How Do Y'all Wanna Do This?

Miscellaneous and Personal Stuff I Must Share
1

Now that we all (well most of us) know that Quasi has Alzheimer Related Dementia, I’ve been thinking that y’all are thinking you need to “cut me some slack”, as it were.

I don’t want you to do that, though.

I feel that I’m a member here, and I ought to be held to the same standards and rules as everybody else. I don’t want anybody walking on egg-shells just on account of that disease.

Disagree with me, argue with me, and correct me just as you always have, okay?

One favor I’d like to ask of you, however: If I happen to answer somebody, and I wake up in the Pit, just tell me that in a post, if you would? Unless that violates the superflous post rule? I would really like to avoid a scene like we had 2 nights ago, and staying out of the pit is the way to do that, I reckon.

Another thing is inappropriateness. I’m likely to veer off course sometimes, and if it isn’t putting too much of a load on you mods, I’d apreciate it if you remove anything you fund questionable.

I will go on record right now as saying I will not question your decision, okay?

As much as I am able, I want to remain independent, but let’s face it, I think there may come a day when - just like offering your arm to walk a blind person across an intersection - I wll place my faith in y’all, so since I would like to stay here, could y’all make that provision for me?

So that’s it. If anyone has a better idea, I welcome it as I have always welcomed your advice. Y’all have really saved me some big bucks and a lot of heartache.

Thanks and please remember my blog and above all remember that…“I’m not crazy, I’m just a little impaired…”

Bill

2

Don’t stress about it man… we are all ok with you. :slight_smile:

(I for one will call you on being irrational if I am not doing the same thing)

3

I remember your original post when you thought you had Alzheimer’s. I didn’t know it was official now. This place is good for your brain. Stick around for your own sake, and for ours too.

4

Bill,

Remember how after what happened the other night, you had a friend in real life who could look at what you and others had written and then give you an unbiased opinion on everything that had taken place? Well perhaps you could find someone here that, if you need it, you could get the to serve the same purpose. You know, to do things like remind you of where you’re at or offer another point of view and this way it would be from someone you trust that you know has your best interests at heart.

I think we all feel that way about you and will step up to help in whatever way is necessary, but by picking someone specifically, it might make you rest a little easier. Just an idea. :slight_smile: And like Oregan sunshine said, take it easy. We’ll be with you every step of the way, 'cause you’re a strong one who is gonna kick this things ass.

hugs

Kemi~

5

Thank you, faithfool (I like Kemi better:))

Several people come to mind as I consider this great idea of yours, but that’s a hell of a lot to ask of someone, unless it could be worked out so that I would only call upon this person in times of * real* need. Maybe save what I want to say, and e-mail it to them?

That way I could avoid stuff like the other night, when I absolutely could not recogize the intent of what was written.

Basically, I just want to make sure that my friends (Y’all) aren’t hurt by my words.

I have a friend who also has early onset, and he said something to a customer that came out totally wrong. He told me he formed the sentcne in his head, but what was spoken was twisted so badly, his customer and co-workers who had overheard were astounded and Tom said later, he wasn’t aware he had done anything. He of course called the customer and aologized.

I’ll confer with Marley about this (in retrospect, I should have written him this in an e-mail. :() and get his input.

Kemi, thanks very much for that suggestion!

Bill

6

Then henceforth I shall be known to you as Kemi only. :slight_smile: And I hear you. I can’t imagine how rough this all must be for you. I have my own mental health issues, but what you’re going through breaks my heart. And I think speaking to Marley about it is a wonderful idea and he’ll probably have even more to add to it. But if you worried about burdening anyone with the task of helping you, I’d be glad to (if that’s what you’d prefer). It would be an honor and, in a small way, it would help me battle my own demons a tiny bit. So, you take care of you and like I’ve said before, if you need me, I’m here. No matter what.

Oh, and I saw you mention the ding thing somewhere else to let you know that what you said could be construed as inappropriate. Duly noted and if ever the case arises and I’m around, I will indeed bring the ding hammer down. We’ll definitely make this work however we have to.

Glad to help. You deserve it.

7

Are you sure of the diagnosis–could you possibly be having TIAs? My father in law has had a few and is having expressive aphasia. He knows what he wants to say, but has difficulty saying it. Don’t be afraid of posting here. I know, about this, I can speak for all here–hang in there, pal!

8

Hey hellpaso:slight_smile:

Yes, I know about TIA’s but my doc says there’s no evidence to support mini-strokes (his words) and I have already taken one battery of tests and am looking at psycho-neurological testing sometime in January, as well as another EEG - this one 72 hours with data collected from an EEG unit I will wear, and which will track my days.

As you know, it isn’t possible until an autopsy of the brain can be done to be absolutely certain, but I have a very smart neurologist who tells me he is 90% sure I have Alzheimer Related Dementia also known as Early Onset Alzheimer Disease.

He is treating me with Namenda and Exelon.

Thanks for your words and support

Bill

9

Well, the kind of stimulation you get here can only help. I’ve enjoyed your posts for years and I promise not to stop now!

10

I agree with the rest: keep Doping and discussing. And stay far, far away from aluminum cookware, television, and cardigan sweaters.

11

Hi Quasi,

I don’t want to treat you like half a Doper, and I don’t think anyone else does, so we’ll argue away with you any time. If you wind up in the Pit or if something seems ‘off,’ the mods will try to make sure you know. But we’d still need cooperation from other posters, so I hope the people reading this thread will be willing to do the same if necessary. I think it would be better to do this via PMs rather than posts, though.

You do your best to be mindful during this confusing time, and we’ll try to do the same.

12

Here’s an idea too, anytime we find a post of Quasi’s in the pit, we just report it, or PM faithfool about it and let you guys confer with Quasi. If the mods are aware of the problem before hand, they’ll know why the post is being reported. I too would not want you to leave Quasi, I may not post a lot, but I read a LOT of information on this board and your posts are more often than not quite good. I’d hate to see you go. But you fight this crappy disease, and you come out the winner. You’ve got a boatload of people here rooting for you man. Just hang in there.

13

Didn’t you already make that post two days ago ? :confused:

(Sorry, couldn’t resist. You have my sympathy for realz, Quasi. Alzheimer is a nasty bitch of a disease.)

14

Hang in there, Quasi. I think that the fact that you know you need a little extra help at times is good, and we’ll all be glad to try to help you keep from going off the rails.

Sounds like the mods are aware of your situation and willing to help out here, so I guess sending up the bat signal to them by hitting “report this post” is our best bet. Your idea to stay out of the Pit – and probably Great Debates as well – is also a good one.

15

I have a friend that is bipolar. She needs us to tell her when she is getting manic. However, when she is getting manic she doesn’t always believe us and tries to convince us she is not. It devolves into basically a “bitch you must chill!” scenario. OK, not that ugly but you get the idea.
That being said, if you are having an episode (I don’t really know what to call it) I wonder how likely you are to be rational at that point. So I was wondering if it would be helpful to make a little list for yourself of 10 - 20 doper names with the title “Trust these people” and leave it next to your computer. That way when someone on the list tells you to settle your grumpy ass down, you know it is coming from someone you should listen to, and not just some jackass messing around with you.

I hate this for you! I really hope the medicine works for a long time. I do enjoy your posts.

16

Everything y’all are saying makes a lot of sense to me, so reporting any of my “off-posts” to** Kemi **or Marley will be fine with me.

Also, the fact that we just now discussed this is going to hopefully “fix” this in my brain, so that it will “pop up” when I need it to.

That list you spoke of ShelliBean sounds like a great idea, though if I listed all the Dopers I trust, it would be more than 20 names long! :wink:

Great Debates, yeah, that one gets me into trouble a lot as well, Twicks, I guess there’s no individual banning me from those sections, is there?

Kobal2 :D, I have actually told the same joke to the same guy in my ER, just a day apart, so that isn’t as far-fetched as it sounds.

I also believe that in the past I may have started a thread about the same subject twice, and I think I even started a thread about that, asking “Have you ever re-posted the same thing twice?”

Well, at least i can still joke, right?

Thanks for all the help, y’all.:slight_smile:

Bill

17

You’re right on track Bill. Humor is always the best medicine. And without a doubt, if you need me to check stuff for you or anyone else thinks I should give him a holler to reign something back in or reconsider, just PM or email and we’ll get it done. :slight_smile:

18

Maybe you should change your signature to something like “yo, if this post seems ‘off’ to you, click here for more info,” with a link to this thread, or some other resource or description of your situation and your preferred handling of “incidents.”

19

Here you go, I think you dropped this :). Oh, you didn’t need it? I must have read you wrong!

20

Quasi-I agree with Cervaise. IMO, just having some sort of disclaimer on your posts would have gone a long way to temper the replies in that initial trainwreck. As I read that thread, I just kept saying to myself ‘Something isn’t right,’ but had no idea EOA was in play until the 2nd page, by which time you’d taken a lot of bullets which you might have been spared by an informed audience.

I’m not saying you’d have gotten different responses, probably just a lot less bile.

I read the pertinent posts in your blog, and it shows courage and dignity to offer the link with minimal commentary or justification. I wish you luck.