My Alzheimer’s blog (wheretobud.blogspot.com) recorded a record number of hits today, and I just wanted to say “thank you”, to my Doper kids for making that happen.
Don’t know if this means anything, but as long as I have y’all in my life, I think I’ll be okay.
I just hope that I am doing enough to repay all this kindness.
chaco I’m just getting over a 72 hour EEG and haven’t been Doping lately, but I sent you a pm in which I wrote “no worries”.
I do have a sense of humor about this and I have to laugh every time I put something in the fridge that belongs elsewhere - such as in the garbage can!
Quasi, I may be a doper-come-lately who lurks more than she posts and posts oddly when she does, but I have been darned impressed by you both dealing with this issue and otherwise. Thank you for being a cool guy dealing with something so difficult and scary with so much grace.
I marked your blog and intend to pass it around. Alzheimer’s is a nasty bitch (can you say female dog in this forum?) of an illness and being able to read about it from a lucid patient’s perspective makes your blog a public service. Many patients don’t know what’s going on (sometimes because the doctors and family succesfully manage to delude them, often relatives delude themselves as well). I’m sorry that you’re going through this but glad that the bandage is only on top of your head and not over your eyes.
Stay well, Quasi. These don’t need to be kept in the fridge: {{{{{{{{{{}}}}}}}}}}
Finished up the 72 Hour EEG Friday morning and I was so glad to get those stickies off my head, y’all! There was also the matter of the glue she used to keep them on and the tape on top of that which had to be shampooed, conditioned and rinsed and then carefully combed out.
I don’t envy you ladies who have anything strand by strand done with your hair, and I was sooo miserable not being able to wash my hair or take anything but a sponge bath.
Next step is Emory University’s Wesley Woods Geriatric :eek: Center for memory testing. That is going to take a while (4 hours or so the first day), but it will give me a baseline point, letting me know exactly where I am on the Alzheimer’s Scale of Severity.
Despite feeling some trepidation, I am looking forward to this, because, dammit, I just need to know!
I thank all of you for the kind comments and for following the blog. Just keep in mind, you may see me blowing my top on that blog sometimes, but it’s pretty much all directed inward and I get over it very quickly.
I signed up to follow your blog, Quasi. I’ve been following your posts here on the Dope but haven’t said anything because I suck at the whole comforting, interpersonal thing. But I keep you in my thoughts.
The “hanging in” part is tough sometimes, but the best way I have found to deal with that is to come here and try to add a bit of comfort to someone else.
In that way, I think that facing this has actually been good for me.
I’m not as arrogant as I once was, and I now know that my time here is finite.
There’s all kinds of quotations I could use, but I just think that dealing with adversity with dignity is the key to facing it head-on, if that makes sense.
I appreciate everyone who visits the blog and encourage you to comment - even if you disagreee with me.