No cancellations yet for the neurologist. The appointment is still in February. No real pain to speak of.
I often have an awareness in my mouth almost like the teeth feel tight, but nothing else. Once or twice I thought the pain might be coming back. It has not. I have yet to take a single prescribed pain killer. Business as usual.
So it looks like Trigeminal Neuralgia after all. The neurologist says he is almost certain. On the positive side I have had no major pain since November. Maybe there will be no more attacks. I revisit this medical complex in a couple of months and depending on whether the pain comes back will determine the path forward.
I hate these doctor’s offices. I hate the paperwork, the insurance cards, the waiting while I see other people suffering much worse than me. I hate that access to health care depends on whether you have money to pay the bills.
Hi Biotop I am sorry to learn of your TN diagnosis. I hope you are finding good treatment resources and care that works well. If not, I may have a suggestion that works. I had something similar to TN, and if the root cause of your TN is the same root cause as for what I had (and this root cause is a common one for TN), and also if you are not finding care good enough for your needs, please PM me. I may be able to help.
I have been symptom-free since 2012 after suffering for 8+ years. I hope I can help, and I wish you well.
Thanks. I have been lucky so far. The one episode I had back in November was awful, but since then it is just the occasional minor mouth/jaw pain. It’s weird that the pain can be on one side, and then on the other the next time. I see my neurologist in a couple of weeks. Mostly I have just been trying to forget the bad incident and just hope for the best.