"Here are seven things 'everybody knows' about my illness that just aren't true.

I suffered several major depressive episodes in my life, as well as a generally unhappy & rocky life, before being diagnosed with high-functioning borderline personality disorder. Since therapy & meds entered my life, I have a much better quality of life, and most people don’t know I have a mental illness. But, in addition to the misconceptions already listed for depression, here’s my own little list:

  1. “There’s nothing really wrong with you; you just need to stop feeling sorry for yourself.”

(Thanks, mom - that really helped me get better.)

  1. “You’re just blaming all your problems in life on your parents - now that you’re an adult, you should just get over it.”

Actually, I have forgiven a lot, and don’t blame my parents or anyone but myself for any decisions or actions I’ve made.

  1. “You’re just oversensitive.” (meaner variation: “Grow a thicker skin!”)

I think I am sensitive, and I don’t agree that there’s anything wrong with being sensitive, nor can I change being sensitive. But no one needs therapy, hospitalization, antidepressants and meds to control mood swings just for having a sensitive personality.

  1. “You should be all better now because you’re on meds and have had therapy.”

Otherwise known as the guilt trip for relapsing - just because I have improved doesn’t mean I’m cured. A large enough stressor has the possibility of being overwhelming to me, and I could react with “old behavior”. It’s how I coped with a painful childhood, so it’s more or less the “default” reaction against which I have to struggle.

  1. “You must not really be BPD, because you never cut yourself.”

Not all BPD’s cut. I used to self-harm, yes, but not by cutting. In fact, my self-harming started so young that my preferred methods were banging my head and biting myself.

  1. “There’s no such thing as BPD - it’s a ‘garbage-can diagnosis.’”

Whatever. People who really believe that aren’t worth arguing with, but it is as much a “real” mental illness as bipolar or schizophrenia, with real criteria and plenty of research. It’s the sufferers who are often “garbage-canned” by people who can’t or won’t deal with them effectively, whether they be loved ones or medical and mental health providers.

  1. Hi Opal!

By the way, my pet peeve in the world right now is the ignorant comments & jokes so many people make about Prozac, calling it a “happy pill” (as if it actually had the power to make people feel joy) but also apparently believing it a sedative (“she was yelling & carrying on like a maniac, so I told her ‘take a prozac, already’”), as well as something that turns people into zombies.

Myth: If you have “depression” then you just feel sad or down.

Feelings of sadness can be part of it. So can feeling an overwhelming hopelessness or numbing vacancy. A lack of concentration was and is a terrible hindrance to me. Problems with regulating sleep, loss of appetite or increase of appetite, anxiety. There are other symptoms. Depression is not about “feeling down.” It’s not to be confused with the blues.

Obesity myths:

  1. Physical problems that cause obesity are rare.

  2. All compulsive overeating can be controlled with will-power.

The truth: as with other compulsive disorders, brain chemistry can be a factor and medication can help to control the compulsion to eat.

  1. So, this ‘mental illness’ thing…you folks are just moping around and you’re kind of weak and you’re not coping, and you whine a lot, and you’d do just fine if you got a little ‘grounding in reality’, a little ‘tough love’, ya know, some uncompromising insistence that you deal with fucking reality for a fucking change, am i right?

I thought I’d start off with this one, just because I so seldom do. I don’t know what you think it’s like to be an inpatient in a psych ward, and to be sure they probably aren’t all the same, but I can tell you that this attitude is spectacularly well-represented among the staffers and doctors of psychiatric facilities. (Hence my antipathy towards the profession).

I don’t whine, motherfucker. I want to see schizophrenics employed at your business in direct proportion to our distribution in society as a whole.

Reality is overrated, and you non-schizzy folks have way too much to do with keeping it extant. I see some need for some changes. I’m certificably nuts and I vote.

Meanwhile, people who experience pain should be cared about. It should matter that live hurts to enough people to fill large buildings, enough people to identify patterns and generate classifications for. Someone oughta care. And no, giving us a goddam label doesn’t constitute an act of compassion.

Maybe we’re intrinsically different; maybe the only meaningful changes would have to be wrought in us, so as to make us experience less pain the world as it is. But you wanna entertain a revolutionary thought? That’s not where to start. That is, at best, where to arrive after exhausting the other possibilities. You start with the possibility that something is wrong with life, and that only some of the general population is sufficiently strongly affected by that as to be shut down by it. And you consider the possibility that, if left unaddressed, such problems could cause such symptoms to appear in a larger and larger portion of the general population.
2) There are a finite number of well-known and well-understood psychiatric ailments — such as “schizophrenia”, “bipolar disorder”, and “clinical depression” — and all you folks with the same diagnosis have a disease in common and need the same specific treatment, which will make you “normal”..

No. No. No. No. No. No. And no.

There are some idealistically dedicated researchers, a small army of procedure-followers, a triple-handful of sadists, and more than a sprinking of well-intentioned mavericks inhabiting the semi-medical field of psychiatry. I say “semi-” because, historically speaking, the profession started out as pseudo-medical: using the authority conferred by “Doctor” to stand at the front of what was essentially a police or social-control function; and that old thread of what psychiatry was about was never uprooted and removed and still has its strands. I say “no” because, as a profession (and I will at this time include the pharmaceutical folks, the NIMH folks, & the neuroscience folks) they do not, as of yet, have their tongs on what is “mental illness”. A half-century+ of asserting that “mental illnesses” are somatic, rather than psychosocial, in their origins, in combo with funded studies, have failed to yield really clear pictures. On the other hand, it does seem increasingly & compellingly likely that there are physiological manifestations that go hand in hand with the constellation of symptoms that generate the various diagnoses. Clearly something is going on with the behavior of neural systems. That doesn’t establish cause & effect though.

Seriously: they are still pretty much in the dark. Or, if they are in the light, it’s because they are doing their looking under the lamppost, because the alleyway where the answers lie is in darkness and they can’t search there. So they are searching where the answers are NOT.

  1. People with psychiatric diagnoses suffer horribly and can’t function like normal folks to any appreciable degree

I’ve been different all my life, and I’ve known it most of my life. Sometimes I’m jealous or feel limited, but a whole lot of the time I’m feeling smug and superior. The bottom line is, I like who I am and I do not want to be changed, “fixed”, “cured”. I have suffered horribly in my life but mostly as a consequence of how people treated me, which they did because I was different. Other groups of people have been subjected to that: gay folks, for instance, have been treated horribly just for being different, their feelings hurt, their fundamental humanity scraped raw and bloody an then dunked into attitude-sewers of hate and disgust. Doesn’t mean that the problem was in them, does it? Same with us, maybe. Think about it. Consider it. Give us some space, let us decide whether or not we’d like to be cured or if, instead, we’d like to be “proud and schizzy”. Oh, and I’ve been gainfully employed since 1993. I’m a bit withdrawn, and I’ve found a better niche in a computer-geeky field rather than the people-centric field I started out in. But under decent (let alone ideal) circumstances I really, vividly enjoy interpersonal contact and I daresay my presence in at least a few lives is valued by others as having brought them warmth, support, understanding, etc.

No, it is not necessarily a horrible tragedy to be “mentally ill”. It may be so for some, perhaps most. It might be the case that if we weren’t social pariahs and had our own community and “pride movement”, far fewer folks would fall into that category.

Some of us like being this way. Really.

  1. You have to take your medications or you will become dangerous to self and/or others, violent, etc

I’m not on psych meds, and never have (voluntarily) partaken thereof for any period of time in excess of 2 weeks. They help some people, ranging from “yeah, that helped me get through a bad patch” to “I totally owe my life to <Medication Name>”. Other people have had such bad experiences on psych meds that if you came after them with a psych-med needle they’d feel ethically justified in killing you to prevent you injecting them, same as if you were trying to rape them. (In fact, involuntary medicaiton with mind-altering chemicals is invasive as hell). As with the diagnosis situation, the treatment situation is very much a guessing game, with slender information and a dearth of solid info on why and how chemicals achieve the effects they seem to achieve. Also, the old ugly thread of police powers / social control rears its head here: psych meds have become popular throughout history not via accaim from the folks taking them, but from acclaim from the folks in charge of the folks to whom they have been administered. A huge percentage of psych meds are in use for their efficacy at rendering crazyfolks manageable and nontroublesome on a ward, not for their long-range effectiveness at getting folks back on their feet and in charge of their own lives. Even the most popular categories of psych meds (antidepressants) affect different people in different ways and are most totally not a “one size fits all” kind of solution. Some folks are just plain better off not taking psych meds.

They are strong, sometimes have lots of side effects, and they ain’t for everyone.

  1. What about the ‘dangerous’ part though? Aren’t the rest of us entitled to the safety of knowing that you crazy folks are on your meds?

We aren’t statistically any more dangerous to you than you are to us. You’re entitled to the same protection of the law that protects you sane folks from each other, and us from you, and so on.

  1. OH come off it, you obviously aren’t really schizophrenic or whatever or you wouldn’t be able to write / participate in the board / stay employed / stay out of the mental ward / etc, but the real mentally ill need our help and you’re just obfuscating the issue

Oh, a misdiagnosis, am I? <sigh…>

Look, a few zillion posts ago, when I’d been here for quite a while, this new poster Satan popped in, made a big splash, and eventually got banned for something or other. That was a long time ago. Know what? He’s still probably better known than me, even though the SDMB is probably my single best self-integrated particpatory social environment. I said I like who I am and how I am and I meant it, but for a mixed set of reasons — some of which amount to just being different and some of which have to do with specifically how I’m different and how that impacts on how I related to people and vice versa — I’m never ever going to be anywhere but on the fringes. And my head is full of thoughts, ideas, perceptions, priorities, etc, that only kind of tangentially overlap with those of other folks. And because I don’t get the easy, unquestioned, normal-person opportunity to compare notes with folks on the same wavelength as I am, I go off into left field, right field, or field where no man has trod before, from time to time, and I don’t know I’ve done it sometimes until I’ve built on it. And I so totally expect contempt, dismissal, non-comprehension, hostility, etc, from people in general that when folks try to tell me I’m losing it, it doesn’t stand out as dramatically different from everyday feedback. Which I’ve got on a serous static filter. Which means you experience me as distant, borderline hostile, distracted, at 10-foot-pole’s length, so of course you don’t befriend me and vice versa.

I don’t want to be normalized but yes I dream sometimes of being with “my people”, whoever that might be. To belong and be among and be home. Yeah, whatever, yeah life hurts, yadda yadda.

You can’t have it both ways. I’m not sufficiently differerent from the other folks who have inhabited mental wards, and certainly not enough so to be able to say “Uh, 'scuse me, I think y’all made a mistake, I’m not supposed to be here” and have them open the doors and let me out.
7) What about the people who really benefit from psychiatric help?

More power to them! You don’t think the pharmaceutical industry would try to provide things that people would enthusiastically consume, in a consumer society? Of course they do, of course they would! I said there was a lot of blundering around in the dark going on, and I said there was a thread of legacy police-control utilitarianism within psychiatric pharmacopoeia, but I most certainly did not say that they would not do their best to provide folks with stuff they would continue to show up at the prescriptions counter for, med insurance card in hand, mm?

People vote with their feet (usually metaphorically) and their credit card (literally) and the pharma industry, bless their collectively repulsive hearts, really are trying to do their best, if generally not for particularly altruistic or compassionate reasons. (No different than their motivation for developing a good vaccine, mind you).

In addition to schizzy-rights perspectives like my own, the scene is rife with consumer-services activism, people who partake of psychiatric services but want a say-so and a chance to play a role in shaping services, rewarding those that fit their needs and addressing their concerns w/regards to their insufficiencies. Most of them see psychiatrists; most of them take psych pharmaceuticals of one sort or another. I should write of them more often than I do, I guess. Different take on things, but lots of convergence on rights issues, etc.

I’ve struggled with self-injury for quite a few years… cutting and bruising mostly. I’ve thought about doing an “Ask the” thread on this but I’m not sure if I want to go that route quite yet.

From my observation, here’s what people seem to think…

  1. Those psychos need to be locked up!
    -No more than the person who uses anything else to avoid their emotions. (alcohol, drugs, that chocolate ice cream binge when your boyfriend dumped you). Actually many of us “psychos” function quite well and often excel in the things we do (work, school, etc).

  2. The cuts aren’t deep so it must note be serious.
    -You only shed 2 tears so it must be nothing serious. Do you really think you can judge my emotions? Next time you smash your finger I’ll try to tell you how bad it hurts.

  3. People who self-injure are attention-seeking.
    -Yeah… that’s why no one knew for years. Not even my family.

  4. Get rid of the razors and knives, then you can’t hurt yourself.
    -Mr. Johnson has called me MacGyver a time or two. Anything can be a weapon.

  5. It is a failed suicide attempt.
    -No. That is totally ignorant. Suicide is a permanent solution. Self-injury is a coping skill – a way of managing emotions. It’s not a healthy one, but that’s what it is.

  6. “Maybe you have a vitamin deficiency.”
    -Thanks mom. After a few vitamin C’s I’ll be all better. While vitamins may make me healthier, I don’t think they’re going to change my emotions.

  7. Just stop doing it.
    -Cutting and other forms of self-injury can be addictive (mentally, I’m not sure about physically.) Even if it’s been months, for me the urge is still there. It doesn’t just go away. Why not test your method with that coffee or cigarette habit. Successfully quit cold turkey, then we’ll talk. (I know quitting cold-turkey is possible but to my knowledge it’s uncommon).

Those are just a few of many misconceptions.

Tell those people that the 1950s want their “refrigerator mother” theory of autism back. It didn’t even make sense when it was proposed, and by now it’s been pretty thoroughly discredited.

wow right before i read yours i was about to relate all the misconceptions people have about my narcolepsy. People will get nervous when I drive a car because they think I’m going to snooze all of a sudden.

I take Provigil twice daily. My doctor refuses to prescribe actual amphetamines. who knows.

I don’t have any chronic conditions, much less a frequently misunderstood one like many of you seem to have. I just wanted to pop in and say how utterly fascinating this thread has been. Thanks to everyone who’s posted; some of you, I can tell, had no trouble sharing this information. For others, I suspect it was less comfortable. Thanks.

A good friend of mine markets Provigil. Very cool drug. Although I have some sample packs, I’ve never tried it, but the literature I’ve read is amazing.

Here’s another good one:

People in the “good old days” (whenever that was) and/or people in third-world countries don’t get depression, anxiety, or whatever. That must mean that condition was made up by drug companies or psychiatrists, so you’re not depressed and don’t have an anxiety disorder- you’re just a whiner who needs to suck it up.

No, what people in the past and in third-world countries didn’t get is recognition that these conditions are real, and modern, effective treatment. They might be kept from talking about them by social stigma, but that doesn’t mean the condition doesn’t exist (if shaming people out of talking about it worked to get rid of diseases, sexually transmitted diseases would have died out a long time ago).

They didn’t get treatment for it, not because it didn’t really bother them, but because no effective treatment existed in the time and place where they lived. They might have “sucked it up” by not accomplishing what they could have had they been treated, drinking or using other self-prescribed substances to excess, or even killing themselves- is any of those somehow better than acknowledging you have a problem and getting treatment from a doctor for it?

And why should people refuse to recognize and treat a disease or condition just because that recognition and treatment hasn’t been available to everyone in the world at all times in history? Funny thing is, you don’t often hear that argument made to someone who takes antibiotics for an infection, or insulin for diabetes, or radiation or chemotherapy for cancer. You just hear that particular brand of ignorance spouted about mental illnesses or conditions like anxiety, depression, OCD, and ADD :dubious:

People just have such a hard problem believing in mental illnesses other than the ones that put you in a straight jacket. Just because I’m not smashing my head on the table counting to Satan backwards doesn’t mean that something isn’t going on up there.

I am actually being very effected right now by misconceptions about mental illness. As a college student trying to finish up their last year, I got slowed down recently but a depressed episode and have presented my medical excuse to the Dean of Students who basically rolled his eyes at me and told me to talk to my professors one of whom (organic chemistry of all things) said to me that she is so tired of lame excuses lazy students use to get extensions.

Here’s the deal, I was laid up in bed for three weeks. I mean I couldn’t eat. I couldn’t move. I slept and when I couldn’t sleep anymore i’d take a sleeping pill. I had to. I can’t explain it. I was so depressed I could not get out of my bed. Also, I am a former cutter (middle school/high school) that has morphed into a “skin picker”

Most of these come from my parents.

  1. Are you taking your medicine? This wouldn’t be happening if youre taking your effexor. - oh my god yes i’m taking it. depression is a little more complex than popping a pill and being over it

  2. Do you need to switch your medicine?
    -No damnit i’ve tried everyone out there it wont make a difference

  3. Depression is so common it has to be psychiatrists just wanting to slap something on you and send you on your way with a bill. it doesn’t really exist.
    -I personally completely understand why so many people are diagnosed with depression. And why the numbers are only increasing year by year. Look at the world. Its all fast past pressure and overly tragic. You are hand fed what you are supposed to want in life from the moment youre born. Go to four year college at 18. Go to grad school (or else you WILL NOT get a job) Then of Course I have to get married by the time I’m 28 so I better get a move on! But I can’t get married until after grad school so I have this like really specific time frame to find love. I have to get married by 28 because I have to have a baby before my reproductive organs shrivel up and die by age 35. Meanwhile, I’ve gotta make good grades bc if I dont get into a top 25 grad school i wont find work ANYWHERE, stay thin, have a social life. oh yeah and we’re fighting a war, have no cure for cancer or aids or the common cold, and children in africa dont even have safe water to drink. So yes. a lot of people are depressed because some brains just aren’t equipped to face everything we’ve come up against.

  4. You’re pathetic. You cut yourself for the attention. Otherwise you’d just committ suicide
    -its not a cry for help. I learned to cut my legs so no one could see. and I got away with it.

  5. Won’t you stop pulling out your hair? Your skin looks like someone has tried to eat you raw (mom)
    -oh great idea…why didn’t I think of that…

  6. How about lasar hair removal? Then you’ll be cured! (mom)
    -Its not about body hair. I don’t pull EVERY hair out of my legs, underarms, and pubic area individually with tweezers because I hate the hair. Its in my BRAIN.

  7. Cant you wait to do this in a few years? Drawing out your education is really starting to get expensive (dad)
    -I dont even have a response to this

If I hear one more time that I’m not depressed, I’m just lazy…that makes me so angry! You think I like being stuck in bed all day, with the guilt of knowing my daughter is not making it to school today because I just can’t do it? True, sometimes I’m just depressed enough not to want to get out of bed, but do it anyways, and then there are the days where I just can’t. Excercise doesn’t always make it better, either. My dad says I’m depressed because I’m going to hell because I got a divorce. So apparently Satan is giving me depression? I just don’t understand why people can’t understand that my depression is a chemical imbalance, not a result of anything I’m doing or not doing. It’s just the way it is, so don’t try to tell me I have nothing to be sad about, other people have it way worse than me, or I just need to tell myself this is unacceptable and I just need to tell myself that I will make it go away! :mad: sorry…little tantrum here. I hate depression and would give almost anything to never have to deal with it again.

There aren’t enough :rolleyes: in the world…

Those are really good ones :rolleyes:
Is there anyone above the dean of students that you can go to, lobstermobster? You’re being discriminated against because of a disability, and most colleges have policies against that.

Here’s a clue for people who say dumb things about mental illness: Ask yourself if you would say the same thing if the person had cancer. If the answer is no, then you probably shouldn’t say whatever it is you’re thinking. Or else you’re just a heartless and clueless bastard who would tell someone with cancer that it’s their own fault, that it isn’t a “real” illness, or that they should just will the tumors to stop growing.

There is no such thing as a chemical imbalance. You’re being glib. You don’t know the history of psychiatry…I do. You just need a good regimen of vitamins and exercise! :wink:

And, since vitamins are chemicals (with BIG LONG SCARY ARTIFICIAL CHEMICAL NAMES like pantothenic acid, cyanocobalamin, and naphthoquinone), a vitamin deficiency is… what, exactly, according to these people? :stuck_out_tongue:

Another social (mostly) anxiety sufferer here. I’ve only got one, but it’s fairly big:

You’re just shy, and you’ll grow out of it.
No, I’m not, and no I bloody well won’t. If I keep working at it and forcing myself through agonizing situations, I might get over it, but nineteen years says that I’m not going to wake up one day and be over it. And no, I’m not just shy.

This, in my opinion, is what shy is: You suddenly find yourself uncomfortable in a crowd, or meeting new people. You have butterflies in your stomach when you have to give a presentation. You don’t have much to say to new acquaintances; you stammer and generally come across as awkward. Your palms may sweat a bit.

This is what, in my experience, social anxiety is: You get called on in English class to read an essay you wrote out loud, and suddenly you can’t breathe or even really move, and it feels like a life-or-death moment, and it takes you the better part of a day to recover. Someone knocks on the door of your dorm room on a Saturday night and you sit, silently, until they go away, because you’re afraid to open the door. You arrive at college your freshman year, alone, and turn down help to carry your huge suitcase up the six flights of stairs awaiting you, because that would mean making small-talk with someone to some extent. Social anxiety is when you walk to dinner with, and sit with, your roommate on good nights; on average nights you go and sit alone; on bad-but-not-awful nights you go alone, grab some food, and retreat back to your room; and on bad nights you don’t go at all, even if all you have in your room is a bottle of Coke, a bag of Doritos, and a week-old slice of pizza. Anxiety is doing your grocery shopping ten items at a time so you don’t have the discomfort of a thirty-second interaction with the cashier.

So, yeah: it’s not just that I’m shy.

I suspect part of it is for the same reason that they want to blame diabetics for their illness- if they have that disease because of something they did or didn’t do, then you have some control over whether or not you will get that disease, and don’t have to think about yourself dealing with it. It also gives them some moral high ground- I’m better than you because you didn’t do what you need to do to avoid getting diabetes or depression, and I don’t have to feel any compassion for you, because you brought your problems on yourself.

Out of pure curiosity, is there a reason you’re having periods? Would it go away if you got on Depo and stopped having periods (or would the three months of intermittent bleeding at the beginning end up basically three months of this misery?) If you’re taking two packets back-to-back, why not more? That new pill, Seasonal, only causes four periods per year, but they say there’s no medical reason why it’s not safe to have even fewer than that. I guess it seems like you have a perfectly good reason to stop having periods altogether.

I’m just wondering because I think if I was you, from your description, I’d be doing everything short of ripping my ovaries out with my hands to avoid having another period. (If you do try that, you should probably wash your hands very thoroughly beforehand.)

I’m bipolar type II (hypomanic with little or no psychotic symptoms). These are my oldies but goldies:

  1. You can’t be bipolar because I have a friend who knows a guy who was bipolar and he walked around naked in the snow and thought he was Superman and would disappear for days on end…etc. (Hello…I have type II, not type I. Educate yourself before you speak.)

  2. You can’t be bipolar because you never get so depressed you can’t get out of bed. (Yes, well I happen to have major problems with hypomania, and hardly any with serious depression. That doesn’t mean I’m not bipolar.)

  3. Your meds will change who you are/suppress all emotions/are toxic to your body/are placebos made to reap profits for the pharmaceutical industry. (Thank you, doctor, when did you get your degree?)

  4. Now that you’re all better, why can’t you stop taking your meds? (First of all, I’ll never be “all better”, second, because if I stop, I’ll go back to my original state.)

  5. All you really need is exercise and/or a hobby. (While it’s true that these things are good for you, in no way are they going to treat bipolar disorder.)

  6. Well, you seem fine to me (That is because you’re not there when I stay up all night for the fourth night in a row cleaning the kitchen, rearranging the furniture, knitting an afghan and organizing my CD collection for the 3rd time that night. Or when I have rage flashes that are so bad I almost pass out. Or when I come home after work every day and sit on the couch and don’t move, for months on end.)

Or my favorite-“What on earth do you have to be depressed about!”

Your life can be wonderful and you can still be depressed.

Oh, what about, “Psychiatrists aren’t real doctors!” Yes, they are. They have MDs, just like any physician or surgeon.
As for it being “all in one’s head”-well, yeah. That’s the idea. :wink: A brain tumour is also “all in your head”, if you stop and think about it. :smiley:
(Oh, and I have referred to my Paxil as my “happy pill” as a joke. Sometimes for me, joking helps.)