Well I have an update and it is not good. At this point the constant blood they are giving him as well as the ventilator is the only things keeping him alive.
He is now bleeding from his esophagus and intestines on top of his stomach so basically the blood they are giving him is bleeding out as fast as they are putting it in. The blood just will not coagulate. Along with the major organ shut down there is really no hope.
Since his living will states he did not want to be kept alive by machines then they are going to stop the blood today. His sister and I agree that the blood is no different than a respirator or a feeding tube. It may be sustaining him but with no hope of recovery.
I am taking our kids to the hospital today to say good bye. Jesus that was hard to write. His children are devastated. It so unfair. I talked to my son on the phone and he understands but is very upset as well. He is very close to his grandmother so he called her and she was able to talk with him while I talked to my daughter. She can’t believe that it is happening so fast. I had to explain to her that another day or another week is not going to make any difference. He is not going to get better. I wish I could take their pain away.
I spoke to his CCU nurse and his doctor last night on her behalf so that she would understand that there really was no hope. I guess she needed to hear that to be able to let go. His sister does have medical power of attorney so she could do it without the kids blessing but I wanted them to know and understand why she came to this decision. The doctor told me once they stop the blood that in her opinion he has about half a day to live.
You know that is it exactly. In last year or so he was so wrapped up in what he didn’t have he never saw what was right in front of his face. Two wonderful kids that love him very much.
They are the most wonderful people in my life. I feel so helpless that I can’t save them from this. I can hold them and wipe away their tears but I know the horrible grief they will carry in the months to come and it just breaks my heart.
Now he has two kids that are blaming themselves for not seeing him more or not doing more to help him. I told my daughter she is not being fair to herself. If anyone went out of their way to keep in contact and see him it was her. She was not being fair to herself. She was a very good daughter to him and she needs to hold on to that.
She said last night that she asked him on his birthday what he wanted for Christmas and he answered he probably would not be around by then anyway. How could he do that to her?
I tried my best to explain that people are going to do what they are going to do. You can talk to them and you can tell them you don’t agree or you are unhappy but in the end they make their own decisions. She can’t blame herself for anything. She said he was not taking his medication because he did not have the money and she thought about buying it for him. I had to tell her that him not taking the medication did not put him were he is. (none of his medications were antidepressants.) The hardest part was she said what I was thinking at the time which was “he did not have enough money for his medication but he had enough to buy beer.” It is just so sad.
The next few days are going to very hard. We talked about making arrangements. We talked about what to do with his belongings and his house. Of course nothing is definite by any means but for some reason talking about the reality of things seems to settle the nerves and calm the emotions even if only for a brief time.
It really helps to get it all out and know I am not alone.