Yuk on the infection and associated setbacks, but hopefully things’ll be right back on track very soon!
Titanium mesh, huh? Your very own built-in tinfoil hat? 
How are you doing sleep-wise etc. - all the stuff that triggered the diagnosos to begin with?
One of the results of the antibiotic injections is that the amount of fluid that puts into my system results in frequent urination. That’s the only thing that disrupts my sleep. Other than getting up 3 or 4 times a night to pee, I’ve been sleeping like a rock. From mid-to-late December to late February, I was getting less and less sleep. My family remembers me being unusually tired at Christmas, and it had gotten worse from there. I had attributed all of my unusual behavior in February to sleep deprivation. It sort of made sense at the time.
I keep thinking of it one day at a time. Each day being closer to the next step, which is another step closer to recovery.
My husband’s got titanium mesh in his head too. Very chic. Hang in there Charger.
Ok - some spammer bumped this and by the time I saw the message in my inbox, it had been deleted - but the spammer did us the service of bumping this.
Charger, how are you doing? Last post I see on the boards was in September.
Thanks for the bump!
If someone has access to Charger in the real world, give him a poke for an update.
When I happened upon this thread my heart just fell. I am way to familiar with glioblastomas. I’ve never met this person but I pray that he is still with us and not in pain.
Charger, a wise man once told me, “You only lose a fight if you decide to stay down.” It sounds like you’re living the philosophy well.
Back when I was an amateur full contact fighter in the days before MMA was formalized, my record was 147-1, and the loss was because my trainer threw in the towel in my last fight because I was injured and he didn’t want to see me get hurt worse.
There will be days, hours, moments when you don’t feel like you can muscle forward. You can. Keep your positive energy and refusal to be a statistic in the forefront of your mind and efforts. Tired is okay. Hurt is okay. Fear and frustration are okay. Surrender is not.
You have all my best wishes and optimistic certainty you can and will come through this solidly. Fight the good fight and know that I believe in your ability to weather the storms.
Charger,
I’m still here with the “positive waves” for ya’.
IMHO, the bravest people are those who stand tall in the face of all adversity and you certainly embody that quality, and you certainly are very brave!
You remain in my thought and prayers!
Bill
Charger?
My apologies! I of course meant Watcher! Please, someone change that for me, and thanks!
Q
Darn, Charger, I’d not seen this thread before. Sorry about your continuing troubles but am hopeful the treatments have left you in far better shape. I see it’s only been about three weeks since you last posted, 9/26 in another thread, but you know us dopers, we’re a curious sort. So we’ll keep looking for a good update from you.
You got the name right; the thread was started by Charger.
Bump - was reading this wanting good news at the end…
Seconded, can the admins of the board contact him? He hasn’t been here since 24th October. I’m hoping he just haven’t had news for us.
Last post was 9/24, September. I got it wrong upthread too as it’s been about seven weeks, not the three I mistakenly suggested.
I sent him a PM in the hope it’ll generate an email notification.
He last logged in on October 24. I’ll send an email later on.
I PM’d him the other day; haven’t heard back.
shit shit shit 
Sorry! I had a REALLY bad day with the dementia today. Don’t need to go into details since this isn’t about me, but just to explain what happened. All the best to Charger, and sorry for the mistake!
Bill
I am back. Sorry everyone, that I was neglecting the boards and this thread so long. I have a lot of updates to give, so here goes. Thank you all for your concern and well wishes. I will try to visit here more often and keep you all updated. Thank you, Marley, for the email, that was the kick in the butt I needed.
They have been doing regular MRI scans, aproximately every two months so far. The surgeon and oncologist became concerned around September because there were some changes in two areas. They did an MR Spectroscopy and were able to determine that one area was tissue necrosis, most likely caused by the radiation treatment which I finished in the Spring. They put me on the standard six month threatment of the chemotherapy drug Temodar (temozolomide). The standard treatment is a moderate dose each day for a month, followed by a 23 day break, then five days of high dosage, then repeat the 23/5 cycle for six months. This past Friday, Nov. 15th, I completed the last cycle of Temodar.
Because of the concern with the changes in the MRI, we started Avastin three weeks ago. So, the was a small overlap of the two drugs, which my oncologist said was fine, and he plans to change from Temodar to CPT-11 (Irinotecan), which is typically given in conjunction with Avastin. That is an IV drip that takes a while, and they have a large room with several other cancer patients getting threatments. I have to say, there are some amazing people fighting cancer. There was this one lady encouraging everyone to get as many prayers as you can because it works for her. She went on to say that she beat ten different cancers in her body so far. Regardless of your personal beliefs, I’ve even heard from the specialists that the positive attitude makes a big difference. If it’s the prayers or not, I can’t say, but it’s apparent that the woman in the IV room had a positive outlook, attitude, and, well, expectation. I was definitely affected by meeting her. At my second treatment, I overheard her say her birth date when she checked in. It was the same day as mine, only she was born in 1933( as I heard) and I was born in 19974. My girlfriend thought she had to be younger than 77, though. Seeing her and talking with her really made my day, she had a good sense of humor, too.
So, it looks like my next appointment is on the 23rd of November, where they will do the standard blood tests, Avastin treatment, and probably my first dose of CPT-11. Then I have an MRI on December 14th and meet with the surgeon afterward so he can compare it with the last scan.
I have developed a vision problem, however. The tumor is affecting my fields of vision. My eyes are fine, but my brain is not processing my left field of vision. If I look around teh room, I see everything, but once I fix my eyes on one spot, anything that moves into the range of my left field disappears to me. I hold out my two hands before me, and all I see is the right hand. Once my brain registers what’s in the room, as long as I stay fixed on one spot, anything in that range is invisible, even my own hand when I know it’s there. It’s horrible and fascinating at the same time. My oncologist expects the Avastin to reduce the tumor enough to solve my vision problem. Hopefully soon.