He probably has multiple myeloma, although we won’t know until after the biopsy he’s supposed to get today is analyzed. He’s currently hospitalized with acute kidney problems. He was supposed to be scanned to diagnose his back pain (which looked like myeloma) when the accompanying blood work prompted his doctor to tell him to get admitted via the emergency department.
Any advice, war stories, experiences, or just emotional support would be appreciated.
I’m so sorry you and your husband got such jolting health news. I don’t have any personal experience, but I’ll pass along something my cancer surgeon told me that was a big help: if you google the research on cancer, remember that research is proceeding so fast that even recently published studies (which typically began at least 5 years ago) are already outdated and tend to show worse outcomes. I found this to be true.
Your’e surrounded in spirit by people who care about you. I’m one of them.
I was diagnosed with multiple myeloma three years ago. According to my doctor, this disease is “treatable, but not curable”. In addition to daily medications, I have to go in once a month for injections. So far I have responded well to the treatments, to the point that I only have to see my doctor, for what so far have been routine follow-ups, every two months. I never had any kidney issues. The only time I was hospitalized was at the start when I had back surgery, because the disease had caused two spinal fractures. So, overall, not fun but there are lots of much worse diseases
Here to help in any way possible. You need only ask. I know so well the pain that attends an event that changes your life in an instant. You have my empathy, sorrow and best hopes for the situation you face, and may the outcome be the very best in the circumstances. Big hugs to you, @puzzlegal.
That’s a real stroke of bad luck. I’m sorry you both get to go through this. We’re all here for you both. As last as much as imaginary friends can be.
Having been the spouse of the guest of honor at a cancer diagnosis I’ll say the whirlwind of fear & confusion can be overwhelming at first. Reality will be better than that. Trust me.
I’ll also echo @nelliebly’s wise words. Stuff has been changing for the better very quickly in much of cancer care. Googling even professional sources of information can be an exercise in doomscrolling now-obsolete info. You do want to get well-informed. You don’t need to do that this week.