Over the past decade, these parents came to realize that three of their ten children had an incurable genetic neurological disorder that was slowly but surely taking away their ability to see, to move, to swallow, and to think. By this summer, the three children (now 20, 19, and 15) were on life support, and it was only a matter of time. So the parents set up three hospital beds in their living room, arranged for the feeding tubes to be withdrawn, and waited by their bedsides over the longest weekend ever, for their children to die.
Elizabeth passed on Friday, James on Saturday, and Christopher on Sunday. I can’t even imagine what that must have been like.
The parents purchased three double-depth burial plots. One is for themselves, when time comes. Christopher and Elizabeth share the second one, and James was buried in the third. The space above him awaits the family’s 10-year-old, Samuel, who has tested positive for the same disease.
Story here.