inkleberry, thank you for keeping us updated! So, do they really think all the excessive diapers are the result of an infection? I hope it’s nothing more serious than that.
It kinda sucks that you have to have that test, but I’ll go into mother mode now, and poing out that [lecturing hat on] It doesn’t do any good to put these things off![lecturing hat off].
Poor baby, poor you.
Look after him and yourself, my thoughts and prayers are with you.
I know it’s so hard when everyone tells you all kinds of stuff, but I’d trust your Neurologist (they’re obssesive people, if he doesn’t seem overly concerned, you shouldn’t be). Try to wait for the MRI, and don’t panic.
This type of gut flora replacement works like a charm for some people on antibiotics.
If the neurologist says the paediatrician is wrong, you can be pretty sure that the neurologist is right because a large part of medical practice is avoiding litigation. He would only state such an opinion if he were certain that he was right.
Nearly 1% of people have celiac disease. I gather from your comment “Fills me with grrrrrrr as I have successfully avoided this test for several years now” that you have shown symptoms. Well do the other test - act as though you have it, go on a gluten free diet and see if the symptoms disappear. It won’t be hard to keep an infant on a celiac diet.
My goodness! What a rollercoaster. Still, much better news today than yesterday. I’ll keep the prayers coming, just in case it’s helping any. (I’ve also told several IRL friends, and we’re all praying together, so there’s quite a wallop of good vibes headed your way from Chicagoland, my friend!)
Best of luck from our family to yours. I think I will go hug my kids again.
That’s so scary to go though all that. Waiting and not knowing is the worst, and babies are especially hard since they can’t tell you what’s wrong. They do have a way of suprising you with their spirit in recovery though! Hopefully you will have a real diagnosis soon and it will be a manageable one. Our prayers are with you.
I’m so sorry for your loss. Hopefully your next pediatrician won’t have a desire to needlessly scare you shitless.
Time to get that baby home for a good snuggling!
-lv
You are all kept in the hearts, thoughts and prayers of the Grizz household.
**inkleberry, I apologize. If my unorthodox advice icaused you distress in any way, I’m truly sorry. I hope & pray all works out OK for you all **
I read the OP and probably the first 1/2 dozen posts, got distracted and posted. Mea Culpa. The only reason I posted to the thread was because I went through a very similar incident with my 2nd daughter a little over 7 years ago. I heard her 5 week old’s screams as they gave her a spinal tap (because they don’t allow parents in the room). I held her hand as they squeezed her between a cold table and some machine with radioactive isotopes. A week later, after the 3 of us were released from the hospital, the specialists and team of Dr.s still had no idea what caused her original symptoms and wrote it off as a virus. That experience went through my head as I did the math:
My unprofessional non-medical specialist hunch was: 10 waking hours/22 diapers = Too much liquid (formula) and too many diaper checks/changes. I posted that assuming all parents know if something doesn’t seem right, call the pediatrician - or get thee to an Emergency room.
Chiming in to agree with don’t ask. Are you eating good solid food with the antibiotics? Some of them are rough on the stomach. Also, make sure you can have dairy/iron with them too. Some pharmacies won’t tell you unprompted. (I found out the hard way when being treated for an ear infection, puked my guts out because I took my medicine with milk.) For now, drink cranberry juice if you can stomach it. If not, get some cranberry capsules and down them. It is good for urinary tract health, and will help flush out your system. DON’T stop the antibiotics until they are all done though, you don’t want the UTI to come back. That’s my personal experience with UTIs, although IANAD.
Yogurt is also good for replacing the beneficial digestive tract flora, if you like it. Just make certain it’s “live, active culture” yogurt. It’s not uncommon to develop a yeast infection after a course of antibiotics, especially if it’s treating a UTI, so yogurt or those capsules are a good idea.
I’m still praying for you all, that you don’t completely fray before this is done, and that all turns out well. Is there any way you can “take a vacation” when this ordeal is done? Can you have your mother or sister come over and help you out, so you can rest, or would that be more stress?
Geez…how horrible.
Tons of good vibes headed your way from the not too far away South Bay.
(Hey, that rhymes!)
{{{{{{{berryfamily}}}}}}}
Getting here a little late, but I’m keeping you and babyberry in my thoughts and prayers, inkleberry. We went through our own minorscare with TeaDaughter last month, and I can just imagine how difficult this has been for you all. I bid you peace.
Are you nursing baby inkleberry? If so, and you are on antibiotics, they are excreted through your breast milk and going right to him on top of what he’s on. Make sure the baby’s doctors know, if that’s the case.
We are home. 
Baby still needs an MRI, appointments with the endocrinologist, neurologist, and pediatrician, and a VCG test. The VCG test looks to see if his bladder is sending urine back to the kidneys when it contracts, thus causing kidney infections.
The 22+ diapers/day were because he was drinking a lot to try and flush his system and also having bladder problems, which meant he peed more frequently and the urine would burn, causing him to scream. :eek: It’s very weird to us that we now have to check his diapers, because we have never had to before. :smack: But now he doesn’t cry when he pees.
He’s on amoxicillan. I am on macrobid. I am taking much cranberry in many forms. Yes, I breastfeed, though not exclusively. The doctor knows I am on antibiotics and has OK’d breastfeeding while on them.
He’s had a bath.
We are now just trying to chill for tonight and watch the Blues Brothers. 
Thanks to everyone for their support and good wishes. We really appreciate it.
We took pictures of the whole adventure, including one of the happiest baby EVER.
I’m so sorry this is happening to your little guy, and to you. You’re all in my prayers. Strength and freedom from fear, along with health for the little one.
And of course I don’t know anything about your health, or why you might be tested for celiac disease, but I recently needed to have that done and I’m pretty sure it was just a blood test. Unless they missed something and didn’t actually do that one.
Anyway, good wishes and prayers for all of you through all the ramifications, and please try to rest some.
The endocrinologist recommends it based on our family medical history plus symptoms I have. The test is a blood test, but if it is positive or inconclusive, I need to be scoped. This fills me with grrrrrrrrr. I vote if I ignore it, it’ll go away. I loves the bread. I do not want it to become my enemy. The fact that I fart like a trucker when I eat wheat, but not when I don’t is surely only a coincidence.
Well, we’ll keep hoping for negative, then.
Glad to hear you’re home and that things are not as bad as they seemed at first! Also, man, aren’t those scalp IVs the worst, when you first see them? We grew to love Whatsit Jr.'s, though, because it was the only one he wouldn’t immediately try to yank out. And, we kept the pictures of it to scare people with when we needed extra sympathy. (“LOOK! My baby! With a NEEDLE in his HEAD!”)
Hi, glad things are better for now. Your babe is cute!
What was that thing stuck to his head in photo 4?
Poor lad!
I’m sure Inkleberry will correct me if I’m wrong, but I’m pretty sure that was the baby’s scalp IV.
Inkleberry, your baby is adorable, and I will continue to hope all kinds of good things for you guys (not to imply that I wouldn’t do that if your baby was the ugliest thing I’d ever seen; I’d keep hoping good things under any circumstances. It just so happens that the baby is adorable. OK, I’m rambling now. . .)
