I can’t imagine what you’re going through Bearflag70 and I hope you stay strong during it. This is any parents worst nightmare.
How about “I give a hoot for Little Owl!”? I think the past tense also makes it sound like she’s gone. Present tense might also be a stronger trigger for people who see us wearing the t-shirt to ask what it’s about.
Regardless, I’m in and think you’re awesome, Chessic, for getting this going.
Hugs for Bearflag70, Mrs. Bearflag and for that lovely little Owl.
Such a beautiful, beautiful little girl and she looks SO happy.
This is just so sad - I’m so sorry for you, it’s just heartbreaking.
Thinking of you and your family…
I’m so sorry your family has to face this, Bearflag70. Another doper sitting here with tears running down her face.
Your instinct to enjoy your baby’s company and play with her are good ones, a source of happiness for you and her. I know from personal experience that it is important that she should feel your joy and comfort. Those moments will help you through whatever is to be.
She’s gorgeous. I’m so sorry.
These tshirts, will there be a link here at the dope?
Ok, this thread made me de-lurk for the first time in…um…years?
She is an absolutely gorgeous little baby. I’m a mom of a 5 month old boy, his name is Alex, and I can’t imagine…I can’t even imagine…
Please know that you, your wife, and Little Owl are in my thoughts and prayers.
I would love to buy a t-shirt, Chessic. Please let me (and the rest of us here) know when/how they’ll be available!
I too am so sorry to hear your news. I have signed up to your little owl’s Caringbridge page and will keep you in my heart as you go through this.
Slogan for your tee shirt:
“I’m smiling, you should too.”
Prayers for your family.
Tris
Prayers and hugs to your family.
I’ve peeked at this thread over and over again, and read as much as I could stand each time, and cried with/for you over and over again. If there were anything I could say that I thought would improve the situation, I would do so. Since I can’t…
{{{{{hugs}}}}}
I wish you joy in the moments that you will treasure with your family, and peace and acceptance for those moments that aren’t joyful.
My heart goes out to you, Bearflag. May you and MrsBearflag cherish every moment that you have with LittleOwl.
Oh, and I like the Whooo loves you? I do slogan.
Whooo loves you? I do!
We like that one.
Your daughter is beautiful. She really is
Keeping your family in my thoughts. Thank you for keeping us all updated.
From personal knowledge having an ill child puts stress on marriages so please take time out for each other as well. ~hugs~
Bearflag (or anybody else in the know), has a PayPal account been set up yet? I’m normally pretty loathe to donate to people hitting hard times on the SDMB, mostly because I’m normally in pretty dire straits myself!! 
But your little girl needs her folks beside her giving her cuddles, and not stressing about shit like paying the bills.
It only takes a little bit from a lot of people to make a difference. And I’m a bit flush this week so youse got lucky!! 
So, gimme the details.
Pretty much everything you need to send money is in this post. It’s a pretty easy process, but if you have any questions, feel free to post them here.
I like it better than FB for something like this, because all of the comments are contained to the “guestbook”, and all of the journaling/updates that you do are also together, and make it much easier to read through the history and/or print up at a later date, if you so choose. I know of far too many parents who have lost children to horrible illnesses (I also know many parents who have seen their children pull through), and they find that being able to print up the journal later gives them a great sense of peace, and they can also see that there was still joy to be found in the little things that they otherwise would have forgotten amongst all the heartache.
We will continue to pray for your family.
I don’t know if this will help in estimating, but I just sent out a box of 28 pieces of maternity clothes (including pants), and it weighed 14 lbs, and cost me $21 to send from Florida to California…parcel post. It was $40 to send it Priority…
She is a beautiful baby and has a beautiful and caring family and friends surrounding her.
You might not want to hear it, but you have had some good luck throughout this. You are so very lucky to have gotten the FSMA support so quickly and you are also so very lucky to get a diagnosis so quickly. I have a friend whose child was lost in the land of the undiagnosed for two years before they figured out what he has. (Technically, he still doesn’t have a diagnosis, just an unnamed “mitochondrial disorder”, but it really helped his mother that they could at least pin-point part of what his problem is.)
You are lucky your pediatrician also recognized and valued your concerns and sent you ASAP to a qualified specialist. I don’t know that many other parents and doctors would be so quick to realize that there really was a problem.
You have also educated yourselves very quickly and are facing the future straight on and are asking for help when you need it. That is a very brave thing to do.
Now, get that kid fitted for a SCUBA mask and put her in the tub!
We also went with caringbridge because not everyone has or wants Facebook. Also, you need an account to use Facebook but only a link is needed for caringbridge. I don’t want to be asking people to create FB accounts if they want to follow along.
We also decided not to solicit our personal Little Owl funds on caringbridge. It seems tacky. The donation link on caringbridge is a donation to caringbridge, not to us.
Also, thank you all again for everything. I can’t possibly thank everyone individually, as much as I would like to.