declared by whoever signs the death certificate. It’s also not static. It’s not completely rare for the findings to be revised; there’s just rarely any driving cause to do so.

Autopsies are much less common than they used to be. Hospitals often do only as many as they need to to maintain certification (and may take a hit, accepting a shorter cert rather than meet the ideal standards). This is a pity in my book, because traditionally (again, back when I was in touch with such things) a fair fraction of all autopsies found something unexpected, which often may have affected treatment. If you don’t look, you’ll never know what you might have missed – and though that info often wouldn’t have changed this patient’s outcome appreciably, the feedback can improve your care of others.

IMHO, those unexpected (and not always relevant) findings are precisely why fewer autopsies were done as society became increasingly litigious. It’s often said that insurance won’t pay for autopsies, but in my lifetime, the cost was routinely absorbed as a cost of training or quality assurance. By the time I went to med school, that had ended around here. (Let’s just say the routine autopsy dies of natural causes – it’s only natural that almost no one will want them, if you start charging the family thousands of dollars for them, and Grandpa is, after all, already dead).

That’s not necessarily the case. As a Colorado paramedic, I can pronounce a death. It’s usually done in consultation with a physician, likely what the hospice nurse did. Also, with hospice patients (from the Boulder County Coroner’s Office- PDF )

Alternatively, if she was in a nursing home or hospital for hospice, those deaths are not reportable to the coroner.

Here’s a good list of reportable deaths from the Denver County Coroner’s Office (psychobunny check out #5)

St. Urho
Paramedic

In the state of Virginia, you can report these deaths to the ME, who will then send it back to you. I’ve talked to the local ME many times and she is also frustrated that her budget is so limited that she can’t do autopsies on anybody over 50 unless they die violently.

Isn’t the cause of death of anybody “lack of O[sub]2[/sub] to the brain”?