I'm about to have an orchiectomy. What to expect? [Now out of chemo]

Wow, good thing you got that second opinion! Best wishes.

Yes, it is, but I had some vague memory of a character named something like Iron Balls McGinty. It was an homage.

From The Jerk. Well-remembered.

When I last posted, everything was going good, I was just waiting to finish up chemo and get on with stuff. Well, it didn’t quite work out that way.

First I had a blood clot, in my neck. I spent all weekend feeling completely run-down, but I just passed it off to the chemo. Then, on Monday morning, my entire right arm was swollen. I went to the ER, spent two days in the hospital, missed my next to last chemo treatment, and spent the next 8 weeks on blood thinners.

I resechduled my chemo for the following Thursday, and my axle broke on the way to the clinic.

Chemo finally finished, I had my follow-up at the end of December. Tumor markers are all normal, but I still have tumors showing in my lymph nodes in my abdomen. I had two kinds of tumor, and this is the kind that does not respond to therapy.

So, surgery it is! Or, was, actually. THey went in last Friday and pulled out the effected tissues, plus some extra to make sure.

Hopefully THIS will be it.

I wish you all the luck in the world. It seems that you are due for some
It’s now nine years ago I had my round with (colon) cancer. I got a blood clot too. Afterwards the oncologist told me that it was a common side effect of the chemo and about a third of the patients got one somewhere. I still think they could have told me before, so I had been prepared.

Oh jeez Wolf333, isn’t it about time for the Universe to stop fucking with you? I sure hope so. Fingers crossed.

Christ, man. I’m so sorry to hear about EVERYTHING you’ve been through at this point. Unbelievable. Here’s hoping you are over the many, many hurdles at last.

Thank you for updating us.

Oh, he’s had plenty of luck but it’s all been bad.

“I’d like an order of the good luck, please.”

Wolf333, just checking in on your thread. Please let us know how you’re doing. Fingers (and everything else) crossed that the news will be good from now on.

My ex-husband just went through this. The surgery is not so bad; he was home after two days and up and walking in another two.

Two months later, a scan showed spreading and now he has to have 10 doses of radiation.

Testicle cancer is on the rise; rumors that it has to do with men having phones 24/7 in their pocket next to their testicles, or a laptop on their laps for the other hours of the day.. those rumors are as yet unproven.

Still, I got all the men in my life to start wearing man-purses for their maybe-radiating electronics. Looks better then those overstuffed pockets, anyway, and less chance of breaking phones. man purse sling bag - Google Search

If you have to have a form of cancer, testicular cancer is one of the better ones to have. The five year survival rate is way over 96 %.

Can’t believe I forgot this…

I went into anaphylaxis in recovery. I would rate the hospital staff a 0/5 stars for this incident, as I had to use BOTH of my own EpiPens and flag down a maintenance guy to get me a nurse. I used the call button, even used the words “shock” and “emergency”.

For reference; I have never had to use both EpiPens because the ambulance has arrived with 15 minutes.

You are right. All the good luck in the world.

Aw, geez. :frowning: I’m guessing you don’t have a friend/family member/advocate at the hospital with you? Honest to God, it’s not safe to be in the hospital by yourself. If you were in South Texas, I’d come and be your bedside advocate. :mad:

I know I saved my husband’s life a couple of times during his many hospitalizations because I caught something or tracked down a doctor. One time (before cell phones) I went to a pay phone and called my H’s PCP and he rushed to the hospital and put my H in the ICU immediately.

Absolutely right, ThelmaLou.

And it’s not all the fault of the hospital staff either. Last time my DH was in the hospital, one of his nurses was slow to respond to the bell, and when I questioned her it turned out she had five patients on the floor. One was DH at one end of the hall, and another one was at the other end of the (LONG) hall. I asked her why in the world and she said she was assigned patients in the order they arrived on the floor, so she almost never had patients close to each other. Who thinks this is a good idea??

OP, I too would offer to advocate for you in the hospital but I’m also in Texas. If you put a location in your profile you might get a volunteer Doper nearby. Really, it isn’t safe to be all alone in a hospital!

Best of [good] luck to you in your recovery, Wolf333.

Nursing administration, I guess. Don’t get me started. :smack:

Wolf333, thanks for the update.

I wish you all the best …
And you are absolutely right about the port! Infusion day, pop the anti emeti [zofran was my bestie, I would marry zofran if it was a person!] and blop on the emla and cover with plastic wrap and tape to kill the pain of getting a needle rammed into your chest … but it was amazing not having to get an IV shoved into my elbow weekly! ]
What possible side effects might you end up with? I got the cold uber-sensitivity thing, and hand and foot neuropathy [it oddly feels like I have sand between my toes, or sandpaper. I find toe socks are wonderful, they nestle each toe in its own little soft cotton coocoon, so they don’t rub against each other.] the nausea [worst smell - italian sausage, peppers and onions being cooked together. Instant ninja-vomit attack! And beef ended up tasting like the old european raised beef that had been fed fish meal, nothing like fish flavored beef =(

Well, I’ve been out of chemo since November, so all of those side effects are gone.

While I did experience some nausea, I never really lost my appetite (although the taste of some foods did change). The worst thing for me was the reflux and hiccups, followed by the shortness of breath.

Interestingly, I have little to no appetite now. It’s been two weeks since my surgery, and I honestly can’t think of a single thing that I WANT to eat. Even when I do eat, it’s usually a few nibbles and then force down a couple more bites. I’ve basically been surviving on various meal replacements (Huel, Kachava, Soylent). I do get hungry, but I lose interest after a couple of bites. I’ve lost 16Lbs in two weeks, compared with 8Lbs in nine weeks of chemo.

I’m back at work Monday afternoon, after getting my staples removed. Hopefully, things will begin getting back to normal.

Ditto that! Thanks for the update. All good wishes! :slight_smile:

Eating is tricky, definitely. Oddly enough, other than my medsludge, the food that saved me was one particular store’s potato and egg salad, the entire little square container is something like 620 calories, and I could sort of nibble out of it all day as I felt up to it. I have my taste back, no more plastic utensiles =)