My brother was born with transposition of the great vessels, meaning that his heart plumbing was hooked up backwards. He survived because the hole between the chambers of the heart, which ususally closes at birth, did not close.
At 10 months he had what was called the mustard procedure, which fixed the transposition issue. At five years old the doctors discovered that the previous procedure had damaged his sino-artial node, the part of the heart the helps regulate rhythm.
He had a pacemaker installed December 13, 1981 at UVa hospital in Virginia. This is a relatively minor procedure (compared to open-heart) and they thought he may be well enough to go home for Christmas.
The only problem was that (the numbers here are approximations) his heart was only responding to the signal when the pacemaker was turned up all the way, which meant the battery would have to be replaced in 4 years instead of 7.
He was home for Christmas.
On January 10, 1982 we went to UVa for a routine checkup and they were amazed at his recovery. They wanted to use his case in a textbook and were able to turn the power on the pacemaker back to about 40% of what it had been. This would greatly extend the battery life. FYI, you would have never known he was sick if you were not told. He looked and acted like a 5 year old.
On January 11, 1982 he said he did not feel good. Mom called the doctor and he said to come in in the morning, there was no need for alarm.
He died at home a few minutes later. We were all getting ready for bed and he looked at my mom, groaned and fell over.
I had just learned first aid in the Cub Scouts and my dad had just completed a class at work through Bell Atlantic. We gave him 2 person CPR. He would exhale each breath that we gave to him, at least it seemed. Then the breaths started to wheeze out with no pressure behind them and he vomited a brown liquid. It was a this moment I believe he died.
The ambulance came and the took over. My parents went to the hospital and I went to my grandparents house, where I fell asleep. My mom woke me up at 3am and said, “Baby, Kevin is dead.”
He had no concept that he was dieing. And we did NOT expect it, in fact we were riding on a high from the good news the day before. He didn’t say anyting at all, and was immediately unconscious.
Lawyers descended on the family and there was talk of a lawsuit. The pacemaker had to be sent to the FDA for evaluation. Ultimately my family decided not to take legal action.
In 1995 a box about 5" square arrived at my dad’s house. In it, to his horror, was the pacemaker with the leads that attached to Kevin’s heart coated in dried blood.