My thoughts are with you.
And just so’s you know I’m willing to back you up on the duel thing if you need it.
You have my and my family’s best wishes solidly behind you. I don’t pray, but I’ll pray for babyberry.
How long had he been going through the excessive number of diapers before the OP? A day? A week? just hoping to have one of those little creatures of my own someday and trying to find out more about them
strangelove find a parenting board or read a book or something but this thread isn’t the one to ask that question.
inkleberry are they talking about perioventricular malacia with the white matter? My older son has that - it was found when he was 10 and we did an MRI. He was 42 weeks gestation and it’s been really interesting to hear various doctors opinions on whether it’s an issue or not. My kid does have issues but he is also highly intelligent and it’s debatable whether the white matter has affected him at all.
And it’s possible that the hypoxic event happened prior to birth. Sending you energy and hope for a good outcome. This parenting gig truly sucks when things depart drastically from the norm.
Just to say that you are in our thoughts, too. Keep strong, and keep as rested as you can.
Hugs to Babyberry…
Inkleberry, you must be an emotional mess right now, but you’re handling it with humor (which is probably how I would do it); that means you’ve found a coping mechanism, which is a good thing.
I’ll continue praying that the docs figure out what the problem is with the baby, and that it’s nothing too serious.
Prayers and love to the Berry family.
Ouch. inkleberry, I’ll be thinking good thoughts for you.
metabolic? Oh hon …
I don’t know about metabolic, but have them test for everything - a friend’s child was first diagnosed with MLDS, and it turned out to be a late onset of Krabbe’s … he’s had a cord blood transplant and so far so good.
you can find me via my profile if I can send information your way.
Inkleberry, I just wanted to let you know I’ve been following this thread and my heart sunk at your latest news.
After having two perfectly healthy children, my last child had potentially very serious problems, including abnormalities with his white matter. I dealt with a lot of emotional issues over his problems. One of them was the guilt I felt that I even was upset about it. Aren’t parents supposed to accept their child for how they are and not want or expect them to be perfect? That’s what I thought, and I beat myself up for wanting a perfect baby. I worked through it (fortunately I was already in counseling while this was going on) and today 5 years later, we’re still dealing with some minor disabilities. However, the child is extremely intelligent, charming, personable, loving, and “normal” by outside observation.
I’m thinking of you and your family. Big props to you for listening to your instinct and taking him to the ER.
I’m praying for Babyberry, inkleberry. Truly, truly sorry to hear about this. My prayers are with your whole family. Good vibes, thoughts and prayers are coming from my neck of the woods.
Bullshit. get off of your arrogant high horse, I’ll bet you Ink will be the first to say ask all of the questions you want, it’s better to know than guess.
Inkleberry, everyone here in the Weird-North household is pulling for you HARD, especially Jimmy (7 weeks old on Tuesday) and his terrified father who can’t even imagine going through what you guys are dealing with. I’ve kept my father (the pediatrician) updated on your situation (mostly because I rely on dad for expertises in medical matters), and he asked me “Where are they?” I looked and said 'Well, they went to Children’s Hospital, they live in, let’s see, Hayward Ca, so it must be in San Fran." His response was “Thank God. They’ve got top notch docs there, absolutely top notch”, so take heart, you’ve got the best on the case. Please keep us updated and know if the love, will and prayers of strangers count, your little guy will be home, happy and healthy before you know it.
He has been going through an enormous number of diapers since right after birth. And they’ve been steadily increasing. :eek: But we figured it was something that might change at about 6 weeks when the digestive system settles down a bit. Once we noticed he was only pooing twice a day (as opposed to 8) but still peeing so much, we knew something was not right. Very not right.
Don’t compare any minihumans to mine. Mine is an odd duck.
Agreed. “Stupid” or “offensive” questions sometimes actually help because they uncover things that may have been left out.
Thank you. 
We are at Children’s Hospital of Oakland, BTW.
My thoughts are with you, Inkleberry, and with your family.
As for the worry, try to think of it this way; you did the best thing you could have done - you took him to a doctor when you suspected something was up. He’s been taken care of by docs since nearly day one of this mystery illness/condition; that’s the best thing for him.
Also remember this anecdote if your little one receives a scary-sounding prognosis or if you consider getting a second opinion: When I was born with Spina Bifida, my parents were given a grim prognosis; they were told that it would be not at all surprising for me to be severely mentally disabled or semi-comatose. By the time I was ready for pre-school, however, my neurologist said that tests indicated that I had a higher than average level of intelligence - quite a switch, you could say.
I’m not telling you to distrust doctors or to shop around until you get a prognosis that you like - docs go through all of that training for a reason and generally know what they’re talking about (that seems to be particularly true of the docs at the hospital at which your baby’s being treated). I’m telling you that, in my experience, prognoses *can * turn out to be wrong. Listen to what your son’s docs tell you, but don’t ever despair and don’t hesitate to get another opinion if ever your instinct tells you to.
Good luck!
Dave, when was your last stint in a hospital terrified out of your wits with a sick baby/child? Have you personally ever done it? If you have and you’d be fine with answering basic parenting questions at a time like that, then you’re a better person than I am.
My intention was to look after Inkleberry. The last thing I’d want to be doing is answering questions which are easy to google.
Babyberry and the entire inkleberry family are in my prayers. I’m so glad you took your fears seriously.
My thoughts also go out to the Berrys. Positive energy to you all.
Prayers, Love, and Light for your baby. Please keep us updated.
Thank you to everyone who has been pulling and praying for us. We really appreciate it.
I am exhausted, so this will be the very brief update, and a better one will happen later.
Cardiologist says baby berry has a benign heart murmur often heard in infants. Should clear up within a few months on it’s own as the heart gets bigger.
Neurologist says pediatrician full of crap, but we need to run MRI to cover our asses. Baby berry believed to be normal neurologically at this time, but we remain cautiously guarded until all tests are back in. MRI will be done outpatient within a few weeks.
Endocrinologist wants follow up after all results are in just to check base. Wants me to be tested for celiac disease based on my history, and if I am postive, test the baby as well. Fills me with grrrrrrr as I have successfully avoided this test for several years now. I do not wish for intestine snipping. But fine, I go. And write something snarky in the pit afterwards. Grrrrr.
Baby on different antibiotics now because the first kind gave him the dreaded mudd-butt. Baby has been nicknamed Cottonwood Muddbutt, but you are best not asking why. No really, you don’t want this answer.
My antibiotics for the charming UTI I developed sleeping in my jeans on the hot hospital lounge couch have given me intestinal cramps. :eek: Again, I say grrrrr.
We are (hopefully) going home tomorrow. 