So, Dad was actually doing a little better than I expected when I saw him, despite my brother’s descriptions. It turns out that as his liver has begun to fail, the diuretics he was taking began screwing dramatically with his electrolyte and potassium levels – too little of the former and too much of the latter – so much that it was messing up his head, and putting him in danger of seizures.
One the doctors figured that out, they took him off the diuretics. When I got there Saturday, his speech was still somewhat slurred and difficult to understand, but apparently not as bad as it had been. He grasped for words now and then, but generally had his wits about him. By the time I left yesterday, though, he was speaking much more clearly and loudly, and was very much still the dad I know. Of course, the downside is that he immediately began retaining fluid in his abdomen which was very uncomfortable, and then his feet began swelling. Such is the balance we’re going to have to figure out as we go through this. He’s gotten pretty weak and gets tired very easily, though, which likely won’t get any better.
The time I spent with him was good. He got angry a few times and morose a couple times, and he freely admits he’s afraid of what’s going to happen. But mostly he was very frank about his his situation and quick to say what a good life he’s had and how thankful he is to have such a great family. (We are pretty great!;)) He’s struggling to come to terms with his impending death, which I can’t even imagine, yet in my opinion is doing so quite gracefully. We also shared as much “normal” time as possible, including a typically boisterous family dinner with my parents, brother, sister-in-law, and nieces, which was great.
I’m confident that he’s in very good hands, both in regard to his medical care and attention from local relatives (my SIL is a nurse/practitioner, and she’s been absolutely indespensible through all of this). We had an initial meeting with the home hospice care coordinators on Tuesday, and they’ll probably get started on that soon.
Of course it’s going to be hard, but somehow the past few days have been very comforting to me. Just being there for a while made me feel just a little bit less helpless, and I’m reassured that he’ll be made as comfortable as possible for whatever time he has left.
Sorry for the long post, but this is proving a good outlet for me. If anyone’s interested I’ll continue to post updates as warranted.