Last Friday we went to the local hospital for a platelet count and he was at 7,000 so into the hospital for treatment we went.
Well, he didn’t respond well as he usually does to the treatment so up the the university hospital in Iowa city we went on Monday.
Bone marrow testing, lots of lab work and tons of fun to be had by all!
Bone marrow came back great so we know we aren’t dealing with anything more serious then we have been dealing with since he was 2. He’s going on 6.
Hopefully we will be back home later tonight. Keep your fingers crossed.
I know we have a doper or two up in Iowa City, but I just found out that they had a computer up here that I could use.
So anyway we are finally at 51,000 and hopfully continuing to rise. If we go till dinner without a nosebleed since his hemo is also down a bit, we will get to go home.
Damn.
Sorry to hear.
Best wishes.
<worried>Good luck.<well, no, because I’m still worried, & so I can’t close>
Let us know how the rugrat is doing.
Fingers crossed y’all get to go home Kricket. Best to KricketKid. I hope everything goes well and yeah, let us know how he’s doing, please.
Call me Kricket if you need anything…sounds like your kiddo is getting good care. We’ll keep you in our thoughts and prayers.
Dave
My thoughts are with you and your son. Get home safe and sound.
-Jonathan-
Well shit Kricket, like you both havent had enough already.
Shit.
Fingers crossed in the maritimes. Hugs to you both,
K
Best of luck to the little dude, and to you, too, Kricket.
Best wishes for your son and family. I Hope it all turns out okay. 
It’s not easy to have to go through this kind of thing, but I hope everything turns out the way you want it to. Hope your son feels better, and you can go home. 
Best wishes and prayers from Ginger and I, please, keep us posted!
All my love, best wishes and positive thoughts coming your way, honey.
And my prayers, too.
Much Love,
Cheri
kricket
Add my hopes and prayers to the others. My own son was accident-prone, so sudden trips to ER and surgeons are well remembered. Thinking about you and the tadpole!
Yea!!!
We made it home!!!
Lots of meds brought home with us but we are home.
He was upset because he missed activities hour at the hospital but is happy he got his IV out and got to go outside.
They finally diagnosed him as chronic ITP instead of telling me each time we went was going to be the last.
I mean it’s not the best news, but at least I have them on their toes again with it.
We have lab work in town tomorrow and then we go back up to Iowa City on the tenth.
To tell you all the truth I am excited about being home again, but on the way home I started to worry if it was the right decision.
What if he bumps his nose and starts bleeding again in the night? What if he gets hurt while I am at work and can’t get home right away to be there for him? I know my husband is more than capable but I’m the mom.
Most of the time I play the bad guy who helps the doctors hold him down for procedures since dad doesn’t like needles. But I also get to play the good guy and give hugs and kisses too.
Thank you for all the positive thoughts.
Dave, you and I have become great friends and knowing you and Ginger are out there for us means alot to me.
MSK has been keeping me laughing when times get tough.
BeagleDave I know would have been up to see me while we were in town and would help now that we are home.
And those I haven’t mentioned by name yet I just want to tell you how much it means to me to know you are out there.
Kelli has touched me lately and Cheri every doper childs favorite aunt.
And to top this stress factor off tomorrow it will be two years since my oldest son was hit.
Hugs to everyone and many thanks!
{{{{{{{{{{{{{{Doper Family}}}}}}}}}}}}}}}}}}
Platelet count down a bit today. Not much, but it should be going up not down damn it.
Now I am worried about waiting until Friday the tenth to get another count.
I hope everything works out. My younger sister has had pneumonia a couple times and we’ve spent a couple xmas in the hospital. I know what having sick kids is like, I was one too, getting bronchitis almost every year until my mid-teens.
Must be all the fresh air and corn or something… where are you, Kricket? I haven’t seen any other dopers who go ‘up to Iowa City’. I live about 15 minutes north of Burlington.
I just googled for chronic ITP, and it looks like it sucks. I’m glad they ruled out the other nasties, though. I hope his platelet count stays up, and he ‘gets well soon’.
Ben
{{{{Kricket}}}}
Hope the count goes up again. (And stay up, do you hear me, don’t make me come over there!)
We are in Davenport about an hour away from Iowa City depending on who is doing the driving.
Hi Kricket,
I was sad to hear your son was ill.
I am not familiar at all with this platlet thing. I know it has to do with blood, but thats about it.
I hope he gets to feeling way better!
They had put Dylan on some pretty high doses of steroids to try to treat the symptoms of the disease since there isn’t a cure and they don’t know what is causing it.
Well, the steroids aren’t working.
We are at the end of the tapper down dosing and he has gone from over 200,000 platelets to 51,000 in the last two weeks.
They started him at the begining of the tapper down dosing again but have no idea what they are going to do if this disease fights through.
We go back again at 3:30 this afternoon for another CBC to see if the high doses I gave him last night and this morning have affected the count in a positive way.
If they haven’t then we will be back in Iowa City for another series of lab work and another consultation to possibly include removal of his spleen.
I have to find something on spleens now. I know you can live without one but it’s not ideal. I need to prepare myself in case this happens.