Anyone want to hear what the doctor said?

They will be doing biopsies when they do the scope because I fit all the symptoms of Crones Disease.
Does anybody know of a good site to check out medical info? I tried WebMD, but their dicription was hard to follow.
But, it was pretty scary stuff none the less.

Don’t get me wrong, I am glad to be finally going in the right direction of knowing what is wrong, but pretty nervous.

I only did a quick search (BTW, it’s Crohn’s) and I found a couple of sites with good faqs and links to several others.

http://qurlyjoe.bu.edu/cduchome.html

http://www.ccfa.org/

http://www.angelfire.com/ga/crohns/

You might want to get a hold of Aglarond. I believe he was diagnosed with Crohn’s a while back. Have a look over here.

And good luck to you!

I don’t know much about this, honey, but I just wanted to send you love and prayers. Let’s hope that someone can finally help you to find out what is going ON!

Much Love,

Cheri

Hey Kricket…

In addition to the above web sites…there is a newsgroup devoted to Crohns support…if you don’t have a newgroup reader, you can get to it via Google Groups

http://groups.google.com/groups?hl=en&lr=&safe=off&group=alt.support.crohns-colitis

Good Luck :slight_smile:

Welcome.

I’m really sorry to have to welcome you, but you are indeed welcome, and not at all alone in this. I was dx’s last September, with acute Crohns. Oh joy! :eek:

The link that mentioned alt.support.crohns-colitis, that is the best one to go to as far as online supports groups. I started at webmd for info, and there are literally tons of sites on the web for more info.

If you have questions or worries (I had dozens and dozens, and often still do), don’t hesitate to email. aenea01@yahoo.com

((((Kricket))))

I know that it’s Crohn’s, but seeing as how you’re pagan, you may call it Crone’s. Somehow seems more fitting for you. :wink:

I’ll be thinking of you!

Cristi

Good luck! I was diagnosed with Crohn’s disease when I was 10 (9 years ago.) It’s pretty scary sometimes, but there’s a lot of new stuff coming out to help treat it. My personal advice would be to avoid foods that you know upset your stomach, even if your doctor tells you no foods are vetoed, and to try to control stress. I’ve noticed that flare-ups happen more often when I’m really upset and tense. Since some others gave some good URLs, I’ll not bother with that…

Good luck, Kricket and take care of yourself.

A belated thank you for the kind words you’ve said of me on at least one or two occasions, by the way. :slight_smile:

Hang in there!

Oh, sweetie, I know you must be scared to pieces, but keep your chin up, at last you’ll know for sure, and stop being told it’s all in your head. THEN you can tell us who those doctors were that kept saying that nonsense, and I’ll lead the way to beat them all senseless!

Judy

Oh, glory. Crohn’s?

Yuckety yuckety yuck yuck yuck. I had a friend with that back in '97. She had been a ballet dancer. With the meds she was on, she gained like 20 lbs or so of water weight in a few months. She did not like it. She was reduced to eating power bars and such because she didn’t want to test her digestive tract with much else.

Not that this is typical of all those inflicted with Crohn’s. In fact, given that this was a few years ago, I’m reasonably sure she’s better now, esp. since her meds were still being worked on back then.

{Kricket}

From my father, the RN: “It’s treatable, it’s not curable, it’s not fatal”.

Thank you guys, and thank you for correcting the spelling error. I knew there was and h in there somewhere.
Well, yesterday I found the genetic link from which this came from.
Two years ago my grandfather was admitted into the hospital with what they thought was a heart attack. When they opened him up they found that he was full of gang greene. They never told anybody that is what it stemed from.
He was all ulcerated and infected and they took so much that he had to have a colostemy bag for a while.
That story and the fact that x% end up with cancer are the stories that scare me.

I am up to 200 pounds now, and it is all either water weight or my abdomen. That cannot be good at all.

And yes Persephone, I did kind of giggle at the humor of it all. Although I am not feeling very attractive right now, I sure don’t feel ready for that crone stage. But, since I am done with child bearing I am more than half-way there. Still waiting to see if they are going to still do blood work to see how close to menopause I am.

Thank you all so very much for hanging in there with me.
I still do have the biopsy, but he says I fit it to the tee and would be suprise if it were anything else and is upset that they waited a year to send me to him.

Alright friends, I go in tomorrow for the big test.
Please send me possitive thoughts to help me through the day. I am prone to panic attacks when stressed out over medical things.
Once they get me dopey I have a fear or flight thing going on and it is all I can do to try not to run out the door.
And please hope for the best that they find something out so I can get on with my life and start living with better quality.

And last but not least, please eat something good for me as I am on a clear liquid diet today and tomorrow.
(Hey, I had to lighten the mood somehow)

Thank you guys for being here for me it means so much to me.

Good luck, Kricket. I’ll be thinking about you and sending you my best wishes. Let me know whenever you find something out.

So nervous I am still awake!
Thank you for the card love. You are the best. Made me cry and feel good to know you care.

Kricket, hon, you need sleep. You will do better if you’re not tired and cranky tomorrow.

If you don’t go to sleep I will be forced to send you five hundred more cards and this time I’ll start with the really stupid animated ones!

You wouldn’t?! :eek:
Heck, I have been up since 10am Saturday morning. If I’m not a super bitch by now I won’t be tomorrow.
Besides, they know how to shut me up, they are sedating me. :smiley:

Well, if you’re up and want to e-mail me, feel free. I’m at work and I’m not going anywhere soon!

I’m thinking about you, just like I said I would.

Big hugs and smoochies,

Tracy

Kricket, I hope you’re not STILL awake…

Good luck. Please let us know what happens. We care!