Is there any list of reputable docs that will do a hysterectomy just because I have had my tubes tied, have no desire [and at 46 it would not be a good idea genetically] to ever reproduce and is seriously tired of bleeding out and going into labor any time she is not totally supressed by the pill?
I am on seasonale, but if I miss a day I have to skip the week and start again after finishing birthing huge clots for a week. I am serious. I use a diva cup as it is always here and I dont have to remember to get supplies when I am not bleeding out. It looks like I am slaughtering hogs or something, I fill the damned #2 1 oz cup in about an hour. The frelling navy GYN says that because I have PCOS it is ‘normal’ as abnormal goes and they wont do a damn thing.
I know I only have 10-15 years of this crap left, but I just want to lose the damned uterus. You can leave my cystridden ovaries in place to generate whatever hormone cocktail they pump out, but I am tired of the bleeding and cramps.
Thank Ghu we have wooden floors, when I got up every hour or so all night I didnt realize I left a CSI-worthy blood trail to the john. And why in hell when they spray down a womans bathroom it doesnt light up with all the damn blood spatters that seem to be universal?
Never had a baby, badly retroverted uterus, and it still works like a charm. Haven’t had a period since March (I had it inserted in February)- and even that was just 2 days of light spotting with no cramps (and I used to need serious painkillage for 7days).
Admittedly I had the full gynae work up- laparoscopy, D&C and Mirena insertion- all at once, so I can’t comment on how painful the standard insertion in a doctor’s office might be, but all my pain was from the laparoscopy incisions, and that was minor compared to my usual period pain.
I have had absolutely no side effects whatsoever. No mood issues, no bloating, no back pain, no weight gain, no acne…nada.
It is licensed (here anyway) not only as a contraceptive, but as a treatment for heavy periods…it costs about the same as 3 years supply of ordinary contraceptive pills, and since it lasts for 5 years, it’s a bargain.
If you haven’t looked into it already, I highly recommend you do. It’s not as drastic as a hysterectomy, and if it doesn’t suit, you can just have it removed and go for the surgery.
So what is the difference from the BC in mirena and taking seasonale? I dont want ANY more frelling bleeding, not even a little spotting or maybe a heavy flow for the first 6 months [or possibly longer] and it may not stop my period at all until the second 5 year insertion.
If I am on standard pill, I bleed out once a month and go into labor. On seasonale I bleed out once every 6 months [unless something happens and I miss a day, which has happened for the second time in 2 years] I bleed out and go into labor.
I just want it to fucking STOP :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad: :mad:
If they yank out the uterus, it fucking stops. That is all I want., No more bleeding out and no more labor AT ALL.
The specific answer to your first question about ‘reputable docs’ is a bit long and tricky but generally the best approach is personal referrals to get names followed by background checks for Board Certification by a real Board (Am Bd of OB and Gyn, e.g.) followed by some web research if you are paranoid. And make sure the Hospital where anything will be done is topnotch; in general a good Hosp screens for good docs and vice versa.
As to your DUB (Dysfunctional Uterine Bleeding): If hormonal manipulation is unsatisfactory, the options are hysterectomy or endometrial ablation, on average. A good Gyne will help you make the right decision and do either.
If men had the babies, I think we’d all have one kid, removed abdominally en bloc with the uterus.
I literally feel like someone reached up my cunt, grabbed a handfull of innards and twisted while pulling a large handfull of my guts out, leaving me bleeding out about 1 oz every hour or hour 15 minutes… I wear a diva cup so i can measure. The navy tells me for womeone with PCOS this can be normal all men especially male GYNs are pigs and need to be keelhauled until they understand pain.]
It is difficult, aruvqan. My SIL has just been diagnosed with uterine cancer and her insurance will pay for her uterus to be operated on, and possibly removed, but not for the entire hysterectomy (ovaries etc.). She has a lot of the same problems you do; including week long periods and amazingly heavy bleeding and clots.
If you are willing to pay for it yourself, I recommend Chief Pedant’s idea.
I agree about what would happen if men could have sprogs … I have had PCOS since puberty hit. They thought at first it was endometriosis because of the overall pain, they didnt believe someone who never had been pregnant would have cramps that intense [jerkwad male docs and their unopen minds of teh mid 70s]
I had asked if I could just have the partial, leaving the ovaries for hormone production, but was told that no doc would do it in a 22year old which is absolutely dumb, as I did get my tubes tied. I had a 2 for 2 history of disasterous health results from pregnancy, both times almost resulting in my death which is the only reason the doc would tie my tubes as I pointed out it was seriously fucked up for me to have to be on the pill for the next 35-40 years to prevent myself from dying. The PCOS is bad enough that when he went in to tie the tubes he removed 6 cysts and vacuumed out what he called 17 mL of a straw colored liquid [he sent it off to the lab but he never mentioned it again so I figured that it was somehow related to the cysts].
Hormonal control puts me back at the stuck with meds for 10 years part. My periods got easier when I got fat, but about 2 years ago I lost 10 lbs during a bout of pneumonia and the issues came back so I went on seasonale. It is marvelous, just on that time of quarter [heh] it is same old crap. I missed a day [got stuck at work and ended up spending the night in a hotel so I could get a couple of hours of sleep and I keep my metformin and glucometer with me, but didnt have any seasonale with me…] and it came back with a vengence.
I have come to the point i just want it to fucking stop. No more pills, no more diva cup, nada. Since I am about to have my parathyroids yanked, I will be on meds to control my calcium so the osteoporosis is moot, so as far as i am concerned they could take the whole schmeer out but I would be satisfied with yanking the uterous.
The webpage I found on hysterectomies pointed out that with someone who is traditionally as heavy flow as I am the ablation tends to ‘wear off’ after a year or so. sigh
maaybe if I go bleed all over someones desk for about 2 or 3 oz they will listen to me. How much damn lining does the average bleeder have and how come I have so fucking much?
The difference with Mirena is that it doesn’t contain oestrogen, and causes less endometrial growth.
I’ve been on the pill, and still had heavy, long, painful periods in the weeks off and dodgy hormonal side effects. Mirena is about as near to a miracle as I can get.
Some studies show similar results with Mirena and endometrial ablation. One study showed Mirena was less efective (79% reduction versus 89% reduction).
The reduction in blood loss with Mirena is 74-96% on average with a significant proportion of women having no bleeding at all. One study showed that among 20 women the average blood loss went from 175ml per cycle to 5ml per cycle. Anything over 80mls is considered heavy, and 5mls is a teaspoonful.
Some studies: This one compares various medical treatments for menorraghia with Mirena. This one compared Mirena and hysterectomy on the basis of quality of life and psychological wellbeing and found no difference at 12 months.
Anyway, just offering some info.
Hope you’re taking mefenamic acid or tranexamic acid if you are able to, as they provide both pain relief and some reduction in blood los. Neither were an option for me because they set off my asthma, but there is good evidence that they help.
I am currently dealing with my parathyroids, which seem to have started hating me recently [well, I don’t know how recently because the diagnosis seems to have been a blood test for gout, which showed my vit D at 9, it has continuing to fall so it is now 4. It is supposed to be 40+ … and my calcium which is supposed to be 4-6 is now 11.9.] so I am avoiding anything I can so I dont mask anything or trigger anything that will make my hypercalcemia worse. It is now a fine juggling act keeping my diabetic nutritionist and my endo happy. My nutritionist seems to want to keep me on 3 servings of dairy a day, my endo wants me to cut out any extra calcium and vit D as my calcium equilibrium is seriously frelled up. We did have my calcium down to 7, but the 50K unit vit D made it peak at 11.9 in 9 days [between bloodtests] so you can see how reactive the issue is… Only thing I take besides the seasonale, metformin and actonel is co-q 10 for migraines.
My seasonale is levanorgestrel/ethinyl estradiol .15 mg/.03mg per.
I feel like I am turning into that roman who ended every speech with the desire to stomp carthage into the dust…
Just yank the fucking uterus out and make me happy NOW, doc.
which is absolutely dumb, as I did get my tubes tied. I had a 2 for 2 history of disasterous health results from pregnancy, both times almost resulting in my death which is the only reason the doc would tie my tubes as I pointed out it was seriously fucked up for me to have to be on the pill for the next 35-40 years to prevent myself from dying. The PCOS is bad enough that when he went in to tie the tubes he removed 6 cysts and vacuumed out what he called 17 mL of a straw colored liquid [he sent it off to the lab but he never mentioned it again so I figured that it was somehow related to the cysts].