A question for Dopers in wheelchairs

This may be more of a GQ, but since the answers will be opinion v. fact in nature I’ll post it here.

I’ll often offer to assist people in wheelchairs in opening doors, helping themselves to items on taller shelves, etc… I can honestly say that I do this for people who aren’t in wheelchairs, but sometimes I do receive irritated looks from those who are. When somebody holds a (non automatic) door for you or otherwise assists you without being asked, do you consider it courteous or patronizing? (Assume that you are not being made a spectacle of.) Are there any major pet peeves you have in the way people without disabilities routinely treat you? (A friend of mine who wears leg braces for CP and has an IQ that can melt cheese swears that people literally talk to him as if he’s retarded, but hopefully that isn’t the case with all people who are physically disabled.)

I’m not on wheels all the time, but I do own a scooter that I use for long trips thanks to several factors. That ought to qualify me enough to give you my answers.

I have absolutely no problem with offers of help. I’m really short, and I often can’t reach things in stores. The key is if you ask if somebody wants help and get a no thanks, respect it. (I am not saying you don’t, just in general.) They know their own abilities and limits far better than you do. I was raised to consider it polite to hold open doors for other people, no matter if they’re in a chair or not, so I don’t know why anybody would get offended at that.

One thing that happened a lot when my mom was friends with a blind woman was people asking my mom if her friend wanted something. Blind people are neither deaf nor stupid, and you can safely ask if they want the braille menu. Really.

Here’s a link to a recent discussion on this very topic, to tide you over while the new responses come, er, rolling in. :slight_smile:

I consider things like door holding to be a common courtesy & I don’t mind if people ask me if I need help with physical tasks - again, I think that’s courteous. I would mind if someone saw me pushing my chair along the sidewalk or whatever, said “Gee, you look like you need help!”, & proceeded to push my wheelchair without my okay, but I’ve never had that happen.

I do have pet peeves, but I wouldn’t say they’re brought up daily or weekly. One is when people touch or lean on the handlebars of my chair; it’s an invasion of my space. I’m certainly not thrilled when people tell me that they’re going to pray for me or that they could NEVER live like I live. Um… Other’n that…not too much really ticks me off.

I agree. I don’t mind if people ask if I need help. I would mind if they insisted on helping even after I said “no, thanks,” though.

Again, I agree. I read an article recently on wheelchair ettiquette that pointed out something I hadn’t really thought of before, but agreed with after reading it: you should treat a person’s wheelchair as you would a part of their body. Just like you wouldn’t lean in and touch a strangers arms or shoulders when you talk to them, you shouldn’t grab onto or lean on a person’s wheelchair.

And, when I was in a manual chair, just about nothing offended me more than when someone would inform me I was in the way and just take it upon themselves to move me like I was a piece of furniture. Don’t do that to anyone.

My ex-husband is a quadriplegic who uses a manual wheelchair. It keeps his arm strength up to use it but it has its down-sides too: he can’t push himself over any surface that isn’t smooth - eg grass, thick carpets, dirt, pebbles. And he can’t push himself up practically any kind of gradient. The world not being a flat place but full of slopes, ramps etc, the man can only go out by himself because of the willingness of strangers to help him. If people like you didn’t open doors, reach up for supermarket items, push him over areas he can’t travel over by himself, he would lead a much less independant life. He would need someone else to go shopping for him, and he wouldn’t be able to leave the house without an escort.

Sometimes people offer to help when he doesn’t need it and that never offends him. I say it’s much better to err on the side of being too helpful.

Related funny.

Hijacking my own thread, whatever happened to the Ibot, Dean Kamen’s “don’t call it a wheelchair” invention that climbs stairs and raises the person in it to the height of those around them? Has anybody ever seen anyone using one? (Tens of millions of dollars have been invested in it so I’m curious why it hasn’t taken over more.)

My 17 year old daughter has CP, walks with crutches and, occasionally, uses a wheelchair. She isn’t here right now (she’s at school), but I feel I can speak for her in these matters.

Offering assistance: Please do. It’s perfectly acceptable to hold a door for anyone who looks like they need it – a mom with a stroller, a person with their arms full, etc. Doe can open doors herself, but it’s a bit of a struggle in her chair and even on her crutches, if the door is heavy. She’s always happy for the assistance. Likewise with an offer to get an item off a tall shelf. Doe is very short (4’9") and also has some range of motion problems that make it difficult for her to reach up, even when she’s on crutches. In the 'chair it’s even harder. If you offer to help her reach something it saves her a trip to find a store clerk, which is much appreciated. We consider these kinds of assisting to be simple politeness – as you say, these are things you might help an ablebodied person with also. Slightly different are situations in which you have to touch a person’s 'chair or crutch to help them. As has been said, a wheelchair or crutch should be considered part of the body when it comes to touching. So, for instance, if you noticed my daughter struggling to move her chair out of a tight space, you should ask her if she would like some help and, if she says she would, specifically ask if you may move her chair – being careful to let her know just before you actually move it, so she can get her hands free. Or, if her crutches are out of her reach, don’t just hand them to her, ASK if she would like you to get them. And, of course, take no for an answer. If it were Doe, she’d be happy for the help, but some people just prefer to do things themselves.

Major pet peeves: Doe hates being spoken to as if she were a child. This is partly because she is so small, I suppose, but also it’s the crutches/ wheelchair. Some people do assume she is retarded because she can’t walk. Worse are people who don’t speak to her at all, but instead address her through me (or her brother or Dad or friend). She also really hates to be patronized – she has actually had people (strangers!) say things like, “You’re my hero!” or “I’m praying for you!” She hates that. Also, she hates the occasional pitying look or overheard pitiful comment – that “Poor soul!” really gets on her nerves. And she hates it when people freak out if she falls. Falling occasionally is common when you use crutches. In fact, part of learning to use crutches is learning to fall. But people just come unglued when she falls. If you see someone on crutches fall, do watch to be sure they’re OK, but don’t have a conniption or make a big fuss. Don’t just grab them, unasked, and yank them upright (Doe has had people do this!). Ask if they need help, and if they do, ask how you can help. When Doe falls, she usually wants to stand up again by herself, but appreciates any help gathering dropped items. Sometimes, if the floor was slippery, she might need help standing and want your arm getting past the slick place. She’ll know what kind of help she needs, so just ask her if you can help, then follow her instructions.

Finally, please don’t let those rude people – and disabled people can be rude, just the same as ablebodied people – make you second guess yourself. A person who responds to a polite, well-meant offer of assistance with irritation is being rude. Period.

When my family went to Disney World, my wife was suffering with an extremely arthritic knee and using a cane. We decided it would be easier for all concerned if we got her a wheelchair.

You would think a place like Disney World would pretty much know how to deal with physically challenged visitors. But every single employee insisted on talking only to me.

“Can she manage getting out of the chair onto the ride?”

Mrs. Kunilou: “I’m not deaf, and yes, I can get on the ride.”

It was so bad that for the rest of the trip she insisted on walking everywhere (and icing her knee every night) so that she wouldn’t be patronized.

So be polite, and be sure to speak directly to the person.

Once after my mom had knee surgery she had to use a wheelchair for awhile. I came THIS close to completely going off of a theater employee who referred to her as “the wheelchair.”

Don’t do that, 'kay?

When I got my B.A. the person in front of me (I didn’t know them- they just happened to have the name alphabetically before mine) wore leg braces and walked with a very pronounced limp. Since he was graduating from college he clearly was of at least normal intelligence and it was impossible to tell what his condition was other than that his legs were misshapen (CP, accident, whatever).

Anyway, when his name was called and he walked up the steps to the dais (very slowly but without assistance) and received his degree, the entire audience broke into loud applause and hoops and hollers. I know they meant well, but I remember thinking how absolutely mortifying that must have been for him (it’s not like he was born without a frontal lobe- he just happens to be mobility impaired).

Oh, but don’t you know, everything disabled people accomplish is just so…wonderful? And how inspirational we are just by being at the grocery store, let alone graduating from college? Look, if you actually know somebody and admire their accomplishments that’s one thing, but personally I cringe whenever people are described as “heroic” or “inspirational” for going out and – surprise! – living their lives. You’d be surprised how you could adapt, given half a chance, if you suddenly ended up in a wheelchair or something. Other people tend to be my biggest problem, not my physical issues. And those of us who were never in the majority to begin with just do things our own way when we have to.

I probably sound really peeved, but that attitude (however well-meant) annoys the hell out of me. I was once told how impressed somebody was that I was in college. You see, he was a DOCTOR, so he KNEW…even though he’d never seen me before in his life, and all he knew was that I was sitting around in the Fine Arts building one day talking with friends and he walked in and saw me. He really did mean well, but I have to stop thinking about it, or I’ll just get pissed. And that was several years ago!

This is all IMO only, of course.

I frigging hate that! I didn’t list that as one of my pet peeves because I never get it from anyone who’s not an employee of someplace where I need to be seated, but it’s happened to me & it really ticks me off.

Fascinating related thread: Cosmopolitan’s own
To Follow a Trend… Ask the Chick in the Wheelchair! from a couple years ago. I learned a buttload of stuff from that thread.

I used to get that a lot: “I couldn’t be as strong/brave/whatever as you.” “I couldn’t cope.” Etc. ad nauseum. People just don’t understand that you gotta do what you gotta do. And I think they don’t realize that anything, damn near anything can happen to them to put them in this exact spot, from a car accident to a stroke to a genetic timebomb like Lou Gherig’s disease just waiting to go off. They just don’t get that, if they had to, they probably could. Cope, I mean. Continue, carry on, and so on. Stop me before I start quoting schmaltzy movies!

To be honest, I never minded some of that stuff. It did kind of feed my ego. When I worked, it was a lot more physically demanding for me than a “regular” person, and I went home at night wiped out, with aching back and shoulders, and I’d sleep on the car ride home, I was so tired. My whole body is so weak, it’s hard work to keep up with other people, and I appreciated it when people acknowledged the effort. Anyway, though, people shouldn’t assume those kind of comments are welcome or appropriate, but they just don’t think.

Holding doors is common courtesy. I will hold doors open for people if I open them and I see someone coming. People also seem to feel obligated at times to hold the door open if they see me coming. This is kind of awkward, so speed up so they aren’t standing holding a door for me, I do appreciate it though. People offer to push me, which I don’t really need, and prefer to get the exercise on my own; however, I will say thank you, and ask that they offer again when there is snow on the ground.

When it snows I can manage, but it can be really difficult. I’m hesitant to ask people for help, because I don’t want people to feel obligated, or if someone is really in a hurry or unable to push me, I don’t want them to feel bad. It’s kind of a problem though, because I think more people would offer, but they don’t know if/how they should ask. If you think someone is having trouble, then you should absolutely offer help. If they don’t need it, they will tell you. If they are rude, don’t be discouraged, because at some point someone will need your help and they will be grateful that you offered to help.

I would say that something that irritates me is when people walk slowly in front of me. After I wound up in the wheelchair, I came to the conclusion that if everyone had to use a wheelchair, people would be much more aware of their surroundings. There are times when three or four people will be taking up an entire sidewalk, completely oblivious. I can’t always slip by on the side, so I usually have to resort to an “excuse me.” When this happens another irritating thing is to have people practically dive out of the way like there’s an oncoming train (I don’t move that fast), just step aside and let me pass.

Remember: opening doors, or offering any type of help is always welcome.

I showed Doe this thread and asked her if she had anything to add. She did add a pet peeve – she hates it when people use her as a ‘teaching moment.’ Often a child will ask its mother why she “walks with those” and the mother will reply with some variation of “she needs them to walk.” That’s fine, of course. Or sometimes the kid will ask Doe directly and that’s fine too – Doe understands that kids are curious, they ask questions and their questions should be answered. What peeves her is when the parent (and it’s always a mother) points her out to their kid like she’s a museum exhibit or a monkey in a zoo. Here’s an example from last week –

Silly mom: “Look honey! There’s a little girl who’s just like you!”
Kid: “Uh. (pointing at the crutches) What about those?”
Silly mom: “Those are to help her walk! But she’s just like you, right?”

Yeah, right. As Doe said, she was in Walmart to buy a notebook, not to teach Betty Lou about life!

That reminds me of a question I was going to ask earlier. What do you guys think I should say when I approach you on the street and my small child says, “WHAT’S WRONG WITH THAT PERSON’S LEGS? HE LOOKS FUNNY!” or somesuch. I’m sure you don’t mind the kid if he is young enough, but what do I do as a parent? Especially if I don’t know the particular one of many reasons why this stranger is in a wheelchair.

I must admit I usually get flustered and mutter “not NOW Ben, I’ll tell you later”, which would probably be bloody annoying to the person in the chair I’d guess, so if I’m in earshot, it tends to be “his legs don’t work properly, so he needs the chair to go places”.

Am I screwing up here? Should I not be giving too much of a crap if my son points and stares (he’s a bit old for that now, but he used to - amputees especially seem of never ending interest to children).

A clarification: offering help is a good diea, but not warning the recipient that you are about to provide "help"can make it not helpful at all.

I spent large chunks of 3 years without the use of my left leg after an accident. I used a wheelchair at work and at home for the convenience/safety factor, and crutches to get from place to place.

I got really, really good at doing things for myself either on crutches or standing on one leg. I could even wedge open heavy doors for myself with one crutch, and then squeeze myself through. I can’t tell you how many times some well-meaning individual would come up behind me and prop open the door I had already braced with a crutch, with no warning to me, causing me to fall on my face. When you have rods going through your leg like a shish kebab, this is no fun - trust me. Not to mention very dangerous.