The biggest shock for me was how much they’d own my heart. I mean, I knew LOVE, and I was certain I knew how much my mom loved me, and all that. I was sure I knew what she meant when she said ‘when my child is cut, I bleed’ and ‘parents are hostage to the fates of their children’. HOLY CRAP was I wrong! Totally blew me away how much I love my kids.
I had no idea how fast they changed, either. I knew that they grew fast at times, but I found myself constantly thinking slow down! as he morphed into an older child out from under my comprehension of him. As soon as I had anything like a handle on him, he was a new him, and the old rules were useless. I learned to take everything in two week chunks, and never expect anything to last longer than that, good or bad - just enjoy it now, or handle it now, but don’t try to plan ahead too solidly, or you’ll be walking on one path, while they’re headed down a highway three miles to the east.
I did at least have some prep for physical and other issues… my sister’s daughter died of SIDS, so I knew they could be taken from you without warning. And there are autism spectrum disorders in our family line (direct ancestor, unusual as that is), so I don’t stop watching for regression until they’re past 4 years old. And my oldest brother had a neural tube defect (hydrocephaly). So I was forewarned that these things did happen, and they happened close enough to me to make them real. But I didn’t expect to miss major issues, often for years, simply because I didn’t know enough to look for them. Gabe is heading off next week to start work on oral defensiveness/oral aversion issues, which started at birth, but I thought were ‘fixed’ when the initial symptoms resolved, and I didn’t know enough to look farther for more information. I guess the thing I learned there is that no matter how much you know, you may not know ‘enough’ on any issue, and you can’t beat yourself up in retrospect. Regret, yes, guilt, no.
Nvme77, my mom taught me a great deal about the fury of a mother whose child’s birthright of health and wholeness is denied. My brother died more than 45 years ago, and she is still angry that he never had the chance to be the full person he could have been, because of a single developmental failure. It breaks her heart… but she also welcomes the things she learned from him, and treasures every positive moment that slipped through in spite of his disability, and in some cases, because of it. I wish you those moments, as much as I recognize your anger. And I’m glad you have support - it helps to be with people whose kids live on the same developmental path, who have the same milestones - even if the span between them is long, and who understand your grief.