Why didn't my oncologist tell me about alternative cancer treatments?

Actually, you can’t seize monopolies on many things. Only certain things are patentable, and everything that isn’t does get ignored to one extent or another. With cancer, though, there’s a lot of people doing research into everything (as you can tell from the news), so even things that get comparatively less attention still receive it.

Yeah, maybe.

As I read this thread, the Google adwords is now advertising a single alternative cancer treatment. I wonder if the OP was carefully worded so it hit on all the necessary keywords to bring up that particular ad.

*** Ponder

Yes, and he’s talking about the Hoxley treatment or something similar which has been totally debunked. Spammer.

My uncle died from this bullshit, when he could have been cured (90% or so likely) with a moderately simple surgery. Instead he wasted his money and his life.

Am I the only one who finds it creepy to see DrDeth posting in this thread?

Heard a radio ad almost word for word regarding this OP. The book is offered for free full of natural treatments that the Government doesn’t want you to know about etc… Ban Hammer its go time…

:dubious:

Thanks for all the responses, my favorite is that I’m perhaps not a real person! But this is serious and I wanted to have this conversation with other people to see if I was missing something. I will try to answer the all real replies to this thread since it is very important. That said, googling everything I write and copy and pasting a knee-jerk reponse from quackwatch isn’t going to help anyone either.

While I can’t say if my success with my current methods is or is not temporary, I can tell you with absolute certainty that the methods my doctors administered were temporary.

I guess the way I see it is; at worst it’s the same odds as I had before - except - I’m actually healthy, productive, have a full head of hair and don’t vomit for breakfast anymore (excuse me) - actually I feel better than I ever did.

Nutrients and herbs etc. is a very broad statement: there are many people stricken with cancer all over the world that don’t have access to the $45,000 in surgeries, $3,000 in radiation and $5,000 in chemotherapy. These people use many different types of herbs and nutrient therapies that work.

I did not use it, but the Gerson method has been around for many years and there are plenty of survivors to vouch for it’s efficacy, and it’s purely nutrition based.

Before anyone starts quoting from the Memorial Sloan Kettering knowledge base, this was my hospital and obviously, if they agreed that it worked then we wouldn’t be having this conversation!

This is exactly the point of my post, I am telling you I am the demonstrable track record of success: I had elevated and rising markers (AFP and HCG quant. for the technical people) and a growing tumor in my retroperitoneal lymph node. I started these alternative treatments and it went away. The shrinkage that I got after a few weeks was more than I was told to expect after 4 rounds of chemo (Etopocide / Cycplatin).

I know everyone likes to throw around words like “spontaneous remission” but yes, if I have a disease that keeps on getting worse for 6 years, then I follow formulas tried by thousands of people, and then it goes away - I’m supposed to think it wasn’t what I did that caused the remission because my doctor told me so?

About the ‘demonstrable track record’; this is simply not true. I’ll give you a few reasons why, and I hope there are some doctors here that can shed some light on this, perhaps I’m getting this wrong.

First off, ‘cure’ has been redefined by the ACS to mean ‘no recurrence within 5 years’, so when they throw around 95% cure rate, that sounds pretty impressive - but really it doesn’t actually mean much because it’s only tracking up to 5 years - so if you have a recurrence in 5 years and 1 day, you would be statistically defined as ‘cured’.

As confirmed by a doctor friend of mine, when a patient dies from cancer-related illness, the cause of death is often not attributed to cancer, so the mortality rates are inaccurate. So if someone was radiated 10 times and then dies as a result of a flu that took hold because of their weakened immune system that was a result of their treatments, they would be considered a statistical ‘success’ in many cases.

Just because there have been no Pfizer-sponsored $200 million dollar, peer reviewed studies on some of the different alternative treatments, it doesn’t mean that they don’t have a track record. You can subscribe to yahoo groups for some of these therapies that have tens of thousands of people that have tried or have loved ones that have been healed by this stuff.

My point is that ‘demonstrable’ and ‘track record’ are relative terms - again, if you are going to believe everything that the AMA puts in front of you then there’s no point to this conversation.

My regimen has changed over the time I’ve been doing it as I learn more, but this is the basics that I started with:

Very Strict Diet

  • Basically eat 75% salads with high concentrations of cancer fighting / immune boosting fruits and vegetables, seaweeds, a little fish a few times a week, no meat, wheat or anything fried.

Budwig Protocol

  • 2/3 cup [organic] cottage cheese blended with 6 tbsp. flax seed oil + 1 tbsp. fresh ground flax seeds

Barley Grass

  • 6,800mg [Green Supreme, ogranic] dehydrated barley pills

Vit C / L-Lysine

  • 3,000mg, Vitamin C (as ascorbic acid), 3,000mg L-Lysine, 1200mg L-Proline, 300mg Rose Hips

Beta 1

  • 2,000mg Beta 1,3D Glucan

Mushrooms

  • 3,200mg [organic, hot water extract] Agaricus Blazei
  • 1,200mg [organic, hot water extract] Maitaki
  • 2g Shitaki, whole in cooking
  • 1g Reishi, whole in cooking

Wild Honey & Nettle Mix

  • 3 tbsps. daily

Multi-Vitamin

  • Daily Advantage

After I got my all-clear, I’ve started some TCM herbs as well: Paris7, Chiko-curcuma and Cordyseng. I’ve also cut out the 3,000mg vit. C

The things I’ve mentioned above are simple, natural things, and do not make your hair fall out, thus they do not require testing. You just need to research that you are getting them from a good source.

The folks at whole foods did not give me any advice, I simply shop there, and they have a lot of organic and health products.

Doctors mis-diagnose all the time, I’m not accusing doctors of being anything but closed minded in my case, which is cancer.

… and my favorite… I’m very real, and a statement like ‘advertise alternative medicine in general’ doesn’t make any sense, alternative medicine just means anything but what’s accepted by the AMA or ACS. There’s no one group, practice or people in charge of it. I’m just a person that’s trying to get to the bottom of this, like you and everyone else that reads this site!

There are several possibilities:

  1. There is a worldwide conspiracy on the part of mainline medicine that seeks to thwart inexpensive and effective treatments in the hope that the cushy lives and wide profit margins of the medical profession will be maintained.

  2. There is no such conspiracy, but the particular physicians you and your uncle chose were idiots.

  3. Your clinical history as presented is correct but you were one of the fortunate few who had either a spontaneous remission, or the incredibly fortunate few who have chanced upon an effective alternative medicine cure currently unkown to mainline medicine

  4. You are wrong abut your clinical history.

Would you consider posting details about your particular cancer, your particular standard treatments and the readily-available inexpensive cures? There are significant prizes and honors available to anyone who comes up with new cures for cancers and in any case others dying unnecessarily would want to know. Why not start the distribution of that knowledge right here? You would not want to be part of a conspiracy that withholds valuable life-saving information, would you?

Gah I have no edit button!

You did sound an awful lot like the radio Ad though o.O
Hope you stay well.

I wish this were the case, but for it wasn’t for me. Maybe I picked the wrong doctors / hospitals…

Here’s what’s inside the lunchbox at Memorial Sloan Kettering (the best cancer care anywhere):

  • A can of coke
  • A roast beef and cheese wrap
  • A vanilla cookie
  • An apple

I don’t think anyone can argue that resembles a ‘healthy, balanced diet’

And again, I can only speak from my experience, but my cancer doctors (all 7 of them over the years), never once mentioned ANYTHING about nutrition, balanced diets or anything of the like. Not even suggesting to cut back on sugar, which is known to exacerbate cancer growth.

No, I would not :wink:

I had thyroid cancer (stage IIb I believe) first, for which I received:

  • A radical thyroidectomy and removal of 14 lymph nodes
  • Radioactive Iodine

With my 95% ‘cure’ rate in hand, I continued to lead my life normally thinking it was over, then after 4 years, a tumor had re-grown in the bed of the thyroid so I had another surgery to remove that.

A few months ago, I was diagnosed with testicular cancer (stage IIc) for which I had an orchiectomy and was perscribed 4 rounds of EP followed by an RPLND (a surgery so gruesome you wouldn’t wish it on your worst enemy) followed possibly by more chemo as needed.

I agree with you about the prize and honors thing, this is one of the reasons I am so confused about why this is so suppressed.

There is no point to this conversation if you insist that your anecdote and the unfounded posting of other anonymous yahoo group users are ‘demonstrable’ and make up a ‘track record’. Do you really think that there have been no studies made of alternative medicines? Even taking out of the equation the fact that most medical professional are motivated by helping people. If you only take into account the profit motive, anyone who can demonstratively show a cheap cure for cancer would be richer than Bill Gates. Hasn’t happened.

brooklynn, your case needs to be well documented, written up in a medical journal and peer reviewed before we will believe you. If it is truly as you say, your doctor should be feverishly at work on such a project and excited to find such a case, as he will be very famous very soon. There also should be numerous other well-documented examples and verified tests of the substances you claim are responsible for your cancer cure, corroborating your claim, or else, to put it bluntly, they ain’t worth jack shit.

When can we expect the publication?

Did you ever stop to think how much money the Whole Foods crowd makes off of people like you, who are desperately seeking medical help and will try anything for any price? Or do they give it away?

I agree, but all I’m saying is that it’s not so clear cut that ‘they’ have a proven track record and ‘we’ have none.

I don’t think no studies have been made, but there haven’t been many clinical studies about many of these treatments simply because there’s nobody to fund them. Since these are all simple, un-patentable methods it makes perfect sense that no drug company would fund them since all it would do is potentially prove that their high cost / high tech drugs are often unnecessary.

My case is well documented, but for some reason I feel like even if uploaded a PDF of my 72 page case history, as written by my doctors, and the follow up results, you still wouldn’t believe me.

There are numerous, well documented cases of the substances I used working, that is how I found out about it in the first place, the Budwig protocol has been around for 30+ years, and mushroom therapy has been used for hundreds (if not thousands of years) and is currently in use around world for cancer treatment.

I was honestly as shocked as you are that they weren’t ecstatic or at least even the slightest bit interested in what I did, another one of the reasons I started this thread.

And somehow back to Whole Foods again: it’s just a friggin’ grocery store - all they make off of me is the same amount of money Shoprite or WinnDixie or Walmart or whatever grocery you shop at makes off of you.

I don’t know much about medicine but I do know that all those cancers have a good chance of being treated by modern methods, so again have you considered that said modern methods could be having a delayed effect on you that happened to coincide with the health food regime?

Please provide an online cite to your case in a peer-reviewed medical journal.

Please provide cites to peer-reviewed medical journals to back up your claims.

Here’s a reference to the Budwig Protocol to get you started.

So the older the belief is, the better it is? Does that really make sense? Were our ancient ancestors blessed with long lives and low infant mortality? If something is worthless but it continues to be used by the ignorant, does that make it worthwhile by belief alone?

Because (ho-hum) we’ve seen it all before. Someone, not knowing how useless anecdotes are and not understanding how good evidence is defined, claims to have revolutionized medicine, when all they are doing is falling for quacks and deluding themselves.

It’s a friggin very profitable grocery store. With nothing but hope on their shelves, they make a shitload of money, and so do their vendors. No pharmacological company is allowed to sell their products without expensive tests, but label it alternative, complementary or homeopathic and you need no tests at all; your claims are unlimited and your profit margin zooms astronomically.

brooklynn–you wanna eat nuts & berries?

Niiiice.

But get your fanny back into conventional treatment!

Do both if you must, but do the basics first!!!

About the Gerson “therapy”, you might want to read this.

Also, about “alternative” treatments you should also read this.

FWIW, I work in an “alternative” treatment clinic and “therapists” there come in only two flavors : those who care but don’t have the education to properly evaluate the treatments or the willingness to accept that they are wrong and the snake oil vendors.

Without specific detail about your cancers and specific timelines about the evaluation of them in follow-up it’s simply not possible to comment accurately about what has produced your current state. I am not asking you to post that here; it would take many pages and be unsubstantiatable in any case. As you may be aware, the treatment of testicular cancer is one of the great success stories in modern medicine, with Lance Armstrong as the most famous icon.

If you look over your own post about what you apparently consider the effective alternative medicine therapy to have been, it should be pretty obvious why there is so much skepticism about this sort of “medicine.” It’s a combination of this and that, along with some wholesome-sounding advice about strict diet and so on. One suspects that a poll of many such believers as yourself would yield generally similar but specifically different regimens with promotion of one or another favorites and dosages.

These are not “alternative medicine regimens.” They are disparate concoctions of dozens of combinations of home remedies, traditional herbs, and various other vaguely medicinal approaches. Witches brews, to put it pejoratively, combined with advice from the shaman. It is not impossible that either a given chemical somewhere in there is beneficial, or that the advice is totally unhelpful.

What is the case is that there is a widespread confusion that this approach is some sort of implementable, testable alternative therapy, or that elements which are testable are somehow ignored by mainline medicine. And when we as scientists start to hear words like is “natural” or “simple” used to convey an inference of non-poisonous or effective, the term “hype” comes to mind.

I want to reassure you that if alternative medicine were effective for cancers, it would be embraced by oncologists everywhere. They want to be heroes too, and the notion that they have been brainwashed by their education or bribed by their corporate patrons is patently ridiculous to those of us who know them on a personal basis.

My doctor cured my testicular cancer with surgery, when eating a balanced diet did not. By the OP’s logic, this is proof positive that diet is ineffective in fighting cancer, and those promoting it are vast conspiracy to conceal the truth from me.