So sorry. Call your ostomy doctor and get in earlier or on a call list for a cancellation. Chin up. Here’s hoping.
Thanks for the responses and suggestions. Not yet ready to pass my surgery along to a student, but it’s another option if it comes to that. Gonna talk to my PCP again Monday. She’s been a great help and advocate for me in the past, so I’ll start with her again and see where that goes.
Still reading along and sending Slack your way, Face.
Thanks Bo, I appreciate you sending something useful my way 
I have an appointment with a new surgeon on Dec 3rd. Yale educated, the former Chief of Staff at a Nashville hospital. . .sounds really good so far. Hope he’ll operate on me, or at least see me before he gives up on me.
Looks like I’m in here until at least January. Crap. This Tuesday marks six months since I woke up and couldn’t walk, and I called the ambulance.
Going to be thinking good thoughts for you on Dec. 3. You are doing an amazing job of hanging in there and not giving up.
I hope this surgeon gives you good news!
Today is my first day home.
Surgeon did not give me good news. Said my bones were too bad to operate on, said putting hardware on my spine would be like nailing jello to a board. Also was worried about operating on me with my history of blood clots. Still in a wheelchair, but walking a few steps here and there.My back hurts when I stand. Hope to one day get well enough to wank into a store and use one of those motorized carts and do my own shopping.
Spent ten hours setting up my desktop. My sister and her husband moved all my stuff into a storage facility, then two weeks later had to move it all into my new place. They didn’t really understand how to set up my computer, I’m just glad they did a decent job of taking it down and moving it.
The new place has bugs. Killed five and one got away since coming home around noon. Sister says they are roaches. Can’t tell myself, my vision is very poor now. I think I have cataracts. Prednisone can cause them, just like it caused my brittle/broken bones. I don’t really want to go to bed, as I don’t really want the bugs to crawl on me, whatever they are.
Tell your landlord about the bugs. So sorry about your back surgery. Couldn’t be worse news. For God’s sake don’t fall. Be very careful. I worry about you.
Sorry to hear about your very bad news.
A few people here may want to contribute a few dollars. You mentioned the problems with getting additional money with SSI and having to declare it. An alternative I was thinking about was gift cards. For example suppose you shop at Amazon. One might buy a $25, $50… whatever Amazon.com eGift Card and just enter your email address (which you list in your profile).
Thoughts?
I would donate. Someone should set it up.
Oh c’MON! One just crawled up my mousing hand. Forget sleeping, they’re crawling on me when I’m awake. On the other hand, might as well sleep if that’s gonna happen anyway.
Thanks guys, I appreciate it. If I think of anything I need, I’ll let you guys know.
Definitely complain to the landlord about the bugs.
Apply for all of the help you can. After my problems, I’m now getting SNAP and a free medical plan from Pennsylvania, and SSDI from the federal level. The health coverage is better than the one I was paying for.
I’m bad off but you sound much worse so you should be eligible for at least what I’m getting, depending on your state.
Yeah; that’s really unacceptable.
You’re one tough motherfucker, you know that Face?
Please, please let me send you an Amazon e-gift card so you can at least order some roach motels!
(bolding mine)
I think that’s asking for a bit too much.
Sincerely – all the best to you.
+1
Thanks again, as always. I had an idea I was gonna be up against this, so I started this thread a couple weeks back.
Maybe it was all the spraying they’ve been doing that got them all stirred up. I haven’t seen a single bug since I woke up at 10AM. Weird. I’ve got some growth inhibitor on order, and a couple of poison baits that you’re supposed to use in rotation. Between that and the spraying the landlord has been doing, maybe we can knock these things down.
I appreciate the offers of help. I’m doing OK for now. I’m not tough, I’m just trying to get by as best I can in a fairly rough period.
JeffB, holy hell, what a typo! Wish I could blame it on some autocorrect accident, but I think we all know it was my fat fingers along with some poorly hidden exhibitionist tendencies.
I better hit the road. Getting pretty tired. Lotta work getting the new place in order, and I’m still not done.
It’s been a couple months since you last posted in this thread: how are you doing now?
Best wishes!
Thanks for bumping. I hope you’re doing ok, Face!
Has he posted anywhere on the board lately?