"Here are seven things 'everybody knows' about my illness that just aren't true.

Excalibre, my body doesn’t like progesterone. I know, I’ve tried billions of pill preparations and the only ones that suit are the mega high oestrogen, low progesterone ones. Also if I run more than 2 packets together, I get massive mood problems and the period from hell at the end of the third packet- two is my limit, believe me, if I could get away with more, I would.

Depo doesn’t stop periods for everyone, it’s a little too unreversable for me (waiting 3 months for possible horrible side effects to wear off does not appeal), and in a proportion of Depo users there is daily or unpredictable bleeding as a side effect. Not something I’m willing to try- 3 days of awful cramps every 6 weeks I can plan for and deal with, unpredictable bleding and cramps for 3 or more months- not so much. Also, it’s not a long term option because of osteoporosis, has no immediate return of fertility and is basically something I’ve discounted for a million little reasons.

I’m seriously looking into Mirena, but first I need to move to my new job, change GP and get a gynae referral- this will take time. In the meantime, I do what I can to make my life as easy as possible, and keep taking my pain meds.

I hate heights, or even being on the ground floor or standing outside a tall building. I’m not able to go into a cathedral (especially Armagh Cathedral, why the hell did Catholics have to go one further than the Church of Ireland? :mad: ) without sweating and shaking like a man possessed, Dad can’t seem to understand and says I should just go in with my eyes to the ground. Apparantly there were some great Bishops’ hats in Armagh Cathedral to die for that I missed out on seeing :rolleyes: So yeah, I kind of know what you mean.

And when i shave my hair short to stop my scalp becoming a messy, bloody, itchy mass, I always get the “oh its only psychosomatic” from people, especially Mum. If my hair gets beyond about a centimetre or two, I can see large lumps of dandruff in it when I shave it off and I’m killing myself with itches.

This is for one of my dear friends. (He’s doing a drug trial now and his skin is looking great.)
My friend just had it for a little while.
Psoriasis is a chronic disease. He can’t rub on a magic potion to make it go away and stay away.

Better not shake his hand or hug him.*
Psoriasis is NOT contageous. (YES, we can f’ ing hear you stage whispering over there.)

If he didn’t scratch, it would go away on it’s own.
He doesn’t want to scratch - it happens in his sleep. He understand that scratching irritates his skin.

Apparently vitiligo isn’t so much a “disease” as a “symptom” - there may be a number of causes to it, each of which needs different treatment (when the treatment is possible at all). A summer I got some patches on my face that were lighter than the rest: the rest got browner, those places simply stayed the usual lighter shade. They didn’t even get burned, didn’t feel weird, nothing. It was some sort of yeast infection, got cured by using external medication daily for three months, has never come back.

IANAD and all that, we oughta ask Qadgop.

I don’t wear glasses any more, had lasik a few years ago. Things I’ve heard re general sight problems:

  1. Lasik is worthless, you’ll just need glasses again in a few years.
    Uhm, no, one reason the bro and me decided to get surgical is that we’re betting on not needing glasses again until we’re old dodders in our 60s. 30+ years without glasses sounds good to me.

  2. Astigmatism doesn’t exist.
    Riiiiiiight. Please explain that to my right eye. Slowly, it doesn’t hear well, being the wrong type of organ and all.

  3. Shortsightedness is caused by reading too much.
    OK, so how come the aforementioned bro got it in his early teens too? At that point he would have refused to read anything except exam questions unless he had a bazooka pointing to his groin.

  4. You don’t need to wear your glasses during sports.
    Ok, which part of “I can’t see” and “I get real dizzy” don’t you understand?

  5. Being hit on the face by a football, hard enough to break your glasses in half, can’t have hurt. After all, the blow was absorbed by the glasses.
    By doze iz bedy gdad I 'ad 'em on, dankz. But it still hurts a lot. See the two red half-circles I got where the glasses bit into my cheekbones?

  6. Farsightedness is caused by reading too much.
    My cousin would like it if you kindly read point #3 above. She didn’t get into reading until she was in her late 20s.

  7. Cataract surgery makes you blind.
    Promise it’s the other way 'round, kind of.
    Not much compared with the dumbness one hears about, say, cancer or diabetes, but you’d think with all the four-eyes out there, people would know better.

Here’s another schizzy one for AHunter3: Schizophrenia means you have a split personality.

That’s not a problem. It’s a problem when people start thinking that taking a “happy pill” is some sort of lazy alternative to “real” treatment for mental illness, whatever they think that might be.

Well, which is it? :wink: They’re opposite problems, so it’s rather unlikely that too much reading could cause both of them.

This is on behalf of my late girlfriend, and directed at her less-than-fully-intelligent aunts.

  1. No, she did not get kidney failure “just to get attention.”

  2. She did not get kidney failure because she is no longer a practicing Catholic. It is not God’s punishment.

  3. Quitting smoking will not cure her.

  4. She didn’t choose to become a “drain on the system” just to get your goat.

  5. When you sent her a $20 check for Christmas, and she signed it over to the National Kidney Foundation, yes, she did it just to get your goat. Looks like it worked, too!

  6. Telling your daughters that if they donate a kidney they will no longer be able to have kids is a cruel lie. Good thing they saw right through it.

  7. Saying “No child of mine will ever give a kidney to that selfish girl” and then turning the entire family against her does not make you the pillar of society that you claim to be.

I’m lucky in that my periods were generally light and mostly pain free (regular aspirin took care of any cramps), but let me tell you, Mirena is a wonderful thing. I love everything about it (well, except the insertion - that wasn’t so much fun). I had mine inserted in March of 2005. Since then, I’ve had one incident of spotting and a couple of weeks ago, some pink-tinged discharge (sorry about the TMI). Obviously, I know that you know all this, being a newly minted MD and all, but everyone likes anecotes and I think the Mirena’s best thing ever.

Here’s hoping that it’ll be right for you too when you get everything sorted.

I think I had an episode of depression when my son was diagnosed with autism, but I didn’t know what it was at the time.

Like many others without personal experience with depression, I didn’t know what was happening. I just knew that I felt hopeless, helpless and frozen. I sat still for almost six months- robotically going through my days without facing the huge elephant in the living room- that my child needed help, right now. I couldn’t do anything to help him- couldn’t make phone calls about services, do research, have a full evaluation done, nothing. I just let myself drown in my daily functions and shut down completely. My husband and two boys just couldn’t get in.

I thought that since I wasn’t sad, it must not be depression. So I didn’t get any kind of help- me, who has benefitted from therapy in the past, and who works a successful 12 step program! I didn’t talk to anyone. Go figure.

Scary.

It “would”, but does it? I would think it would have the opposite effect.

A friend of mine has ADD really bad, and she takes ritalin (or maybe something else these days) right before bed. It helps her to concentrate on sleep. Before she got help, she would self-medicate with coffee.

This paradoxical effect is one way you can tell that “teachers” are not overmedicating kids to turn them into zombies. If a kid who doesn’t have bona fide ADD takes ritalin, it’s not going to make him mello, it’s going to make him super-active.

My mom died of lung cancer and here were the questions that annoyed me the most:

  1. Was your mom a smoker?
    Actually, she was been a non-smoker for her entire life, eats well and exercises on a regular basis. In fact, this has been the first case of cancer EVER in our family. And even she if was a smoker, what the hell does that mean? Are you planning some sort of “I told you so” speech or something?

  2. Oh my mom had breast/stomach/whatever cancer. She just went through chemo and she was fine! Your mom will be too!
    Wow, glad to hear you are God and just know that everything is going to be ok. Do you know anything about lung cancer, or even what stage we detected it at? Did you know that lung cancer is one of the most difficult cancers to treat? Of course you didn’t, jerk.

So I don’t have 7 questions, but these 2 are the ones that stick out most in my mind.

I would have annoyed you if I knew you. This would have been the first question that came to my mind, if not my lips. :frowning:

Sorry, maybe with others it isn’t as sensitive of a subject but for me, it always seemed as if anyone who asked me this was just waiting for me to be like “yeah she smoked for 20 years” and then for them to reply, “well that’s probably why she has lung cancer.”

I fear that I would have asked as well. And now that you say it this way, I can’t tell you why I would have asked, but it would have been the first question that popped into my mind. I will have to try to remember what you have said.

It’s the difference in our experiences. My grandmother died of lung cancer and was a lifelong, heavy smoker. While there isn’t a 100% correlation between the two, she had enough other smoking-related conditions (emphysema, chronic cough, etc.) that there was little doubt in anyone’s mind that the one caused the other. I spent years after she died being angry with her for robbing herself of years of life, and the world of herself, through her smoking. I still find myself projecting it onto other smokers. I don’t pretend it’s rational or justified, and I get mad at myself when I catch myself doing it.

Just please know that it isn’t out of any desire to put you or your mom down, or gain some kind of moral high ground for myself. And if I did know you in person, I’d like to think I would have kept my damn mouth shut. :slight_smile:

I’ll speak to an illness that I (hopefully) don’t have anymore: lymphoma.

[ol]
[li]No, I am not a cancer “victim.” Nobody did this to me. It just happened. To be a victim I’d have to assign blame, and I’m not going down that road.[/li][li]No, it’s not contagious. You can shake my hand or hug me and you won’t “catch” my cancer.[/li][li]My treatment is most likely different than what your mother/father/uncle/friend had. I had CHOP chemotherapy with simultaneous monoclonal antibody treatment. That’s not the same as cousin Bob’s radiation treatments. And maybe Aunt Sally drove herself home after chemo, but I had enough trouble walking down to the car to have my wife drive me home, thank you. [/li][li]Yes, it’s okay to ask me about it. Talking about it helps. But only ask if you care about the answer.[/li][li]No, I don’t want you to tell me what I should and shouldn’t be doing during my treatments. I have doctors for that, thank you. I made the decision that the cancer wasn’t going to run my life, and took some calculated risks. It helped me cope.[/li][li]No, I’m not “brave” for what I did. The doc told me I had a 50% chance of surviving if I went through chemo/monoclonal antibodies, and that it would almost certainly kill me if I didn’t. This wasn’t a lifestyle choice. It’s something I had to do, and I did it.[/li][li]No, I couldn’t feel the cancer “eating away at me.” I never felt sick because of the cancer. The treatments weren’t a walk in the park, but we caught the cancer early enough that I never felt anything but an odd lump.[/li][/ol]

Nava- vitiligo is the specific name for hypopigmentation caused by an auto-immune condition.

Hypopigmentation (light marks on the skin) is a physical sign which has many causes, vitiligo is one, Pityriasis versicolor (which is what I suspect you had) is another.

Just to be absolutely clear, Vitiligo is not the same thing as Pityriasis versicolor, although both cause hypopigmentation.

I have OCD also. You covered the list so well that I don’t have much to add except for the following.

You seem a lot better-can’t you stop taking the medication now? Uhh, I’m better because I’m taking the meds. OCD isn’t curable. If I stop I’ll revert back to OCD mode.

You’re acting anxious and worried–must be the OCD flaring up. :rolleyes: Yes, every single time I get worried about something it’s due to my OCD and not, you know, because I’m actually worried about something.

You need to just get over it. Wow, thanks for that stellar advice. I’ll get right on it and when I’m over it, I’ll let you know. I’m so glad I have someone like you in my life who cares enough to set me straight.

I can understand why people might believe some of the things listed here, but this (and many others, but this stuck out to me the most):

People really still believe crap like this?!!

Yeah, some people do. It’s amazing how little your average person on the street knows about cancer.

Wait, is this a symptom of bipolar disorder? I’ve also been diagnosed with type II. Fortunately, things are going really well for me now, only mild symptoms for the past few years. BUT… I have these rage flashes that come out of nowhere and scare the shit out of my partner. Hmm…

Sorry for the hijack. But a big light bulb just went on in my head. Thanks for sharing this!