Do you shave your pubes?
(Just kidding, don’t answer that!)
Are you allowed to earn extra income by working from home from a computer, or would they take away your benefits? If you can’t work, how do you plan to occupy the bulk of your time?
Do you shave your pubes?
(Just kidding, don’t answer that!)
Are you allowed to earn extra income by working from home from a computer, or would they take away your benefits? If you can’t work, how do you plan to occupy the bulk of your time?
IIRC, when I met you at a Dopefest, you were as ambulatory as the next guy. How suddenly did this come on, and how hard has it been to adjust?
Male, 51.
The hardest thing has been not being able to do what I used to love doing. Driving, cooking, woodworking, art, thinking clearly, sex and more sex.
Not yet!
I can no longer work on a computer. I type one letter at a time on my Samsung Tablet. My coordination has gone down the toilet.
I don’t know what I will do with my copious free time from now on. This is still so new (355 days since I have worked) that I’m still trying to figure it out. And there are lots of treatments that have many side effects.
The symptoms started showing up in 2005, but being a guy I ignored them. As they got worse I knew something was wrong and started to talk to my doctor about it. But I was so cheerful about life that I might not have seemed to be in a lot of trouble.
I started to take fencing lessons last year, for the exercise, and as I was zipping up my equipment bag tried to stand up and fell over backwards into a concrete wall. I woke up on the way to the ER.
Then my doctor put me through an MRI and I got my diagnosis. Progressive MS.
It has been an adjustment I assure you.
You can no longer cook, so you now subsist on frozen heat-and-eat food and Meals on Wheels? Does this mean you are single and living alone? If so, what other issues and hardships does that entail, and how do you deal? (Dressing? Bathing? Doing the laundry? Shopping? and whatever other activities we’ve all taken for granted?)
What were all those early symptoms that you ignored? How would any of the rest of us know when to go to a doctor? (Disclaimer: I’ve have strange symptoms over the last few years, and yes, I’ve been sent down to the MRI for brain scan in 2004 and again around 2006. Apparently they didn’t find much of anything, but I wish there had at least been a brain in there.)
I am single in my own house. One of the hardships is that I can no longer do housework, and I am a Felix Unger! But my church has been very helpful, they have a sign-up list for people to help me with cleaning my house, shopping and doctor appointments. God bless them!
Showers are fun. I bought a shower bench because I am not able to stand for longer than 5 seconds and have no balance. I am applying for Medicade to convert my bathtub into a wheel-in shower.
I now have an Alert1® device that I wear 24/7 in case I fall.
One of the symptoms I ignored was limping. I started using a cane in 2008. I had a major motorcycle accident in 1987 and thought it was coming back to haunt me. Wrong!
Another one was no sexial desire or function. Started in 2005. I had just been divorced in the previous year and assumed it was just psychological and I’d get over it. Wrong!
I always tell folks to be grateful for every little thing they can do
And just to clear up a point, I feel that this condition has been one of the best things that ever happened to me.
I was anxious about my job, gone!
I was concerned about sex, gone!
I was concerned about money, resolved!
I needed a wheelchair, here 'ya go!
I have time to sit and think and pray and the neighbor kids are over every day to just sit and visit and watch cartoons (I love kids).
But why am I still posting at 2:30 am?
Damned steroids!
At least I’m watching a good movie, Bladerunner.
Because you knew I was up with the baby and needed something to read. Such a good guy!
Congrats on the wheelchair! I know you’re excited about being able to gt out of the house, but is there anything in particular you’re looking forward to? Anything you’re nervous about?
Not nervous, but I miss going to picnics and stuff outdoors.
A friend is on his way to take me to breakfast and Home Depot!
Hotter in the summer than in winter, at least while outdoors.
I hardly ever go outdoors at this time.
I am really looking forward to sitting in my backyard again someday.
Just had a terrific breakfast and grocery store run.
Let me ask, if you no longer have sexual desire, what are you missing? (Seriously, no snark)
Actually the only thing I miss is having someone to talk to and cuddle. Every now and then.
I miss nothing else at all. I have been alone most of my adult life, I’m very comfortable with myself. I can stay up, smoke cigars and watch any movie I feel like anytime I want. And I cannot stand cats (I know that’s a big turn off).
[QUOTE=BMalion;15348313
Just had a terrific breakfast and grocery store run.[/QUOTE]
Did you always do your grocery shopping at Home Depot, or is that new since the chair?
Seriously though, you do have a great attitude. “Enjoy” the chair, and don’t give into the restrictions.
-D/a
We decided to go to the store instead of Home Despot.
Thanks for starting this thread, BMalion. As always, I marvel at your positive attitude. Glad your new wheels are to your liking!