My husband and I have decided (after nearly ten years) to try to have a child. The wrinkle (and a large part of the reason it took us ten years to get to this point) is that he has a rare degenerative bone disease, the gene for which is carried on his X-chromosome. In order to minimize the chances of passing on his disease (it’s a dominant trait), we need to take advantage of pre-implantation genetic screening (PGS): my understanding is that they can look at the embryos at 3 or 4 days and select only those that do not carry the gene (in this case, the boys).
I’m finding it very difficult to get good information. Although our issue is not (AFAIK) infertility, we need to go through a fertility clinic, as they are the ones that do the procedures. There are several clinics in my area (Dallas/Ft Worth) that offer PGS/IVF, but I don’t know how to evaluate them: I can find “success” data, but I don’t know what it means–it seems likely to me that that data could be massaged in various ways, but I don’t know how.
In a perfect world, I’d get pregnant next October. I think this means I need to start seeing doctors early this spring, though even that is an educated guess on my part. I suppose my questions are:
- What is a normal time line?
- What sorts of questions should I ask the doctor? What answers do I want to hear? What red flags should I look out for?
- Does anyone have any specific information about doctors in my area (DFW)? I can read all their websites, but that doesn’t really tell you much. Are there websites where people review fertility clinics?
My instinct is to pick the three clinics with the best data/highest number of procedures and schedule new patient appointments with each. But I am sure there are things I am not even thinking about. This is really a new world for me.
Any advice or anecdotes are much appreciated.