So here’s the deal.
My husband and I work full time and we have a five year old Level 2 autistic boy who just started kindergarten. I had kind of hoped his needs would taper off as he got older but we seem to have jumped from the frying pan into the fire. He wants nothing to do with the other kids and he’s eloped (run away without warning) twice in the same day this week along with a host of other behavioral issues. The elopement is quite serious - he got outside the safety gate at recess and had to be chased down. And we recently started him in social skills group twice a week every night which we deem critical to his needs right now.
After we met with his teacher this morning we started trying to figure out what was really going on with him. Well, the first and most obvious thing, he’s not getting any sleep. Social skills group - which is critical, as is the support we’re getting around troubleshooting these school issues - totally throws his schedule (and mine.) I recently started handling all drop offs early in the morning so my husband could get more work done. I am now doing all that plus picking him up - quitting work at 3pm, driving him to social skills group losing two hours of my time since it’s too far away to go home, and then driving him home. About 90 minutes of driving two evenings a week plus two hours of lost time. My husband is a clinical psychologist and he is constantly swamped and struggling with all the logistical things that come up when he needs to get work done. There are days he comes home and goes right into childcare mode with no break. He works most weekends.
I love my job, though it is very stressful, but by the end of the day I feel like I have so little left for my kid. I just feel like a zombie. I’ve been eating cereal for dinner. It’s going through the motions at this point.
But we cannot figure out how to logistically meet the needs of everyone in our family. We decided to take him into school later in the morning so he can get a little more sleep (still not the recommended 10-13 hours.) This required me to change my schedule and leaves even less time in our workdays.
And finally I was like, okay, what if we took the nuclear option? What if I became a stay at home Mom? Take him to the bus stop every morning, manage all appointments, keep the house clean (it’s wrecked), handle all transportation and school logistics, and all my husband needs to do is just work and then come home and rest? Believe me, he needs the rest. Kid gets the sleep he needs, I have more time for self-care, cooking dinner, exercise, housecleaning etc. This sounds very appealing to me. I’m at home most days anyway so I’m already used to being here. I would just have more time to get shit done.
Downside: I lose a job I love and we lose a little less than half of our income. We are currently putting most of that income into savings/investments. We’d probably have to put a lot of this on pause as our son gets sorted out. I’m guessing this would last 2-3 years just giving him the presence and support and therapeutic support he needs. There’s a decent chance my husband’s income would increase given more time to work. Maybe I would do some free lance work or have some kind of contractual relationship with my current agency.
This kid is so smart he could work at NASA someday. That’s the potential. The challenge is giving him the support he needs to get there. I don’t want to look back and think, “oh, if only we’d had the bandwidth to do more.” I felt like an absolute monster when I realized he was sleep deprived. This would be a hard adjustment for a neurotypical kid but he’s not and we’re asking him to do it all without the sleep he needs. I just think getting him in a regular, consistent schedule, getting sleep, getting attention at mealtimes, all of it could turn things around for him. But I cannot do that while working. I don’t even usually have to work a full 40 hours each week and it’s still too much.
I just don’t know what else to do.
Thanks.