Thanks everyone for hugs, prayers, etc. It helps a lot to be able to talk about it.
rosei I call mine lupus+, because I have so many other syndromes and conditions along with it. The disease with a thousand faces, ya know? I understand exactly everything you said. My mom has sle too, she was pretty sick in the 60’s and 70’s, then went into remission, but it’s involved her liver now. She’s still running around as usual, but like us, she has to conserve energy, and at times take time off. Don’t you just hate it when you have been avoiding the sun like crazy, and then someone comes up and tells you how pink your cheeks are, you must have been out in the sun! And when I do get any sun, even just while travelling in the car I get the oh-so-lovely spotty sores on my face. I also have a lot of arthritis, osteo and rheumatoid, FM, plus a really messed up back, knees, hips, and carpal tunnel. I have had to move from scooters to the Chair of Doom if I am going to be out and about. VB I get the impression that your wife is in a similar condition? It’s amazing how many co-lupies one finds after being dx’d! I appreciate understanding, I loathe pity.
I am foggy headed today, (as if that was news!) Taters, get thee to a medic!
Oh, and btw, Johnny Depp is mine, all mine, muahahaha!!! (What a gorgeous human being!)
I need to get back to work, skiffman is home for the day, and we are clearing house. There are going to be many trips to the dumpster, and at least one pickup from the thrift store.
Again, I appreciate your support more than you’ll ever know. I only break down sometimes, and it helps to know that Steve is, and Ron will be, in a better place, and eventually the circle will be unbroken once again.*
*I just want to add a disclaimer that my God is a loving God, and just because any of you may not practice my brand of Christianity does in no way exclude or minimize your particular beliefs. I believe that God is bigger than that kind of thing.