Visiting neurologist tomorrow..

Just need to get this out. Mr. Bobkitty is having his own health issues at the moment, and I don’t want to burden him.

I used to be a martial artist. I spent nine years practicing different types, and was pretty good. I used to be really active. I walked my dog 2 miles, twice a day. I was witty, and smart, and a lot of fun to be with. (I also used to weigh 125 pounds, but that’s neither here nor there. Just another regret.)

In April of 1998 I got sick. A really, really bad strep infection that lasted forever. Went to the doc, had it treated, got it cleared up. But things were never the same after that. I was tired, sluggish, my short-term memory sucked and I was in pain. I ignored it for six months. Well, ignore isn’t exactly the word. I avoided it. I tried to keep up my regular activities, but after six months I was so concerned about my driving that I went back to the doctor. Lots of tests later, there was still no diagnosis. I lost my health insurance and just went on as best as I could.

Things got worse. I hid most of it from family and friends. But there were things I couldn’t hide… Mr. Bobkitty decreed that I was no longer allowed to handle anything made out of glass after I wound up breaking most of our dishes (I thought I was holding onto them, really). The pain was the worst part of it… I was up to 4000mg of Motrin a day, and would often supplement it with at least 2000mg of Naproxin. I couldn’t continue the martial arts. I couldn’t walk my dogs anymore. I could barely make it through the work day… I’d come home and just collapse. Went back into therapy… the antidepressants help a bit. After several different doctors and specialists, I’ve been diagnosed with (at least) a degenerative muscular disorder. But, according to the docs, that doesn’t explain everything that’s going on.

I’ve recently gotten a new doctor. He cold-turkeyed me off of all my pain meds, after giving me a pretty severe tongue-lashing for overdosing on the Motrin and Naproxin for over a year and a half. Luckily I haven’t destroyed my kidneys or my liver. It’s been almost a month since I’ve taken any pain meds, and I cry myself to sleep every night (when I can sleep). I’m still hiding a lot of the symptoms… I don’t think Mr. Bobkitty has any idea how bad things really are. I try to be upbeat and happy… sometimes it works. We’re remodeling our home, preparing it for selling, while building a new one. We’re doing a good bit of the work ourselves. I work and go to school full time. I push through, because I have to. But it’s getting to be too much.

I go to see a neurologist tomorrow. My new doc- who I really like, which is a nice change of pace- has narrowed things down to one of the following (in addition to the muscular disorder): some type of seizure disorder, a tumor, some kind of neurological disorder, or MS. I’d thought about MS from the very beginning… I worked in the medical field long enough pre-illness to know the symptoms. I’m 28 years old. If things have gone downhill this quickly in only three years, I don’t even want to think about what happens when I’m 30.

I liked it better when I only had to worry about Mr. Bobkitty. I don’t want to be sick. I want my life back the way it was. I’m a shell of the person I used to be, and I miss her.

Sorry about the whining. Just needed to vent. Cookies for all those who made it this far.

-BK

I’m at loss for what to say, so I’m just going to go with this: ((((((((((((bobkitty))))))))))))) If you ever need anything at all, don’t hesitate to e-mail me.

crosses fingers

Good thoughts going your way for an inocuous, easily-treatable diagnosis.

I’ve got my fingers crossed, too.

One of my professors was diagnosed with a brain tumor last year. It was scary, he had tons of surgery, he was out for months. But last month we had lunch together and were shooting the shit like always. He’s loving feeling “normal” after three years of unexplained deterioration of his health and mood. He’s back and better than ever. I am sorry to report that it has not made his warped sense of humor any more normal. Some things cannot be fixed. But what seemed like the worst tragedy ever has ended up to be a good thing.

That’s what modern medicine is for, sweetie. I hope you get some answers and a solution.

::crossing fingers::

I hope it’s nothing too serious (something treatable, I mean.) One of my friends has MS and it’s no picnic as I know you are aware.

I’m also really sorry to hear that mr. bobkitty has health problems, too. It’s really a shame you’re both having problems. You shouldn’t have to worry about “burdening” him, but you do have to. Well, you can burden me anytime. I’m available via the email in my profile. I mean it, anytime!

You can email me, too.
I’m seeing a neurologist in about 2 weeks.
Scared shitless? Why, of course I am.

I’ve been having some really bad migraines (always had a headache problem) but in the last two or three years, they have really gotten worse.
I am another one who sort of OD’s on the OTC pain relievers. It’s quite normal for me to take 4 or 5 Excedrin or Advil to get rid of a headache. I also get these minor (pain-wise) headaches that last for 3 or 4 days.

Let me know how it goes.

Thank you, all of you, for your kindness. I’m trying to keep a positive outlook on this, but lately it’s just become a bit overwhelming. It helps a lot to get it out, and to know that there are people out there who will listen and want to help.

(((Hugs))) to all of you. I’ll let you know what I find out.

-BK

Doll, you know you can email me anytime you need to. Feel free to call; I’ll give you my phone number in email if you ask for it.

I really enjoyed your presence at Bamadope; you’re a very interesting woman–and a very SPECIAL woman–and I only wish the best for you.

You’ll be in my thoughts and prayers, bobkitty. And really–email me.

Sometimes the not knowing can be the worst part. Here’s hoping you get good news at the neurologist’s office.

I’ll keep my fingers crossed for you, bobkitty. Let us know how things turn out. :wink: