RIP blinkie (Ask the guy with Locked In Syndrome)

Well I have been kind of quiet lately because the Game Room hooked me up and I’ve developed a small addiction to gaming :slight_smile:

Elindil’s Heir: I drive with head motion, although when I first started n the computer I used mouth motion to operate that.

Elbows: I wasn’t always sunny, still have blue periods, but not often. I tend to read 2-3 books at a time. Right now it’s King’s Under the Dome and Ford County by Grisham. Basically EVERY book in our Library. Non-fiction I tend to read not listen to.
Equipoise: I did that bit before I actually saw him on the show. I’m kind of sorry I did the show because it looked faked. ABC never put me in touch with him. But all the Locked In people I know, although they can think and mentally can respond at normal speed, physicalally they can’t respond that quickly.
Xash: Tend to lurk more than post but I’m definitely a Doper!

Are you playing it at, like, 500% speed, or do you have the next three years dedicated to listening to it? :smiley:

I’m late to the party but I can’t stand idly by while you’re forced to watch inferior sporting products. Both the Phillies and Eagles’ stadiums are very new, as you probably know, and I can say for certain that there is fantastic seating at Citizens Bank Park that’s very accessible in terms of parking lot to seat. Since the football season is over you’re probably more interested in the Phillies anyway.

If you ever get tired of what passes for a baseball team up there (can’t remember the names of the teams they’ve got), I should be able to get in touch with some people in the Phillies organization and get you more specific answers to what exactly you need to know, if you like. Maybe the transportation issues won’t be as severe as they sound, but you’d know better than I do obviously. Feel free to let me know if there’s anything I can check into for you. Or if you just want a ride, only you have to swear allegiance first if that’s how you want to play it.

It’s 30 discs loong but I’m on 25 so no stopping now!

Jimmy Chitwood: Thank God you got Doc. Now we only have to beat him twice in October. :slight_smile:

all offers violently retracted

Ha!

BTW, I assume everyone saw the first chapter of his memoirs, which we’re running in teemings.

I’m editing chapter 2 now – the next issue will be posted on or about March 1st.

In my defense I was really rooting for the Eagles to demolish Dallas. Boy what a letdown.

Just a shout out to Blinkie–want to let you know that I really enjoyed the first installment in Teemings, and I’m looking forward to the next.

blinkie, thank you very much; your story and attitude are nothing short of amazing.

Apologies for such a late question on an old thread. How do itches not drive you absolutely nuts?

Hot damn, that’s the best question yet!

An itch is a bitch. You get used to focusing your mind off it though. Anyway it’s no way as bad as not being able to swat a bug away, especially if you’ve had a life-long phobia about them.

Euuuuughghgh. Thanks for making me literally go all twitchy-spazy for a second there.

I was over at my sister’s place the other day for my brother’s birthday party. My brother-in-law has ALS and is now in a chair and it’s slowing his speech. They have already given him his speech system, and I was looking at it while he led me through the system interface. Luckily the support tech gave him the password, so it could be put on his Wi-Fi. He isn’t using it just yet, as the eye tracker hasn’t been delivered and fitted yet, or the mount for his chair.

The ironic part is that he lost his insurance when he lost his job, so he’s on Medicare which is what has supplied him with this wheelchair and $17,000 speech system. But damn it, he’s still opposed to “socialized medicine”!

Clearly, just like Stephen Hawking (who also has ALS) he wouldn’t have survived in a country with “socialized medicine”.

Just found this thread and have read every post.

Wow. I am just in awe of you and your wonderful wife.

Sending you many prayers from Alabama for your physical health and strength for your wife and family.

We take SO much for granted every single day.

Gaffa: sorry about your brother. If he ever wants to “talk” let me know. Always willing to listen. I’ll even avoid politics.

Aries28: You can be in awe of my wife, I know I am but not me, but thanks for reading. :slight_smile:

Loved reading every word of this… and am looking forward for your remaining chapters to show up on Teemings…

I have learned so much in the past day… about something I had never even heard of.

Thanks so much for sharing your experience with us.

I think you should start demanding he pay you back your share of the speech system. Granted, that’s only about 0.005591 cents, assuming we’re counting every person in the U.S. and not just taxpayers, but still. Socialized medicine is socialized medicine! He wouldn’t want to set us down this terrifying slippery slope.

Ok, Blinkie, no spoilers on Under The Dome, I’ve got about 100 pages left.

I had a “concern” visit from DFCS today and I have to say, rereading this thread makes me feel better on a day when I didn’t think I could.

It is a better day when you realize that there are people out there like you, that have gone through hell and come out of it with class, humor and aplomb.

If you run out of books to read, May I recommend Jim Butcher’s Dresden Files? Or you could take a tangent down the dystopian road, that subject alone has kept me in reading material for about 2 years.