This is a very long story. I have searched like crazy and since I’m a nursing student I have a lot of books that I have been through. I would like to hear from anyone who has heard of something like this.
A week ago my daughter threw up. She had a couple of loose BMs. She wasn’t as active and didn’t have much appetite. But it wasn’t anything that alarmed me at this point. Then for a few days this continued, except she didn’t vomit again until Tuesday morning about 2am.
I took her to the pediatrician that day and he diagnosed her as having a little stomach virus that would go away in a few days max.
She did seem to be getting a little better, she was still a little tired, but no more vomiting and no loose BMs, but I could tell she still wasn’t up to par.
Thursday morning I looked in the toilet when she went pee and there was a brown color liquid in the bottom of the toilet. I thought ‘oh no, the diarrhea is back’. That night, I was getting ready to give her a bath and decided to watch her pee this time. The stream that came out was completely brown. I took her to the ER right then. They did a UA with a catheter (terrible terrible experience) and then as soon as they saw the urine in the tube they immediately thought it was a UTI. So they put in an IV right away while we waited for the results from the lab. And they also did a CBC. We were totally surprised to hear that there is no infection, no dehydration. The only thing ‘off’ in the UA was that there were red blood cells in the urine. (2500 RBCs). And the CBC was ‘pristene’. The doctor in the ER spoke to the pediatrician that we saw a few days before. They sent us home and I was told that the doctor would call me the next day.
The same day that the urine changed I noticed that she was having a strange reaction on her skin. When she got scraped or scratched (very minor), a large what I would call a ‘whelp’ would form and then disappear in about an hour. This happened several times through out the day before I realized the urine was brown. One time we were walking, bare foot into the house (we have concrete steps) and she kind of ‘stubbed’ the side of her foot on the step. A huge red bleb formed that eventually faded a little while later. And a few other skin type things happened this day that concerned me. I told them this at the ER but they said, ‘yeah, i get that all the time’. I tried to explain that this was NEW, but I don’t think they knew what to think about it.
The ped called and basically asked me a lot of questions and stuff. I told him about the weird skin thing too (which continued basically thursday and friday and is better today). He wanted me to make an appointment with him in the coming week (appointment is this tuesday). And he wanted me to go to the clinic and pick up some urine collection equipment so that I could at some point over the weekend, get another UA and drop it off at the lab. So, Friday I picked up the equipment. Later that day her urine turned bright red like koolaid. I was and still am just shocked. I took that to the lab and then called the doctor at home and let him know. He called me back and said that there is NO protein in the urine and there of course are still RBCs in it, but the number had decreased significantly to 342…even thought the urine is RED now. Starting on Friday she was pretty much back to her normal self. And today she is even better. BMs are solid now, she has a good appetite, is active as usual. No more strange skin things happening. But her pee is bright red.
Obviously, I am very concerned. I have never heard of a healthy person having blood like this in their urine. The pediatrician seems to be concerned too. He has offered the following as a possible cause (although he admits he really isn’t sure)…
<hopefully, I’ll get this right>
She had the stomach virus earlier in the week. Her body is overreacting to the antibodies that her body is making against the virus, which caused an inflammatory reaction in the skin and kidney. <Is this what you would describe as an autoimmune response?> He says this could last for a long time (he mentioned months). He said we would need to follow this closely and for a LONG time, even after it is resolved. And that as long as she is not spilling protein into her urine and not getting anemic and is feeling ok, then he feels ok about this. He mentioned that he wants to do a blood test to check and see if she has had a strep infection in the recent past.
I am not sure if this is even plausible (body over reacting to the antibodies). It sounds like it would be but I can’t really find anything about this happening. There are other things that I am wondering about. Why when her urine was brown were there more RBCs than now when it is bright red? And to me, brown urine means old blood but now with the red…is there active bleeding? The ped said that the kidney takes a long time to heal. He feels that whatever damage is done to the kidney, it is done, and on its way to healing…but it takes a long time.
I believe him but I am just trying to grasp why this is happening to my little girl. Also I want to know why her body would have a response to the antibodies like this, is that a common thing to happen?
There has been no trauma and there are no autoimmune diseases in our families.
On a side note, I’ve mentioned before. My husband is in Iraq now. He should be home in about 2 months. I don’t really have anyone to bounce ideas off right now. I am supposed to start my very last semester in a bachelor of nursing program this monday. I am at a loss. I am of course concerned about my daughter but I have to face the fact that I need to go to class! I am off on Tuesday (the day of her appointment) because this is the first week, but by next week I will be busy every day. I am wondering if I need to drop because I just can’t be missing a lot of class. I did pay my tuition this week and I could get it back if I had to drop (which I would HATE HATE HATE to do). But would hate it more if my little girl wasn’t being cared for. No, I don’t have family or people around that I know could take care of her. I will say that I talked to the doc about this and he said that there is no reason that she can’t go to the daycare. And like I said he seems to think (hope) this is going to resolve on its own. I just can’t see, first of all, that I can leave her with the daycare while she has this terrible bloody urine. And secondly, I highly doubt that they would feel comfortable watching her. I mean, every time I see this pee, I am saying…OH MY GOD. It just amazes me and it is very scary.
I need Doper help, if anyone has any input I’ll gladly take any info I can get my hands on. I hope this isn’t too long or against the rules. I’m a newby as a poster but an older lurker.