My 18yo son, Jake, is physically disabled due to a rare birth defect. He can walk short distances with braces and crutches, but due to his condition this is painful and exhausting. Most of the time, he uses a wheelchair.
During the past 18 years I have become very aware of how difficult it is for disabled people to maneuver in the world. Everywhere I go, I’m acutely aware of every obstacle, whether my son is with me or not.
Not long ago, while we were driving, Jake had to pee. We passed several businesses which we could see, just by glancing at them, were clearly not accessible. We found one gas station that appeared promising. Of course, I was prepared to purchase something there in order to be allowed the use of the restroom: it’s not like I was looking for a free toilet.
I ran inside and asked if they had a handicapped accessible restroom. They said yes. So I got the wheelchair out of the trunk, helped Jake transfer to it, and wheeled him to the door (via the usual convoluted and much longer route).
We headed for the restroom and found the walkway was mostly blocked by a rack of baked goods. We could not get to the handicapped restroom at all. Even a moderately obese person could not have gotten back there.
At that point, there was no option but to surrender. I bought a soda, took Jake back to the car, and helped him back in. I emptied the bottle and gave it to him to use as a urinal. He had to pee in a bottle in a gas station parking lot, in a city where a “regular” person would have no trouble finding a toilet.
This particular instance (along with many others) hurt my heart, but Jake is used to that kind of thing. It didn’t disturb him much: he’s used to the humiliation. That’s what pains me. My child should not have to pee in a bottle because very few places can accommodate his wheelchair.
This is a minor episode in Jake’s life. Compared to what he suffers daily, it’s nothing, but it enrages me.
Jake is considering a career in designing handicapped-accessible spaces. He’s scary-smart, and he could do that. I’m so proud of him.