I was just diagnosed with this yesterday.
It’s a somewhat rare (1 in 5,000 to 1 in 10,000) genetic disease that affects collagen production in the body. For me this means lots of joint pain & subluxations, but that’s just one of the forms it takes.
If you’ve never heard of it and are curious to find out more, http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html
is a good place to start.
Anyway, I was wondering if anyone else on this board has it. I’m trying to figure out how it’s going to impact my life. There’s not a ton of info on living with EDS, so it would be helpful to talk to someone who’s dealing with it.
It looks like I have either the Classic or Hypermobility type. From what I’ve read, if you have EDS, those are the better types to have.