Here offering comfort and cheer. Keep us posted. Thinking good thoughts.
So a huge change in my life..I'm having seizures. Just looking for support, comfort, and experience?
::checks date:: Nope.
Nice. :rolleyes:
Sorry to hear that IT. Hopefully you and the docs can find the right medicine soon and get this under control.
IT, my uncle has had epilepsy his whole life and you’d never know it. Apparently it takes occasional tweaking of his meds, but he’s got them so he doesn’t have seizures and has very few side effects. You’ll get there, too. Hugs.
Hope you are able find effective treatment, IT. Don’t give up, and get 3 opinions at least (I’m sure you know that)! I’d say that my prayers are with you, but, well, you know… 
So sorry to hear this, Idle Thoughts. I hope the doctors are able to find the cause of your symptoms and get them under control.
Sending a virtual hug your way. You are in my thoughts. Take good care.
Sending love and hugs!!!
No, you’re definitely not alone. Seizures are scary, especially when they first start and you have no idea what they are. Epilepsy can be managed, and once your doctor finds the right combination of meds, hopefully you’ll be seizure free (or at least, seizures will be an extremely rare occurance – in my case, I have the occasional focal seizure, but that’s it. I haven’t had a big one in years)
Some tips:
-Let your friends and family know, and make sure they know what to do. (As in, do NOT put anything in your mouth, wallets, rulers, etc) Mostly it’s advised that a person be lowered gently onto the floor and rolled onto their side, with their head slightly elevated.
-Consider getting a Medic Alert bracelet.
-Try keeping a seizure diary (I record the date, and times of the seizures, including what type.) This is also is good for learning what your “triggers” might be (certain foods, stress, smells, sounds, lights, etc) It can also help when you go to the doctor if you have any question.
Contrary to popular belief, the majority of epileptic are NOT photosensitive – meaning they are not affected by flashing lights. Only 30% of epileptics are photosensitive ones. My own triggers are caffeine (which I avoid), fevers, and until my meds were finally adjusted properly, my period. (Sorry if that’s TMI)
Good luck and if you have any questions, feel free to ask. (I’m afraid I can’t tell you how my “grand mal” ones go, as I’m one of the 50% that suffer from amnesia when they happen, but I can describe the aftermath, or as I like to call it, the “seizure hangover”.)
Please hang in there.
I don’t have any experience, but I have a huge amount of good wishes!
Damn, good luck.
I didn’t have a regular doctor at the time, was in the process of getting a new one, so I had to just get by on ER doctors.
I finally saw a regular (new) doc today, who referred me to a specialist, but gave me some anti-seizure pills.
This is way out of line for this thread. If you still have an issue with a prior interaction, bring it up in an appropriate forum, if you must. It doesn’t belong in here.
If you’re still supposed to take Quetiaprine (aka Seroquel), I just wanted to mention that I loved that drug. It just knocked me out completely, and did absolutely nothing else. So it shouldn’t be too scary.
Buspiron (Buspar) pretty much did nothing, and it takes weeks to work, so I wouldn’t worry about that one either.
THIS! People think you’re so heartless when you say, “This happens. She’ll be fine,” but my daughter has been epileptic since she was eight. Seventeen years of experience has taught me what to expect.
Oh man, that sucks. You need to sleep, and every time you try, you seize. That’s got to be terrifying. I had one bout of sleep paralysis and was scared literally into hysterics and didn’t sleep for days, your situation has got to be much worse.
[QUOTE=Idle Thoughts]
Hospitals have me on three meds for it so far. Adivan, Buspirone, and Quetiapine. I haven’t taken the last one yet, though, because it makes me a little scared still. 
…
[/QUOTE]
Wait, what??? Buspirone (brand: Buspar) is an anti-anxiety medication (my daughter takes it). Quetiapine is the generic for Seroquel, an anti-psychotic. Adivan (Ativan?) is a benzodiazepine - like Valium, Klonopin etc.
IANAD, of the three, I’ve only ever heard of benzos in the treatment of seizures. Has anyone explained why they’re giving you Buspar and Seroquel???
Just wanted to add my voice to the chorus and wish you well, IT. I know stuff like this can be a bitch, so here’s hoping things improve soon. And permanently.
Another story:
The Piper Cub just finished Grade 1. One of his classmates is epileptic. It’s pretty much under control, but this spring the classmate had a seizure; sounded like it was pretty dramatic.
We asked the Cub how the other students reacted. He said, “A lot of the kids were pointing and laughing.”
“What did you do?”
“I stayed by him and held his hand until he woke up. I thought he’d want a friend with him.”
We were very proud of the Cub that night. 
And well you should be.
Idle Thoughts:
You are in my thoughts. It must be horrid, but there are many medications available so if one doesn’t work, or gives you side effects, you won’t be stuck with it. May I ask what medication the new doctor gave you?
When do you see the neurologist? They should arrange for an EEG and MRI ASAP. In my opinion, the ER should have set it all up. Do you know about those medications they gave you? Only one is antiepileptic in any way (Ativan) and it is not for long term use, being a Valium relative.
I am a neurologist. PM me if you have any questions. Best wishes, Rose.
Any updates?