I’m a home nurse, in the Chicago area. I don’t do hospice (haven’t got the training for it), but I do have to help people transition into hospice. Here’s what you do:
Call your dad’s doctor. Tell them, “We think it’s time for home hospice”. 99% of the time, that’s it.* They know that by the time the family thinks it’s time, it was time 2 weeks ago. They will contact 1 or 2 (if you’d like more to choose from, they’ll send more) home hospice agencies they like to work with and a nurse and/or medical social worker will come to your folks home within 24 hours and walk you through the rest.
They will do an evaluation, verify that he’s eligible for home hospice in terms of care needed, prognosis**, family and patient desires*** and safety. They will schedule nurses and assistants to come out and help. They will order hospital beds and undergarments and pain medication and everything else you need.
The hospice nurse, working with the doctor, will probably make some changes to the medications your dad is on. When they get into hospice, we often stop things like blood pressure meds, because the side effects just aren’t worth the benefits anymore. They will probably add pain medication, or switch to more effective but higher risk/more side effects pain medication, if he’s in pain. Vicodin is often dropped in favor of morphine, for example.
*Once in a while, you’ll run into a doctor who resists, and may want to schedule an office visit and/or delay hospice placement. If that happens, PM me and I’ll get you the contact information of a more cooperative physician - one who will come to the home for you, even.
**To be eligible for home hospice, the MD has to be of the medical opinion that your Dad probably has 6 months or less to live. HOWEVER: people move in and out of hospice all the time. The doctor can be wrong, and the world doesn’t end. And given what you’ve said about his current condition, I don’t think it’s something to worry about.
***Contrary to what many people think, your dad does not have to have a DNR to be placed in hospice. He and/or your mom (depending on the legal situation and his ability to make decisions for himself) will be asked about Advance Directives and DNR status, but you CAN be “Full Code” (that is - I want CPR and defibrillation if my heart stops) and be in hospice. Hospice simply means that we spend most of our time and energy on making the patient comfortable; we’re no longer trying to cure him. But if your Mom is still emotionally in a place where she thinks he’s going to get better if they just find the right medication, then it’s probably not time for hospice yet - but it’s still worth having a conversation with the hospice nurse.
Hang in there. Deep breaths. Honestly, you’ve passed the first hurdle: realizing it’s time for hospice and you need help. Once you make that phone call to your doctor, the medical stuff gets a lot easier, and you can concentrate on loving your dad again and saying goodbye, instead of being his nurse. <3