I'm a medical oddity, that's just fuckin great

Yup, I was in pulling roots, and not even knowing they were PI (early spring, leaves weren’t unfurled yet.) And then, the flies bit me where I had been rubbing my neck - I figured they drove the PI into my skin.

I think I’ll avoid that situation now, though…

Less than one in a million??? You definitely win.

Just an update: yeah, it seems he has something similar to that, with a long medical name that I can’t recall right now. There’s a medication that might help. Your link was helpful to me and I thank you. It always helps me to have some idea of what to expect to hear from the doctors.

I concede.

Why, thank you!

I’m the “Hey, guys, come down to exam room 5 and look at this!” patient. That’s never happened exactly but at the majority of my ortho visits in my life there’s been a small crowd.

Isn’t it fun having to explain what you’ve got when the doctor is saying, “I think I heard of that back in medical school. Maybe.”

Not just her ortho visits, either. whiterabbit’s mother here. When she was a kid and we’d go to the pediatric clinic at the military hospital, every resident in the place would come in to poke and prod her. I spent untold hours educating them on the fine points of her rare form of dwarfism.

And even when we went to the specialist at Johns Hopkins a few years ago, he got all excited and dug out a geneticist and they spent a couple of hours going over her medical history in excruciating detail.

To this point, I think she’s seen exactly three doctors in her entire life who have ever actually seen another real live SMD-K person before.

And by the way, as far as we can determine, it’s a random mutation; there’s usually no family history for this one.

Wow… are you a lizard? Just kidding, but damn that does sound odd.