How boring a thread title is that? haha.
Ok, so I’m a mess. I have been in chronic pain for about seven years, all abdominal, female-related stuff. They thought I had endometriosis, so I had laparoscopy #1, which turned up nothing.
Since then, I’ve been on about five different birth control pills, had my right ovary removed, and had four other laparoscopies for different reasons.
My current gyno discovered something in the photos from one of my laps, and it’s something called Pelvic Venous Congestion, a.k.a. varicose veins in the pelvis. Fan-freaking-tastic. But hey, I thought, if they can pinpoint what I have, maybe they can fix it.
So I went and had this procedure done where they go through your jugular or maybe it’s the carotid artery, I dunno, and they run a scope down to your pelvis to check out your veins. If they are indeed full of blood in an unnatural way, they put these little discs in there and the vein is supposed to become blocked and your pain is supposed to go away. Mine were bad, and they tried to fix 'em.
Well, it didn’t work. I had some degree of relief for a few months, but it came back.
Still, we all thought, endometriosis was my main problem. I went to another doctor and she was convinced that I need a hysterectomy. I booked the appointment. I was desperate. Fortunately, I went and had a talk with my regular doc and he convinced me that a hysterectomy would be premature at this point.
He convinced me to go on Lupron hormone therapy, which seemed a pretty nice option compared to major surgery. After the first month or so I had relief. I had a good two months where no pain plagued my life. It was dreamy. BUT, then one day IT returned. The Pain.
So, about a month ago, I went in for another laparoscopy, and all he found was veins the size of “earthworms,” which, evidently, is not normal.
He sent me to a vein doctor who told me I should either get the embolyzation redone (but he has his doubts because it didn’t work the first time) or I should go ahead and get the hysterectomy because that should give me some relief. Still, he’s not quite sure and directs me back to my gyno for discussion.
So, now I wait for a call back. And probably another appointment. And probably another surgery. And probably more Pain.
I’m depressed and angry, and I hurt all the time. I’m aggravated because no one can fix me, and that’s what I need. I need someone to fix me.
That’s all for now. I know there are some of you who have much worse problems, but this one’s mine, and to me it’s pretty relevant and sucky.
Thanks for listening, please feel free to add your own medical frustrations. But, I don’t need a bunch of sympathy or anything. I already feel sorry enough for myself, I don’t need y’all to do it for me. 