Neighbor with dementia. What should we do?

We live in a apartment building with a few units in it, and our immediate next-door neighbor has dementia. Her kids moved her in there about 6 months ago; she lives there by herself, but they do live somewhere in town. We didn’t know that she had any problems when she moved in (i.e. we saw them moving in, but the kids never said anything along the lines of “BTW, our mom’s mind is going, here’s our number if she gets into trouble.” I hardly ever see them (and I work at home, so I see a lot of people coming and going from our building).

It gradually dawned on us through a series of bizarre but mostly small and harmless encounters that she wasn’t quite all there–she asked us to take the trash out from the garage for her, then brought us a bag of trash from inside her house; she shouted “What did you take from upstairs?” at my boyfriend as he was biking away from the house; she said “Good morning” when it was nighttime; she called her cat by about 5 different names and claimed to have 6 cats in her house when she clearly only had one; etc.

We hear her calling her cat all the time, yelling “Kitty! Kitty!” outside and today, we heard her yelling again. I assumed it was the cat, but my boyfriend, who was sitting by the window in the office and could hear her clearly, said she was yelling at a person in the parking lot who wasn’t there.

We went down to talk to her. She was standing on the porch in a sweatshirt (it’s 25 degrees F outside, pretty chilly). She had been out there for a good 45 minutes, at least–I heard her start calling as I got into a weekly conference call for work and we went down shortly after I was done calling. She was gripping the porch railing and staring fixedly at an empty SUV in the parking lot, maybe 20 feet away, and said, in tears, that her family was in the car and that they were all leaving the country without her. “Don’t let them go! I don’t want them to go! They’re all leaving without me! Wait! Wait!” she was calling in hysterics. We both told her the car was empty and she looked at us incredulously. “But I just saw the woman there light a cigarette out the window!” We asked if we could call her son for her and she said she’d tried that all morning and the number had been disconnected because they were all leaving the country.

“Where are we? What is this place we live in?” she said in a panic. “What is this type of place called?”

“An apartment complex.”

“Does this place have a special name?”

We told her the name of the complex.

“Oh. Oh. OK.”

She heard the phone ringing inside and panicked. “I need to get that! Help me get inside!” She was so upset she couldn’t walk–she could only shuffle in tiny baby steps, gripping the porch railing. I’ve seen her walking more or less normally before, so it’s not a permanent condition. I tried to help her into her house to get the phone, but it stopped ringing before she got into the door. “I’m so scared,” she said. “I’m so scared,” and she started crying again. “Don’t let them leave!”

Eventually, we tag-teamed her back into the house by telling her one person would stand outside and make sure the car wouldn’t leave without her. She couldn’t remember her son’s number, but fortunately I found it taped to the fridge and we called him. He said, “Thanks for calling, I’ll call her right now” and called her on her house phone, and presumably talked her down.

“Is everything OK now? He told you everything was fine and nobody was leaving?” we asked.

“Yes, thank you, thank you,” she said to us. “Please don’t tell my son I made such a fool of myself.”

We went inside our house and called Adult Protective Services. They weren’t there, so I left a message.

I feel kind of guilty about this, because we haven’t talked to her son at all, and I feel like we should try to work things out with him before calling APS. But I’m not sure what I would gain by talking to her son–nor do I have any experience with what would be an acceptable solution to her living situation. So if he said “oh, it’s fine, we visit her every two days” I wouldn’t know if that was enough, or too little, and I wouldn’t want to be in charge of enforcing it. She just really doesn’t seem like she’s in any state to be living alone. I don’t want to go out there and find her dead body on the porch because she’s gotten hypothermia from standing out there in the middle of a Midwestern winter, trying to keep an empty car from leaving the parking lot, and I don’t want her to get confused inside her house and burn down our whole apartment building.

Does anyone have experience with this type of situation? Should I try to somehow work things out with her son before talking to APS? (They haven’t called back yet) Or should I figure that the situation is what it is, we’ve observed what it is for months, and if nothing is wrong then APS will just drop the case?

(Also, a way more minor issue–when we went inside to get her son’s phone number, we also noticed our doormat inside her house (it had gone missing months before) and I am wondering if she may have taken a UPS package of mine that went missing last month. Our neighbor on the other side had a package go missing too. Can/should I try to find out if she has them?)

I was a property manager for 17 years, and I can only tell you what I would do based on my professional experiences.

You are doing the right thing by calling APS. You have a valid point regrading her personal safety, she can easily become confused and wander outside without proper clothing. She could also leave pots unattended etc, etc, etc. You have noticed a clear slide in her abilities to care for herself.

I have had to enter into older tenant’s apartments with the Police because I haven’t seen them for a few days and they weren’t answering the door. I have discovered tenants unconcious or confused. It is scary and heart-breaking. But not as bad as finding someone dead, or having your building burn down because a tenant that you know was incapable of looking after themselves set fire to the apartment, but you didn’t want to be the busybody that got them sent away…

I think if you see her on a fairly good day (most people have good & bad ones) you should ask her if she got the package UPS “asked her to hold for you” or something.

We had a similar neighbor, not in the same building but 2 doors down, but she had no family at all except a sister in equally bad shape. We called APS but got NO help whatsoever. This is a big city and since these 2 ladies had lots of money the APS had a lot worse off people I guess. I hope the services in your area are better, and I think you did the right thing.

The fucker.

You need to talk to him and tell him exactly what’s been going on. His mother at the very least needs a hospital admission to rule out anything physical causing her confusion, paranoia, hallucinations and shuffling gait. At the most she needs permanent placement in a secure dementia unit - nothing less than that level of care is acceptable. Be sure to point out that she’s a danger to herself and others. If he’s not co-operative (and this is the same loon who recently moved his obviously demented mother into an apartment to live on her own, done quite likely in response to some previous issues) tell him you’ll be calling APS and if any crisis should occur in the meantime, you shall ask the police to intervene. The police can take her into protective custody if they feel that it is necessary to protect her or some-one else or prevent serious property damage.* You can talk about it in terms of it being a likely event and a very unsatisfactory solution which will result in distress for his mother.

  • that’s how it works in mah cuntree, mercan police feel free to correct

I would definitely NOT get involved w/ her family, it’s not your responsibility to manage the situation and you might very well regret trying. Hopefully APS will take the proper steps. If they don’t, you should probably call the police when you see that she’s in potential danger and try bugging APS a bit more. If nothing else works you might call your local politicians.
I’d also alert the building management of the situation and stress the point that she is very likely a danger to herself and other tenants.
Be prepared for the possibility that people may think you’re exaggerating the situation.

The son may not realize how bad things have gotten for her (she may have been much better when he moved her in there) and may be grateful to be told so he can get her the right help; on the other hand, he may get really mad at your “interference.” Nevertheless, from what you say, she isn’t able to live on her own and needs to be checked out to find out what exactly is going on. I would try to talk to the son, but don’t go in angry, go in concerned. Definitely follow up with APS, and with the building management; if she’s far enough gone, she could create a really dangerous situation for everybody, not just herself.

Update: I called APS and they said they would put someone on the case. Then I called her son and he turned out to know all about the situation, and said he appreciated me calling and said I should call again if we ran into any problems again with her. He said they noticed a real deterioration in her mental state in the last two weeks, and now they have her on the waiting list for a nursing home and are just trying to keep her out of trouble until she can be moved in there.

Which is good, because today, I found her sitting out on the porch in the freezing weather and she thought she had locked herself out of her apartment. I tried the door and it was open. She looked confused and asked me if I was sure that was where she lived. When I said yes, I was sure, she said “OK, I’ll just go inside there and get my keys so I can go home.”

Oh yeah, and my UPS package finally turned up. It wasn’t stolen, it just took a month to get here. Go figure.

Good old reliable UPS!
Sounds like things may work out well. Your call to APS may help accelerate the process. Good luck, to you and your neighbor lady.

I’m glad it sounds like the son at least isn’t being a jerk about this. Dementia can really surprise you about how it can get out of control, and I’m sure the comparatively “new” surroundings aren’t helping her situation.

My mother-in-law seems pretty with it (if a tad forgetful) until you take her out of her usual routine of home/church/local restaurants for dining out. She was put in the hospital after a massive heart attack - and was certain she was at home. She thought we were being very mean to her for making her sit down (so she wouldn’t set off the alarm) and for telling her not to pull at the itchy thing on her hand (the IVs). We kept explaining what had happened and it didn’t stick with her at all, though she seemed to know what happened when you explained it, because the news didn’t really surprise her - it just went in one ear and out the other. When she was moved to a room with a window she seemed to think she was in a hotel; they vacation a lot so that was a somewhat familiar event. We thought she’d be okay after this and went home for the night; when we returned the next day we learned she’d decided the previous night she was going to go home, and it took 4 people to restrain this mid-70s lady! She can remember events a few days or so after they happen, so she does remember her hospital stay, but not that first stressful day and night. Eventually she and my father-in-law are going to have to move into a different place rather than the huge multi-bedroom, multi-level house they’ve been in for decades, and I wonder if the stress of the new location will be worse on her than the risk of a fall down the stairs of their current house, etc.

It sounds like your neighbor really doesn’t recognize her apartment as “her place” at times. Hopefully she’ll be all right until she can be moved into more appropriate surroundings.

My gramma suffered from dementia for her last 5 years of life, and the transition from “confused but able to function” and “unsafe for herself and others” was similarly swift. I don’t envy her kids - it tore my dad up watching his mother deteriorate.

Thank you for watching out for your neighbor. The kindness you’re showing means more than you can know.

I was going to edit my original post and say that ringing the son is also a good idea because you may just find that he is aware and has nursing homes lined up. Of course, I was going to add a sarky “NOT.” on the end of that statement. I deal with way too many loon relatives way too often and ergo I have become somewhat suspicious, embittered and jaded. I should consider another job really.

Glad it seems to be working out for the best even though the best means the lucky winner gets a long stay in a nursing home.