Yet another one. Seriously, what gives? (Medical, possibly TMI)

Back in 1999, I had my first kidney stone. Diagnosed at first by “muscle pain – you’re overweight, you need to lose weight and do these stretches” by the Student Health Center’s finest, it was the first of many.

How many? So many I’ve lost count.

I’ve passed several, I’ve had four surgeries to get rid of two of them. I lost a job before I knew the reason I had intermittent agonizing pain and uncontrollable nausea was that I had two huge stones. One was about quarter-size, one about dime-size, one in each kidney. A combination of lithotripsy and ureteroscopies – two of each – cleared me out, all between August 2006 and April 2009.

And now there’s another one. Six millimeters. This on top of diabetes and PCOS and, just recently diagnosed, diverticular disease. My body keeps breaking and I’m still just shy of thirty. Nothing is life-threatening, but it’s the sheer annoyance from a thousand cuts. Add to that a tendency toward depression and self-destructive tendencies and here I sit, burnt out on work, desperate to get away but unable to think of something I’d rather be doing right now. I just want to go home and lie under the blankets and wallow.

I can’t afford that, though. I have bills to pay: a car note, insurance, eternal bills from the first of these surgeries, student loans, other debts. I have responsibilities, but even pulling myself out of bed at the moment is a hell of a thing.

And I’m living with my family because I can’t pay for all that stuff on my current wage and pay for rent too – I have options there, a place to go that isn’t my parents’ house, but with a surgery and convalescence and new bills and the desperate hope I’d had to take a couple of classes this semester to raise my old GPA and get into grad school. But I’m afraid now: I won’t have this good health insurance if I go back to school full time, and I am burning the hell out on this job. If I get another stone, I’ll just go even further into debt on my body as well as going into further debt on my education.

And I should be saving money, anyway, if I’m going to school. I should save every penny I have. It’s just hell on the morale not even being able to afford to move out on my own again.

I know what I have to do: go to the urologist again, go get another surgery, watch the diet, save money, all that. I’m just so damned tired of it, tired of stressing over it, tired of scheduling around it, tired of being this fragile little lump of goo and rocks. Even worrying and angsting makes me feel guilty considering the people who have so much more pain and anguish to deal with than I do: the ones who have nobody to care for them, who go to work through their chemo, the ones who don’t have insurance and go further into debt with every surgery.

It can always get worse. It just seems like it always does.

Best of luck and prayers to you. Health concerns suck. Everyone expects you to be Superman/Superwoman. We are all just bags of goo, eventually, but you are supposed to be on your game every minute anyway.

Wow, that’s rotten. To me, the whole package sounds like a very difficult burden, much more so than just having another stone. I’ve had more than 40 but the other things you list seem worse.

Maybe, possibly, you would be fixed by Theralith or by Polycitra, two medications (or more accurately supplements) my urologists have put me on. Both seem to have stopped my calcium oxylate stones (I also went through a long study and analysis program which failed to find anything actionable). Polycitra caused more muscle cramping, but switching to Theralith mostly fixed that. My first urologist treated me for years and never mentioned them. Then they caught him fondling somebody and shut him down, and next time I bumped into him he was sweeping hallways in a little medical clinic, but I digress.

Anyway, I hope things get better for you. Illness and debt and frustrations in housing and employment and education, and then depressive tendencies on top of that - wow. What a big pile to deal with. It’s almost like you need one of these things to suddenly resolve to give you the extra space to deal with any of the others. But if you keep hanging in there, and maybe find some little gifts to give yourself, a nice black cup of coffee or finding an old tune you’d forgotten, it could get better, right? Good luck! I’m hoping for you.

Hey, check out the local hallways, maybe you’ll find the Health Center’s finest sweeping them. That would be good for at least a few endorphins…

All I can say is…

  1. I’m sorry for the shitty hands you’ve been dealt,

  2. I hope it gets better,

  3. and…damn!

Water, my friend. Drink a liter or more a day and some occasional cranberry juice.

IANAD, but that is what my doc told me when I had my kidney stone. And I’ve not had one since then.

Good luck!

That’s no fun :frowning:

Have any of these doctors given you some advice about how to stop the problems? All of the problems collectively, that is. My mom has diverticulitis and is told “eat a high fiber diet,” not that she ever sticks to that, so it reoccurs. I’m curious if the other problems (though probably not PCOS) you have to might be postitively influenced by a change of diet as well - obviously it would depend on whether doctors thought the stones and diabetes were negatively influenced by food and drink you now consume as well. Completely changing your diet doesn’t sound like a barrel of laughs, but if it would help it can’t be any more miserable than dealing with the health issues. At least I don’t think it could.