Sigh. We live in a strange world. I hear you on the agoraphobic thing - me, too. I just can’t believe that people can go nearly homeless in a snap. It’s just not right.
clearing out PM box.
Everyone has such good advice. I don’t know that I could add anything useful as far as Jaceson goes. I do know how hard you’ve worked on the agoraphobia. I still struggle, too, though I’m much better than I was a few years ago. I know how easy it is to let yourself slip back into that. Please do what you can to take care of yourself too. As always, you and Jaceson are in my prayers.
No one should be homeless. That sucks. :mad:
Thank you Khadaji. I always know that you keep us in your thoughts. It’s much appreciated.
Becky, I will indeed check on the Medicaid again. I’m going to print this thread out, highlight what I need and make that notebook, like has been suggested. It can only help me to stay more organized (since I’m feeling pretty scattered right now) and that’s a good thing.
Well, as to toxin build-up, that’s supposedly what the Generlac is for. As long as he takes it, he seems good. It’s only when he’s skipping doses that there’s a problem. However, I’ll check into that too.
Thank you for the offer of PMing. I really appreciate that and so far this time, I think I’m staying on top of them. 
Hopefully that’ll stay the case. So I’m sure at some point I’ll be taking you up on your offer. Thank you again so much for all your help.
Thank you so much Ruby. I really appreciate what everyone is doing for us. The money couldn’t come at a better time, of course, but it’s the fact that everyone cares so much that has my heart about to burst. I’ll PM you as soon as I can.
It’s crazy, isn’t it? And I tried to PM you one last time (obviously before you posted this), but I’ll try again. And as since you’ve been there, I can honestly say that I’m so very sorry for that. Agoraphobia was one of the worst things I’ve ever been through personally. I hope you’re better now and if you ever need to talk about it (or related mental health stuff), please consider giving me a holler. If nothing else, I can listen.
Thank you honey. I know we haven’t gotten to talk as much as I’d like recently, but I always keep up with you on the boards. I’m always pleased when what I read seems to imply that you’re out there kicking butt and taking names. That’s amazing. So know that I’m still jealously guarding my mental health and that I’m confident we’ll get through this. And I appreciate your prayers, just like always. Thank you so much that.
Don’t worry. We’ll find a way around that, no matter what we have to do. I’m not sure what that may be, but I’ll be damned if I give up without a fight.
Now I’m off to catch up on PMs. Thank you all again. As I can’t say enough, you guys are great. If it wasn’t for the place, I really don’t know what I’d do.
Another thought - about disability. A friend of mine works for Binder and Binder. They’re a national law firm that specializes in disability claims. There are also other firms like this.
The way it works is…they take your case pro bono. They hold your hand and help you through the process. If you win the case, there is a bulk payment for benefits that would have accrued starting from when you applies - they get a set amount of that (20%? 40%? I forget). You get the rest, plus your monthly payments after that. It’s typically worth it to not have to deal with the system yourself.
SSI takes a long time to process. Your state representative can help push it along. His office will have staffers who read e-mails and bring worthy cases to the right people’s attention.
-D/a
Kemi, I took the liberty of copying and pasting part of your OP in a board where several friends of mine hang out that live in the Dallas area. I asked them to provide me with phone numbers and/or email addresses of any organization they could possibly think of that might help you.
If I get any responses, I’ll PM them to you as soon as I see them.
Best wishes to you and your hubby. We’re all pulling for ya here.
Kemi, I can’t do much like others but I’d like to at least put you on my Christmas card list if you would not mind. I’ve followed your saga from the other thread and kept up with the updates. It sucks, and I’m sorry. There has already been alot of good advice given. Just remember we are here when you do get fed up! And it’s ok to get fed up sometimes!
:(:mad:
We are all in this together. I feel less alone. Thank you.
D/a, since we’ve already filed, I don’t think we need an attorney, at least not according to the information I’ve been getting. However, the state representative thing sounds promising. I’ve been recommended something similar, so I’ll definitely check into that. Thanks again.
Clothahump, thank you for that. Help in general is good, but local is awesome. I also saw that you PMd last night. Sorry I haven’t gotten back to you sooner. Hopefully, I can catch up on the rest today. Thanks again so much.
Shelli, we’d love a Christmas card. We’ve had to tell our meager circle (mostly my parents and his son) that we’re not ‘doing’ Christmas this year, so it would be amazing to receive some holiday cheer in the mail. Thank you for thinking of us.
I’m so glad you feel less alone. {{{HUGS}}}
I just wanted to say thank you again to everyone who has PMd. I had a whopping migraine last night and didn’t get to finish replying and today we have doctor’s appointments, so I may not get to them until this evening. I apologize for the delay. Just know that they mean so much to us and, once again, I’m grateful for every offer of help, in any manner.
I love you guys.
I wish I could just send you $10,000.00. you are in my thoughts, for what its worth.
Sorry I haven’t updated sooner. We’ve been inundated with doctor’s visits, being on the phone with the various insurance companies and fighting. I’m just exhausted and all I’d really like to do is sleep and post the occasional bon mot (or so I hope).
We had a talk about how we’re going to handle things going forward and that’s only served, it seems, to make things even worse. Argh. Anyway, I’m still trying to catch up on all the PMs. If I haven’t gotten to you yet, I should by tonight. The rest will still, hopefully, happen this week.
Thanks again to everyone.
Hang in there.
The mantra I hang on to in times like this: Progress is not linear.
Keep your head up, and keep asking for the help you need. Good luck.
Just popping in to say Hi and send some good magic wishes. I escaped my own issues for a few days and went to Disney World. Mickey Mouse said to give you a hug.
-D/a
I skimmed most of the thread, so I apologize if I missed a few bits of information.
Regarding SSI/SSDI: is your claim still pending at the initial level? If you’re denied, I would absolutely appeal. It varies widely by state and caseloads, but the average processing time for a hearing usually takes 6-12 months. Appeal, appeal, appeal. Your case is seen by an administrative law judge (ALJ), and it is almost entirely up to his discretion at that point. The initial claim is much more “by the book” and decided without any face-to-face interaction. The reversal rate in our office seems to hover around 50-60%, so make sure you appeal if you are denied.
That said, getting an attorney for the appeal stage is a good idea. Many unrepresented claimants do a poor job at their hearings, which is expected. Attorneys ask the right questions and know all the ropes (and usually even give you tips about the Judge that will be hearing the case). Most of them are pro-bono and charge 25% or $6,000 of your winnings, whichever is less. There is also an issue of backpayments, but that is dependent on your claim.
Don’t let us become another source of stress - update when you can, and don’t worry about it. I hope I can safely speak for everyone when I say we understand if you can’t get back to us too quickly.
Take your time.
We just went through this exact situation with my gf. Denied twice through the regular channels, secured an attorney who filed another appeal. It never made it to the ALJ hearing. Whoever looked at it at that level approved it without any more questions. And the reason they couldn’t have done that two years ago is… :rolleyes:
I’m very sorry about all the crap you’re going through, faithfool and BMalion. I am not sure if this really helps, but: when you get to a point where you’re out of ideas and don’t know how you’ll keep going, you’ll find something that allows you to continue. I hope your paths get easier.