Four years ago, my little twin sisters, Lauren and Bethany, were diagnosed with autism. I’m nineteen now; they’re six and a half. This has changed my life completely, and will alter it forever. For the better? Yeah, I think so.
It’s one of those things that you just can’t imagine happening to yourself. You think you’d have a nervous breakdown, or just die. Funny the way it happens, though. It comes on so quietly that you barely notice it. By the time you’ve got the diagnosis, you know these kids. They belong to you. They’re not some scary, crazy strangers suddenly thrust upon your family. They’re your sisters; you understand them, you adore them. In this way, it’s much more bearable than it would seem.
Yeah, life is difficult with autistic kids. And yes, my life is going to be vastly different than I had planned. I’m restructuring my future around financial solidarity rather than the very non-lucrative science I had been planning on. I’ll need to help my parents with these girls. I want them to have a good life, with everything they need. It’s not going to be easy, but I can deal with it, because it comes on slowly, quietly.
Some of the things I used to take for granted, before Lauren and Bethany:
[li]Going on vacations–can’t do that now.[/li][li]Being able to have a house with a nice, decorated interior, where everything doesn’t have to be nailed down, unbreakable, and washable.[/li][li]Having a keyboard that isn’t always sticky[/li][li]Going to restaurants[/li][li]Going shopping whenever (for us, it’s only if there’s an immediate family member available to babysit)[/li][li]Being able to invite people to my house[/li][li]Not being constantly terrified that one of the kids is going to escape (from the house, from the playground, from the immediate area)[/li][li]Not having to explain to strangers why my six year old sister just stole their kid’s milkshake[/li][li]Not having to explain to mall security guards why my six year old sister is screaming at the top of her lungs as I try to drag her out to the car[/li][li]Not having to pray, pray every night before I go to bed that there isn’t a melted popsicle or an emptied can of pop, or worse, between the sheets. If the sheets are still there.[/li]
Lots more, too. It’s a trial, but it’s all worth it when you see their smiles, and hear their laughs, and understand that “autism” doesn’t at all mean “cold and remote and subhuman.”
Parents, cherish your little kids’ talking. Yeah, they go on, and on, and on, but what I wouldn’t give to hear Lauren and Bethany do the same.
Oh, and NM–yet another great thread.