My baby girl has Spinal Muscular Atrophy (SMA)

Fingers crossed for your little Owl, sending all the mojo I can muster. Keep us posted.

Hoping for the best possible outcome.

My thoughts will be with you all day today too. You’ve got good vibes coming at your family from all over the world… Big hugs to you and gentle pats to baby-chan.

Getty is in surgery now (4:30 pm Pacific). It could go to maybe 6 pm. No real updates to speak of. Waiting anxiously.

We were pretty calm heading into it, but at the very moment you hand your child over to a stranger knowing all you can do is hope for the best, it hits you like a ton of bricks.

Lots of good wishes for a quick and successful surgery. Hugs for the whole family.

Hugs and best wishes for our baby girl Getty. Yes, she’s “ours” too. She’s got lots of aunts and uncles all over the world thinking about her today and everyday.

i hope she is in your arms soon.

Hugs and best wishes for success! Sending good thoughts and prayers your way.

Thinking of Miss Getty and sending good vibes your way.

Sending good wishes and prayers Getty’s direction.

Surgery is done!

SUCCESS!

Getty is resting comfortably. The BiPAP breathing machine is doing its job. Stats look good.

She is so beautiful! :stuck_out_tongue:

Thinking of you and your family, Bearflag70. Hold on, she’ll be with you soon.

ETA: Good news! I’m so pleased to hear that! Excuse me, I have something in my eye…

Hooray!

Glad to hear the good news. I’ve been through that and all I can say is I feel for ya. Hang tough.

That’s wonderful news! I’m so glad things went well, even with that rough beginning.

Such good news! Atta girl, Little Owl.

Wonderful news! I hope that the Little Owl does well with the new set-up and that her parents can get a better night’s sleep tonight. When can she leave the hospital and go home?

Thursday or Friday.

Yay on the successful surgery!! I’d bet the whole thing has been much harder on you parents than on her!

Do write some letters about the clusterfuck with the mask and formula - there is absolutely NO Excuse for that crap especially the mask. Hospital, can’t get the right mask?? Bullshit.

deep sigh of relief!

heal up little girl!