Before I took my first psychiatric drug, I tried to tough it out too. I was afraid they would change me into something unrecognizable, or that the side effects would kill me. Or that they would just be a waste of money.
And I wasn’t half wrong. I went through a whole catalogue of drugs, it seems, and some of the side effects DID pull a number on me. Geodon turned me into a zombie. Not a sleepy zombie, but an insomniac zombie. I once got lost in a city park while being on that drug. Not the wild jungle, but a freakin’ city park that I had been to plenty of times before. Lexapro was no better. I never wanted to kill myself more than while I was on that drug. I cussed out an old lady too. I had a good reason, but still. That was out of my character.
Those experiences made me aware that you have to be an informed consumer, and that no one can force you to take anything you don’t want to. They wanted me on Haldol. Knowing what a hard-core drug that is, I went Hal-Nawl to Haldol. They wanted me on Risperdal. I told the doctor I refused to take anything that would most certainly make me fat, so hell to the nawl to that as well! So he put me on Abilify. It worked a little, but it turned my turds into bricks and made my lips pucker and quiver. When I realized mouth movements like those could become permanent, I stopped taking it promptly. The nurse practioner said perhaps I could try a lower dose and I told her no. No tardive dyskinesia for me, thankyou.
But I didn’t give up.
Wellbutrin allowed rays of sunshine to come in, and once we got the dose right, the side effects were tolerable (though I have to count calories so I don’t become underweight). Klonopin controlled the tics with minimal side effects, but it’s power is waning and I’ll need help getting off of them. Now I’m on Anafranil, which two years ago I refused to take because I thought I was strong enough to handle my problems. I really wish I hadn’t been so stubborn. I could have saved myself two years of racing thoughts and catatonic features. I’m dealing with the side effects like a sleepy, nose-bleeding, dizzy-spell-having little trooper. But damn that stuff works. I’m about to start my period (when everything is usually at its worse) and my head is crystal clear, my movements as fluid as a ballet dancer’s. Anafranil is my “key.”
Yesterday, the doctor said he wanted to add another drug just to knock out the last remnant tics that I have, without the sedative effects that Anafranil has. And ya’ll know what I said? No. I’m taking three pills now, and I don’t want to take a fourth. I want to be functional, not perfect. And because I’m the boss of this ship, he listened to me and put down his prescription pad. Hopefully my exploration of the pharmacy shelves is over and done with.
Am I cured? Well, I’m not depressed anymore. At least right now. My thoughts are not jumbled and painful, I don’t hear echoes in my head, and I don’t have fantasies about hanging myself anymore. I do have a basal ganglia disorder that will probably always be with me. Perhaps one day I can get off the drugs, or maybe not. I don’t know. All I know is that all my “toughing it out” was a damn waste of time and could have endangered my life much more than the drugs ever did. I’m not just talking about suicide, but literally freezing up in the middle of intersections during rush hour traffic because my legs wouldn’t move. Yes, I had to endure lots of pain before I found the drugs that worked, and I’m not exactly pleased that I don’t have all the energy I used to have before I started taking Anafranil (and I am sick of my nose bleeding all the time). But the struggle has been worth it.
I’m not “weak” or a “sell-out” because I use medication. I’m brave and actually care about getting better.