Seth Cook, best known for his battle with the disease progeria, has died at the age of 13.
He always seemed like a really neat kid, and I’m sorry to hear of his death.
I remember seeing him on a talk show once. It was the first I’d heard of the disease, and I was fascinated and saddened and horrified(for him, not at him) all at once.
Poor kid. 
Even though I didn’t know his name I do remember seeing some shows about him. It sounds like he and his family tried to mke the best of a sad situation. Hopefully those trials of that new treatment will end up helping other kids with this terrible disease.
The linked article says, “An avid reader, [Seth] . . .was in the middle of listening to “Voyage of the Dawn Treader” by C.S. Lewis, one of his favorite authors.”
So, from The Voyage of the Dawn Treader:
Safe journey.
Aw. God by’ye, Seth.
It was on the front page of the Seattle P.I. yesterday morning. It brought tears to my eyes when I saw the story.