Yet ANOTHER breast cancer thread

My best friend, age 46, went in for a routine checkup back in December. Her doctor did a breast palpation along with everything else, and gave her a clean bill of health. She said, “So, then, all I need to do is schedule my mammogram now, right?” He said, “Well, your baseline was clear, and your last one was clear, and you really don’t have any risk factors except your age, so you really don’t need to have one EVERY year.”

She said, “You know, my insurance pays for one every year anyway, and my best friend’s Mom died from breast cancer last year, so why don’t we go ahead and do it anyway, just to put my mind at ease?”

During the mammogram, they found micro-calcifications in her left breast. They explained that such things are not uncommon, and could indicate some minor tissue trauma - perhaps getting thrown against her seatbelt, even. “Come back in six months, and we’ll do a follow-up,” they said.

Fast forward to late June of this year. A new mammogram showed that the micro-calcifications have doubled in size and number, and there appears to be a weird little shadow under the grouping. “Come back in six months,” they said again, “and if it’s still there, we’ll do a needle biopsy.” She said, “You know, I am here, I’m already not wearing deodorant, and you’re making me nervous, so why don’t we do that needle biopsy now?”

Her initial diagnosis was DCIS, or Ductal Carcinoma In Situ - scary sounding, but it turns out that is a contained tumor that doesn’t leave the milk duct it’s in, so won’t metastasize or anything. Sure, it IS cancer, and she’ll be talking to an oncologist, but it’s really nothing to get alarmed about.They tell her she can have a lumpectomy, probably outpatient even, and it’ll probably never come back. Then they send her for an MRI.

After the MRI, her oncologist meets with her and asks her if she has given any thought to reconstruction after the surgery. She is baffled - thought this was a simple in-and-out removal of DCIS? He blinks, and refers back to the report in his hand.

"Noooo… " he says. “I cannot save that breast. You do not have a DCIS. You have cancer. The tumor is several inches across, it has tendrils and satellites - you will be having a mastectomy and chemotherapy. And we’re going to check your sentinel nodes and run some genetic tests too, because we need to know if we can save your other breast.”

The sentinel nodes are clean, and she tested negative for the genetic marker, but Monday, she is having her left breast removed. They will start the reconstruction process right away, and will be lifting and doing a reduction on her right breast too. She will have to undergo chemo, as well.

Please remember that doctors don’t always know everything. Stand up for yourselves - if you have questions or concerns, keep talking until someone listens.

Oh, wow.

Best wishes to your friend. I’ll keep her in my thoughts as well. Good for her for insisting on what she felt she needed.

Good for your friend that she insisted on the mammogram and the biopsy. Did she mention what kind of cancer it was if not DCIS? And did she get a second opinion from another surgeon? I’m just curious because I’ve been studying quite a bit about breast cancer in a biology class.

Best wishes for your friend, LifeOnWry.

And my boss tries to discourage me from getting mammograms “because they’re dangerous,” she says. “The radiation is not good for you.” She doesn’t get them. “They’re not necessary.” We work at a major hospital. Mammograms are free to employees. Countless women go without because they can’t afford them. Sometimes I want to smack her.

My mammogram (of course I got one) came back clear.

Best of luck to your friend, Life.

Does your boss understand that all a mammogram is, is an X-ray? It’s a century old technology, and it exposes you to less radiation/potential carcinogens than a cross-country flight or a couple of cigarettes.

Dear Og.

LifeonWry, I’m confused. My mom was diagnosed with DCIS about sixteen years ago, and her doctors made it clear that, while it wasn’t a tumor yet, it would become one, grow, metastasize, and eventually go Stage IV. They told her, at that point, that it would take about fifteen/sixteen years to be fatal.*

I know that there’s some controversy as to whether DCIS might ever become a tumor, but I’d never heard anyone say that once a tumor it wouldn’t spread. That is, after all, what cancer does.

  • Yep, we’ve talked about the fact that if she hadn’t gotten a full mastectomy (with a prophylactic mastectomy on the other side), she might not be with us today. Very sobering.

Damn, that’s scary!! Hugs for your friend.

:: said while hugging myself ::

(I get a mammogram every year like a good girl.)

Yes. She does. She tells me I shouldn’t take medication for migraines, either, because it’s not “natural.” She offers me herbal tea. When I come back from a doctor’s appointment she asks “What kind of meds did he push on you today?”

She tried to talk me out of getting a flu shot: “You’re going to go over there and let them shoot you up with all that mercury? Well, ok. If that’s what you want. Let them shoot that mercury into you.” She tells me at least once a week about her friend whose kid has autism “because he had his childhood immunizations.” I can’t swear that immunizations are 100% problem-free or that something tragic never happens, but I’ll bet they’d have to hold her down to get a tetanus shot into her if she cut herself on a rusty tin can.

And much, much more! Sorry about the hijack; I should take this to mini-rants.

HOLEE CRAP, LifeonWry. Your friend basically saved her own life by her persistence and proactive behavior!

Your friend needs a new primary doctor, for starters.

I’m a bit confused. My oncologists made recommendations for my post-surgery treatment, but it was my surgeon who told me what needed to be done with the knife. You’re saying the oncologist was telling her what she needed for surgery?

Sigmagirl, why is your boss working at a hospital if she is so opposed to modern medicine? :confused:

Well, maybe I should just ask her outright, but I haven’t worked here all that long and it took me a long time to find this job after getting downsized, so I’m hinky about pissing her off. We work for a medical journal operated out of the hospital, so we are not in health care, we are in publishing. It could just as easily be a geology journal; manuscripts are manuscripts and issues are issues, for the most part. Me, I’ll take medical science for all the help I can get.

Needless to say, this is way out of my area of knowledge, but here is one thought:

I know a couple of people like that - some of them are NURSES. It seems to prove that you should never underestimate the amount of cognitive dissonance people are willing to put up with.

Best wishes to your friend - Life. My sister currently looks the part of a bitchin’ dyke (well, except for the husband, minivan, and two kids) as her hair grows back in. And we are suggesting she take up archery as she didn’t do reconstruction.

Well, crap. Now I’m even more nervous. I got my first mammogram about 6 weeks ago and got the lovely “we saw something we aren’t sure about so come back in 6 months instead of a year” letter.

I have a doctor’s appointment later this month; I’ll talk to her about it.

Yeah, me too. Not only because of this thread, but because another doctor I saw this afternoon, was adamant that I get a second opinion on what was just diagnosed in a biopsy of a mass that was found in my mammogram a couple of weeks ago, as Ductal Hyperplasia without Atypia, and referred me to an oncologist, even though that diagnosis is not cancerous. She said, “I don’t want to scare you, but I have patients who have been misdiagnosed, told it was nothing, and it was cancer. GET A SECOND OPINION!” :mad:

Well, my mother was also initially misdiagnosed, too. She’s dead now.

Fuck.

LifeOnWry, I’ll say a prayer for your friend. I hope she comes through this ok.

Tonight I found out a friend of mine at work has invasive ductal carcinoma. Her tumor is big, so big I can’t believe she didn’t notice it before she did. It is as hard as a rock. But, oddly, it is on the bottom of her breast, rather than in the upper outer quadrant like most breast cancers.

She’s Mongolian, so her English isn’t perfect and I’m worried she won’t understand everything the doctors tell her. She said they told her they would do chemo to shrink it, and then do a lumpectomy. As big as it is, I’m surprised they don’t want to take the breast. Or maybe they do and she’s scared. She asked me if she’d be able to work while she does chemo and I told her I didn’t know. But I can’t imagine going through all of that and having to come to work. :frowning:

This stuff is scary.

FWIW, I plan to work during chemo. I go every two weeks (first one is Monday) so I’ll work a half day then go get chemo, then the next day I leave work a bit early so I can get a white-blood-cell booster shot.

They give you anti-nausea meds so chemo is not the debilitating treatment it once was. So, it is possible she may be able to work while I’m chemo, but everyone is different, so I won’t say it’s an absolute certainty.

ivylass - I posted in your other thread - I got the letter today telling me that my mammogram was abnormal and more testeing needs to be scheduled. Hopefully this is just the spot they kept an eye on a few years ago until deciding it was nothing, but if so they should’ve compared against my old films. Keep your fingers crossed.

StG

Well, she’s a waitress in a bar, so that might make things a little more different. I don’t know. Do you work at a desk or on your feet?

I work at a desk, but my doctor said he’s had teachers and police officers go through the same treatment I’m going through and still keep working. I don’t know what her treatment would be, but there is a possibility she may be able to continue working.