Yes Rose is who I was talking about. The LONG night when I decided to go find an operation to save my life she is who I found. She is who made me see I could live At the time I did not know I would have to have more than hips and legs removed. But my point is she is who got me headed in the direction to save my life. Thanks for her facebook, I think I will drop her a line to let her know the impact she made in this stranger’s life.
Angel
Thank you for the great tips. I will look into them. I saw MANY I liked on the Venus site. I was in heaven just looking at them. Even saw a fake leather one and I love leather,. But the price tags are to high for me. Only making 697.00 a month has made me have to put many things that i feel will help me emotionally on the back burner. I am thinking I can use the pictures from Venus site to show others the type of things and then find someone who can make them if I get materials. Even if I have to get like one every other month. It will be worth it.
I found a shirt in closet yesterday.. well my partner did. I can’t get to my closet.(another long rant I might yet into one day). Anyways I tried it to see if would still fit and look good and it did. As odd as this may sound I was going to the doctor and so many people told me how nice I looked it helped me a lot.
So I was rambling. smiles.
again thanks for sites and ideas I will work on them.
Angel
By Darkness Comes Light
In The Darkness she finds herself whole,
In The Darkness she can see all
In The Darkness to her is the brightest light
By Day she finds only fragments of what use to be
By Day she only can see what others see
By Day she can’t truly be free
In The Darkness stirs all those things she use to feel,
In The Darkness she longs for the touch of old
In The Darkness she remembers the feeling
By Day she is numb to herself and feelings of olde
By Day her desire hides out of fear
By Day she tries to forget what is left to feel
In The Darkness she is happy and dreaming
In The Darkness she is able to be weak yet stronger
In The Darkness she is able to pretend and believe
By Day she puts on a face of brave
By Day she shows strength though she is weak.
By Day she pretends to believe
For one like her she awaits the night
For one like her she tries to make the night never end
For one like her she can only truly see in the darkness of the night.
By Day she closes her eyes and silently prays,
"Oh Powers Greater than thee
Bring on the night , I pray
So that I may see"
Angel, did you get my PM the other day? I suggested this type of dress! It’s pretty easy to make if you have the right measurements. I’m willing to help, and I wonder if we can start a thread in Cafe Society…others here are better at sewing than I am, I’m sure.
Yes I got your post. I had posted here about it. maybe it got mixed in all my rambling. I loved the site you sent me. I been in heaven looking at the tops and some of the short dresses.
Yes any help would be great and appreciated. Thank you.
I do need some sleeve, as my breast operation did not go as we hoped and I have like extra breast tissue under my arms so no sleeves makes me uneasy. But the breast themself turned out nice.Smiles. I have been told I can go have the other part fixed but since age 11 I have had 55 operation and not sure I want another one.
Thanks again for all searching I know you must have done to find the site. I hjave it open in browser still and keep looking at them. smiles.
Angel
I will get some measurements. Will be two sets as one is when in bucket and one is when not in bucket. I also want to find something that can help me get my belly to not just flop . With no spine when I set everything just goes round. I was teasing my partner yesterday about i should talk all pictures laying down where i have a shape. LOL. I have found it hard to find a body shaper that don’t fasten between legs.
You have a really lovely voice - where’s that accent from? If you can, maybe you should do podcasts of your blog posts.
It might sound crass, but how did you cope with having to have breast reduction surgery in with all this? I mean, I know it was essential, but it’s still more of you and it’s a particularly, heh, sensitive part of you.
You link to the Wikipedia article. Would you be willing to be photographed and donate a picture to the article? It may prove helpful for others who may need to undergo this procedure.
I am not sure how to do that. I don’t mind doing it just did not know I could.
Any information would be nice.
I do have my blog/website link on Wiki.
On a side note I wanted to let everyone know what has been going on.
I had to have hyperbaric treatments so every day I was gone like 4 hours. Not much time for posting.
I go to a wound Dr next week and find out if I have to do more of the treatments for my wound (left over from the operation) or if I will be having it closed with an operation. I will keep more in touch as I can.
Angel
Nice to hear from you again. Your strength is inspirational.
Just wish to echo the “nice to hear from you again” and wish you well.
I swear I’ve seen you on television before. Were you by any chance on Extreme Makeover: Home Edition? If that’s you, man that episode just floored me. You seem like a wonderful person.
Hi Angel, you are amazing and I love your poem!
What a great post and video, wow. When looking for prosthetics I found this picture. Is that what you’re looking into, Angel?
All pictures put on Wikipedia articles have to be freely distributable - that is, the photographer has to either donate it to the public domain, or assign a copyright claim that will allow anyone else to copy it for free. Anyone can edit nearly any Wikipedia article, and when you do so an editor menu pops up that allows you to add an image.
If you can edit any other Wiki, you already know how to edit Wikipedia. The hard part is learning the politics of the place.
Please accept my belated welcome to the boards. Stick around! You’re a strong, wonderful person, and it would be a blessing to have you as a doper.
Angel:
This site has educated me for over 10 years now, and you are no exception.
Thank you so much for sharing your story!
UT
Like many others, I say: thank you for sharing your story.
I hope you stay around this site, and keep contributing here. You have shown that there is much more than physical limitations to a person. Keep shining brightly.
Hi, sorry so long to reply.
No I was not on the makeover show. God knows I wish I was. Part of what I hate right now is having to depend on other people so much due to the apartment we live in. I can’t beat the price but it is so small and with all the medical stuff I have to have I don’t seem to have much room for fun stuff. I rent so make over show don’t do rental homes. Even getting in and out of the apartment is hard.
I hope one day to find a house I can afford and maybe have a make over. I dream sometimes of the house. A nice 3 bedroom house with a fence and tree in the front yard. with a place for a garden in the back. I can get to every room in the house and every closet, I can go in and out by myself and set under that tree or work in my garden. or play with my puppy/dog(which is another dream I want a puppy or small dog so bad.) At least I have something to dream for. I know in life all takes time and dreams do come true.
Anyways so I got carried away thinking of the house.
I have been on the news but that is only tv since operation.
Oh by the way guys, I moved my site so I have two sites now. Hemicorporectomy-Angel.org and Hemicorporectomy.org
In 3 days it will be 2 years since my operation.
I can’t wait to call the lead doctor to say happy anniversary.
Hugs to all.
Angel
Glad to see you’re still around and still coping. I wish all the best for you.
Oh, hey, thanks for coming back and updating us with your links. Your future puppy has likely not been born yet, but your house is out there … somewhere.