First of all, my heart goes out to you. While I was reading this thread, my daughter came over an crawled in my lap. She doesn’t do that very often.
Secondly, the two states I’ve lived in since my daughter was born both had programs for children 0-3 years old. In Florida, it was called Baby Steps, in Georgia, Babies Can’t Wait. Essentially it is a state funded program that exists to intervene in matters of infant health/well being. My daughter was diagnosed with a significant speech delay. I had full coverage insurance. The insurance only covered 6 therapy sessions and there was a 4 month wait for an evaluation. When I found Baby Steps, they were mandated to provide care within 30 days. It is not based on income. They don’t give a crap if you have insurance, their job is to help the kids.
I have no doubt that your daughter would fall under their criteria. I’ve searched the California Public Health site and couldn’t find the program. However, I have the number of the woman who helped start the Babies Can’t Wait program in Georgia and will find out if she can put me in touch with someone in California, or at least get the name of the program.
To put it in perspective, while my full coverage insurance would cover 6 therapy sessions, Baby Steps provided weekly therapy sessions at my home, full evaluations and transitioned my daughter into the school system when she turned 3.
I know they deal with much more serious issues than we had. I’ll report back when I have more information.
Have you seen this article? It’s about a local (to us) boy with SMA I who actually can spend time with an in Kindergarten a few hours a week. He’s sick, no doubt, but learning and living.
Is there any place where they list all the crafters who were there? The reporter said you could order stuff online, and I really like that gray knitted hat with the steampunk looking goggles that was displayed by the first exhibitor they talked to (the one who also had the football hat). They mentioned there was a list somewhere on the site, but I couldn’t find it.