I'm Tired of Having to Justify My Disability

I’m not so much disabled, I’m more phobic in a coupla ways. It makes me unable to speak. I can utter only a few words at a time. It’s very frustrating. (I know it seems wrong because I’m so verbal on the SD, I SEE you back there snickering:))
This inability to speak drives people crazy. Nice ones try to finish my sentences for me. Sometimes they’re right.
I used to carry a little notebook and write things. Now I do it on my phone or tablet.
My family and friends try to help.
I’m not justifying anything to anybody. If a person can’t handle it they can move on. I don’t need them.

I’m convinced more and more Bekkers, that you and I need to be “best-friends-next-door-to-each-other.”

Then we can go places together! You do the hearing, I’ll do the talking.

And we both can beat up anyone who argues with that arrangement!
~VOW

When I had the cast on my arm, people treated me like I was mentally disabled. I don’t know how putting a cast on my arm would make my IQ get lowered by about 80 - 100 points.

I’m in. I’ve said for years I need a good mouthpiece. Arm-in-Arm we might could achieve world domination!!

Waste not, want not. I’ll take her drugs, tyvm.:slight_smile:

People with disabilities deserve dignity and respect. In so many cases they do not receive it.

But there are situations, as Dinsdale points out, when the person with the disability is seeking an accommodation, benefits, etc. where there is a requirement to justify their position.

I recently ‘enjoyed’ a total knee replacement. I stagger around with a cane and nobody offers advice. I hang the red temporary disabled pass from my car mirror, park in a handicapped space, and nobody yells at me - maybe because my rural county is full of old and impaired folks - I’m lost in the sparse crowd. There goes another one!

Same here. When people would ask me what I did to my arm, I’d tell them and they’d mutter, “Dumbass…”

This was prompted in part by the need to undergo a periodic re-exam. A re-exam in which a single one-hour session with a government contractor who has never examined me before could be used as justification to revoke benefits, in spite of what actual US Government civilians and military medical personnel have been saying, mostly consistently, for the past two years.

One session, with someone I’ve never seen before, who is actually further removed from the government hierarchy than the people who have made the diagnosis and overseen treatment, the records to which the government already has full access to.

And some other things.

This is one of the things I have been worried about for my daughter. She’s autistic but I never felt that meant disabled until she started kindergarten. Thankfully, we haven’t run into too many problems. She is pretty smart and her teachers are recognizing her strengths. Unforntunately, she is pretty smart and good at masking her weaknesses. Her motor delay has made it so she can’t write independently at all yet. She needs a one-on-one para.

And now we get to let her struggle while we “collect data” to support the school hiring another person to be her para as they aren’t staffed to be able to provided one-on-one support yet. This is the part that sucks for everyone. She has a hard time when she’s frustrated and that leads to increased behaviors, including a really fun new one where she just runs out of the room to go for a walkabout in the wide wide world.

I truly understand that the school doesn’t have unlimited funds and needs to be able to make good financial decisions and can’t just hire people on a whim. But, in the past 30 school days, my daughter was able to get offsite(!!!) 5 times, and that’s even with all the current staff members giving her as close to one-on-one support as their schedules can muster. Dang school administrators.

That’s got to be scary for you as a parent!!!

I’m a completely, stressed out mess. I imagine it’s worse for her though. I have a keen awareness that I need to make sure I don’t make everything about me when it comes to her autism.

For me the scariest part of getting sick is the idea of losing a job with health insurance.

Then I have to start over at the bottom with no insurance and work my way back up again.

Hey, Dumbass, you need to have a better story then.

Try this: There was an apartment building on fire, a woman was leaning out the window of an upper floor screaming, “Save my baby, save my baby!” She drops the baby down to you but a sudden gust of wind blows her causing you to trip over a nearby trashcan that you didn’t notice because you were looking up. You caught the baby, unharmed despite getting injured yourself

You’re welcome, hero. :slight_smile:

I assume you and I would disagree on MANY aspects of VA bens (which it sounds as tho you are describing.)

Bummer. You want to receive the benefits, you have to follow the rules. You may not appreciate how terribly many folk adopt an attitude of “*I think I am disabled, so give me the benefits, and keep them coming until I die (or age into some other bens).”

You don’t want to go through the re-exam - fine. Give up the $! :smiley:

In reality, if you are continually receiving treatment, following drs’ orders, and nothing has dramatically changed for the better, your VA bens will continue. But you object to even having your case reviewed periodically? Boo-freaking-hoo!

I find it amusing, when you ask someone how they were injured, they very often start off by saying, “It was really stupid of me, but…” I’m no doctor, but my anecdotal experience is that relatively few people end up in casts or with stitches as a result of having done something particularly brilliant! :smiley:

My mom is elderly and has bad knees and back. So I usually have to push her around in a wheelchair when I take her to appointments and out in public. A lot of people address me when asking questions about her instead of her herself. They just assume because she is elderly and in a wheelchair that she must be senile or intellectually impaired. It’s really annoying.

I spent ten weeks in a cast after breaking my leg. The affected leg had to be non weight bearing for most of that time until I had had a second op. It took a while before I built the strength back up so I was still using a buggy in the supermarket for a while. There was a noticeable difference between people’s attitudes once I had no cast to indicate that I was “really one of us”, but temporarily impaired, rather than “one of them”.

I reject this line of argument. Note, I don’t say it’s not factually correct, only that I reject it as a response when someone says, “This is fucked up,” or words to that effect.

Yeah, I know that’s just the way it is. And I’m saying, “this is fucked up.” I don’t need you or anyone to remind me “that’s just the way it is.” I am very much aware of the present reality.

I’m just going to let this stand as a testament.

Why do you keep putting the scare quotes around disability and disabled?