I’m sorry for not replying to everyone individually. Typing on these portable devices is not my strong suit. I really kind of hate using them, but it’s what I have.
Went for mri’s, today. I have two broken vertebrae. No reason for it they just broke because of all the prednisone I took.
They put a fentanyl patch on me and they expect me to do therapy. Doesn’t seem smart. Two vertebrae already broke enough to hurt me and put enough pressure on my nerves to weaken me. Who knows what numbing me up and exercising me could lead to. Doesn’t seem like anything but a ‘hope for the best’ plan, if you can call it a plan.
Gonna lose my dog now. No one will take care of her for me. I can’t count the times I watched my sisters dog, or my stepsister’s dog, but I need someone to watch my dog once, and I hear crickets. Fuck it, at this rate the dog will be better off with someone who isn’t falling apart faster than they can put him back together.
I am truly sorry for you and your dog. That seems like kicking a guy when he’s down. If you are worried about your care don’t be afraid to speak up. Tell them your fears of more damage occuring. Speak out often and loud. Good luck.
Holy crap, sounds like you need better doctors and meds.
My brother’s got Crohns, he injects HUMIRA every month or so and he’s doing good, no unexplained broken vertebrae at least…I don’t know if you’re able to get that or if it would work for you but a quick look at prednisone makes it sound horrendous, there are a fair few other meds out there.
Also, depression is listed as an effect of prednisone and…I dunno, if I couldn’t move from a chair and got to hospital finding I had a broken back, I’d probably use more exclamation points at least, make sure you’re in your right mind before agreeing to any medical plans or just accepting the first option the doctor gives you.
Again, can’t reply to everyone. Thanks to those who offered to help help out with my dog
I was on it far too long. It’s was cheap and effective when I had no insurance. I’m supposed to be tapering off, but 40mg isn’t calming my colon, and my new GI at Vanderbilt hasn’t prescribed anything else. I’m supposed to taper off in anticipation of my upcoming colectomy, but instead my flare continues and I’m collecting new illnesses
Looks like I’m going into longterm rehab in the next few days. Had to sign my life away, I have to give them a month’s notice before checking out, they’re taking my monthly SSI check… I feel like I’m being involuntarily committed. I’ve never been in a situation where I couldn’t go home if I wanted.
My sister freaked out a little bit on me yesterday, she apologized today a d is working to find a place for my dog. Kind of a bad (terrifying) time for a freak out from my perspective, but it happened. Dunno how the dog situation will work when i’ll be gone a couple months, but we’ll see.
I don’t think the hospital has been giving me gluten-free food, as I’m bleeding worse now and my colon is really cramping. They’re working on it though, and at least they stopped with all the gravy…
WTF? They didnt know you needed gluten free? I am t1 diabetic, that would be like them not administering my insulin. I wouldn’t last a week. Holy-moley!
I feel so bad for you, **Face. **I wish I had helpful advice, but all I can really say is, I hope things will go better for you in the next little while.
Thanks, but I would not compare the seriousness of my issue with yours. NUTRITION & DIETARY looked like idiots when they couldn’t tell what gluten is. Everyone has smartphones, and Google will buy you. A clue in seconds.
Doggo is getting a few visits a day from stepsister and sister at my house now thanks to sister’s new attitude. We got her at the pound, she looked a mess, like a mixed breed hairless. We got some food into her, and a few months later, she turned into anAmerican Eskimo dog, about 20 lbs. Google it, she looks like every stock picture. Cute.
We think she was used in a puppy mill, she’s badly socialized–timid and aggressive out of fear. She has trouble with children and other pets. Mom’s had dementia and I’ve had 8operations in the past 4 years, so I haven had the time or strength to work with her like I should. Have long hoped that, when the day came that I couldn’t care for Mom safely anymore and she went to a home, and/or I got a little better, Fuzz and I would have more time together and I’d be able to work with her more, rather than just keep her safe. Just always saw she and I taking this next step together.
Doctor wants me to do PT on broken vertebrae. Hope that works out better than it sounds like it will, because I will do the work.
Still disturbed and weirded out by this arrangement I’m entering into wrt the rehab center… But I have no choice, I can’t go home yet.
IDK I think if you are bleeding and cramping with broken vertebrae it’s fairly serious. You are obviously trying to get your colon under control if you are seeking surgery for it. My diabetes is under control, but I could see it going south if my dietary and insulin needs aren’t met. You are in a crisis IMO. I hope it gets better soon. Keep on telling them what you need, someone is sure to hear. Keep us posted.
Yeah, the colon, and the prednisone are causing collateral damage–swollen, weeping legs, blood clots, broken vertebrae, cellulitis, and in the past, pulmonary embolism. Am very anxious to get my colectomy, to get rid of the diseased tissue. Gonna try to get them to talk about this and how well address it asap. If I have to stay in rehab longer than I need to fix my vertebrae and cellulitis wound, vthen maybe we can get some traction on the colectomy. Here’s hoping anyway.
You need to get a lawyer, someone to both advocate for you and possibly to sue for malpractice and/or go after the insurance company because it doesn’t sound like you are being properly cared for.
OK. Turns out that woman that woke me up from a sound sleep early in my rehab stay, and was talking about some strange thing where they’d take my monthly SSI check, I had to stay for a lengthy and non-health-related amount of time, and couldn’t sign myself out with less than a months notice without a penalty of losing my insurance and my SSI, was actually telling me about my only insurance option to stay. It took half a day of thinking on it to remember that it even happened. Essentially I wouldn’t be in rehab, I’d be in a nursing home. That didn’t sound any better asleep than it does now, but I was less able to grasp the significance of the conversation.
Considering that insurance was the only thing she and I discussed for the next ten days or so, she kinda soft-pedaled it. For example, as we closed on the day where I had to go home, you’d think she might say something like, “Remember that option you didn’t like when you were snoring? Well, it’s looking like your only option, maybe we should revisit that.”
Dunno where that leaves me legally.
I’m still in the hospital. The fentanyl patch they gave me seems to have let me use my legs better, despite my deep misgivings. It’s the weekend so I don’t have PT, but my exercises are so much easier that I wonder if I can’t stand on my oen now. If so, I’ll be in the damned nursing home for a month or more while I could be at home. Maybe I could swing a cheap used laptop if my SSI backpay comes through, so I can kill time better and play some old valve games with my friends occasionally.
Gonna consult with a back guy on Monday to see if I need some “cement” injected to reinforce my broken vertebrae. After that, either they’ll inject me and I’ll recover a couple days, or they won’t and it’s off to nursing home jail. Depending on what shakes out with my would-be colectomy, I might be there, or in the hospital, on-and-off for the next three months.
I don’t think there is anything questionable going on, just weird and shitty insurance. I wonder if someone who owned a lot of nursing homes didn’t make a nice contribution to someones campaign.