Parkinson’s can be difficult to diagnose early. But it can be reliably (99%) diagnosed with a voice sample–that’s an in person sample. This project seeks to extent that to telephonic samples and you can help.
Now one of the biggest questions some might have is ‘will I get a diagnosis (Dx) if I participate)?’ They seem a little cagey about that. Technically no, but it seems you will get “feedback.”
Will I receive feedback on my recording?
You can register for feedback on your voice recordings by visiting the ‘Request feedback’ tab, and submit your call reference number and email address. We plan to provide various metrics about voice quality in the near future as the research progresses. Note that this does not constitute clinical advice.
I registered for feedback - when will I receive my response?
Our aim is to involve you as much as possible in this research project but please remember that this is not a service, and we are operating with very limited resources. Please also read the answer to the query above.
Can I get a diagnosis?
No. Although we have shown that the technology can detect Parkinson’s from voice recordings, this initiative is for scientific research only. If you suspect you may have Parkinson’s disease, please visit your primary care provider or neurologist for professional advice.
Can I get clinical information about my symptoms?
No. As above, although we have shown that using voice recordings in conjunction with specialized algorithms, we can accurately reproduce symptom severity on standard clinical scales, this is a research project and does not provide clinical information. You should only alter your treatment regime in consultation with your primary care provider or neurologist.
I wanted to bump this to make sure people see it. If I’m breaking any rules by doing this I apologize but I think this is important.